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2017 Pat’s Myeloma Survival School and Muscles For Myeloma Beach Walk 5K Cut Off Reminder

Pat's Myeloma Survival School

2017 Pat’s Myeloma Survival School and Muscles For Myeloma Beach Walk 5K Cut Off Reminder

Posted on February 16 2017 | 95 views

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Less than 3 Weeks to Fernandina Beach!

Pat's Myeloma Survival School

Less than 3 Weeks to Fernandina Beach!

Posted on February 13 2017 | 101 views

Hello Everyone!

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2017 PMSS LOGO 300×300

Pat's Myeloma Survival School

We Are Only 28 Days Away!

Posted on February 02 2017 | 220 views

 

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Main Hall Photo 2016

Pat's Myeloma Survival School

Countdown Has Begun!

Posted on January 24 2017 | 365 views

We are officially 40 days from the 2017 Pat’s Myeloma Survival School in Fernandina Beach, FL!  Time is going so fast as preparations continue for the event. We are now close to the cut off dates to take advantage of the Group Rates.  The rates that have been negotiated are at a huge discount from normal market rates.  If you have not reserved your room yet, please do so ASAP!

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2016 Beach Walk Photo

Pat's Myeloma Survival School

2017 Pat’s Myeloma Survival School Beach Walk

Posted on January 18 2017 | 301 views

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Hotel Information for Pat’s Myeloma Survival School 2017

Pat's Myeloma Survival School

Hotel Information for Pat’s Myeloma Survival School 2017

Posted on January 04 2017 | 634 views

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Pat’s Myeloma Survival School 2017

Pat's Myeloma Survival School

Pat’s Myeloma Survival School 2017

Posted on December 05 2016 | 2,088 views

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It’s Almost Time!

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It’s Almost Time!

Posted on March 30 2016 | 2,331 views

AMELIA SUNRISE

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We Still Have Room!

Uncategorized

We Still Have Room!

Posted on March 26 2016 | 1,626 views

We will all be meeting in Fernandina Beach, FL next Friday already! The excitement continues to grow as we continue to get everything in place.

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PatsBeachPartyMeditation2015

Pat's Myeloma Survival School

We are only 10 days away!

Posted on March 22 2016 | 1,530 views

Can you believe it?  In 10 days, we will all be gathering for the 2016 Pat’s Myeloma Survival School in Fernandina Beach, FL.  We are so excited to see everyone and share great information for both patients and caregivers from our amazing speakers. We are looking forward to spending time with all of our friends, old and new and remembering all the fun we have while we are there! Also, a part of the weekend is our fun 5K Beach Walk and a Silent Auction with unique items from all different geographical areas.  Registration is only $60/person and includes access to all speakers and activities, 4 meals and a swag bag. If you have not registered yet and want to join us for this unforgettable weekend, you can still register here:

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Womens Club Pic

Pat's Myeloma Survival School

Great News-Focus Groups are Back!

Posted on March 09 2016 | 1,996 views

Fernandina Beach Women's Club

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Pat's Myeloma Survival School

Pat Gave Us His All, And Continues To Do So With An Outstanding Survival School. By Gary Petersen

Posted on February 25 2016 | 3,015 views

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Pat’s Beach Party Memorial is now Pat’s Myeloma Survival School, and before he so tragically left us, he put together an outstanding program for the newly diagnosed and long term myeloma survivor.  As only Pat could do, he has lined up some of the best and most knowledgeable myeloma doctors and patient advocates to present the World of Myeloma According to Pat.

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Countdown Has Begun!

Pat's Myeloma Survival School

Countdown Has Begun!

Posted on February 22 2016 | 3,049 views

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PatBdayBallon2016

About Pat

A Special Tribute to an Incredible Friend

Posted on February 12 2016 | 7,125 views

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Comments (38)

About Pat, Diagnostics, Side effects, Transplants

I’m not dead yet!

Posted on February 08 2016 | 12,351 views

The commonly used name here for plasmapheresis is plasma exchange. I”m being hooked up for my third, three hour round of plasma exchange. Honestly, I’m in pretty bad shape.

Comments (111)

0206161422

About Pat, Side effects, Support, Transplants

Tough day for me and my blood

Posted on February 06 2016 | 4,462 views

Plasmapheresis and dialysis on the same day? My body is buzzing; literally buzzing. But it all seems to be working.

Comments (16)

About Pat, Diagnostics, Side effects, Transplants

My world turned upside down

Posted on February 06 2016 | 4,780 views

As difficult as my myeloma journey has become, the one silver lining has always been my excellent kidneys; no worries on that front. That all changed today. I learned today that my kidneys are/have failed.

Comments (35)

Dr. Guerrero

About Pat, Diagnostics, Side effects, Transplants

Medical mystery worthy of reality TV

Posted on February 05 2016 | 3,353 views

I’m a medical mystery. Why should I be surprised? Some of the medical news is good. But overshadowing basic improvement are a long list of unanswered questions. I’ve never had more blood drawn in my life!

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Baptist

About Pat, Caregivers

Enough drama already!

Posted on February 04 2016 | 2,816 views

Ongoing struggles recovering from my second stem cell transplant in six months make it easy to write compelling posts. But enough already! I was admitted to our local Baptist hospital last night after an emergency room visit that revealed I had pneumonia that was getting worse by the hour.

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