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Last week I shared a number of useful suggestions made on-air by my special guest, Dr. Donald Abrahms, on our monthly Cure Talk broadcast. Here are some more:
Dexamethasone. When compared to novel therapy agents like Revlimid and Velcade, it’s almost an afterthought. But using it with most any myeloma therapy enhances effectiveness by 30 – 40%.
I concluded Saturday’s post this way: “Tomorrow I will reveal what my topnotch medical team decided to try and knock my myeloma back into submission. Here’s a hint: I was pleasantly surprised; it was a unanimous decision!”
Like most Americans, I was stunned by the announcement late yesterday that Tom Brokaw has multiple myeloma. USA Today’s Liz Szabo wrote about it last night. Here’s the first part:
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Posted on March 09 2014 | 201 views
There was good news on the drug development front this week. Most myeloma experts agree that the experimental immunotherapy drug, daratumumab, is the most promising anti-myeloma drug in it’s class so far. Recruiting for a Stage 3 study is a good sign. Here’s an official press release about it:
Posted on March 08 2014 | 265 views
Except for a few of you out west, hasn’t this been a horrific winter? But there’s hope on the horizon! March is Multiple Myeloma Awareness Month. Can spring be far behind?
Posted on March 07 2014 | 505 views
Well wasn’t that fun! Did you read the comments from the past few days? Things quickly deteriorated from “Our readers are amazing” to I think this group still needs an editor! At least now I know; if there were a “sweeps week” for bloggers, all I need to do is write something derogatory about Total Therapy, stand back and watch the comments rain in!
Posted on March 06 2014 | 831 views
I knew that writing about Total Therapy–along with the word “cure”–would be controversial. Setting science and numbers aside, some of us have made very personal, life and death treatment decisions. It’s to be expected that we would defend our choices.
Posted on March 05 2014 | 878 views
We spend so much time hoping and praying for a cure. Could it be that for some, a cure already exists?
Posted on March 04 2014 | 341 views
Myeloma cells are so sensitive to radiation, I have often wondered why radiologists don’t simply radiate a patient to the point that myeloma cells are destroyed throughout their body.
Posted on March 03 2014 | 524 views
While I was covering the American Society of Hematology (ASH) meetings in New Orleans this past December, I met with Andrew Schorr for an interview on Patient Power. It was an awesome experience!
Posted on March 02 2014 | 483 views
Sherry from San Diego emailed me last month after learning that I shared her T(4:14) chromosomal deletion. She seems much more concerned about it than I am–possibly because mine developed years after I was diagnosed.
Posted on March 01 2014 | 357 views
The news about marizomib wasn’t unexpected; I have been following the new proteasome inhibitor for quite some time. But I wasn’t as familiar with another experimental drug, dinaciclib, currently involved in several human trials.
Posted on February 28 2014 | 488 views
Reflecting back on last Saturday’s Myeloma Beach Party, there are so many lasting memories! Fortunately, party goers captured a lot of them in pictures. Here are a few that I feel best captured the spirit of the event.
Posted on February 28 2014 | 396 views
Triphase Accelerator Corp. announced today that it’s new proteasome inhibitor, marizomib, has been granted orphan drug designation by the FDA’s Office of Orphan Products Development for the treatment of multiple myeloma.
Posted on February 27 2014 | 664 views
Our interview with Dr. Rajkumar last evening was amazing! Mayo Clinic’s finest was at his best. He covered so much ground I could write a half dozen posts based on his answers. Clear, concise and controversial; you should listen at your earliest convenience.
Posted on February 26 2014 | 495 views
I’m excited to have the opportunity to question Mayo Clinic’s Dr. Vincent Rajkumar on Cure Talk Radio today at 5 PM Eastern time. If you asked me to name the five most brilliant and influential myeloma specialists in the United States today, Dr. Rajkumar definitely makes the list.
Posted on February 25 2014 | 415 views
Tom’s allo journey continues to astound me. While he’d agree it’s no walk in the park, I think he’s holding up admirably:
Posted on February 24 2014 | 464 views
Hopeful! Inspiring! Fun! Three words I heard partygoers use most to describe Saturday’s event. 63 myeloma survivors, caregivers, friends and family members from 11 different states made it for dinner. Others stopped by for a quick drink and to say hello.
Posted on February 23 2014 | 669 views
What a blast! Great weather and new friends from a dozen different states helped make yesterday truly special! I’ll share fun highlights and pictures from our gathering in a day or two. In the meantime, People Magazine ran a feature about Tom Brokaw this week. Here’s an excerpt:
Posted on February 22 2014 | 728 views
Today’s the big day! Surprisingly, I slept well last night. Up early to start setup for our Myeloma Beach Party at Bahama Breeze on Tampa Bay. The weather forecast calls for 78 degrees and a chance of rain. We’ll take it!
Posted on February 21 2014 | 559 views
Time for a medical update. I completed radiation therapy yesterday. It didn’t work as quickly on my rib pain as it did in the past for my back and hips, but the pain is improving; it doesn’t feel like someone shot me in the side every time I twist, turn or cough!
Posted on February 20 2014 | 551 views
Our good friend, allo stem cell transplant patient, Tom from Ohio, hit another unexpected speed bump last week, developing a new food allergy. He recently wrote this update for us:
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