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Roswell Park Buffalo

Research, Transplants

New clinical trial tackles age-old question: What’s better, one transplant or two?

Posted on May 21 2013 | 104 views

This is the type of clinical trial that may help our doctors make better multiple myeloma treatment choices:

Comments (1)

Dr. Durie’s Blog

Nutrition, Tips

IMF’s Dr. Brian Durie: “Pay close attention to what you eat.”

Posted on May 20 2013 | 287 views

I’m guessing most of you missed Dr. Brian Durie’s blog post about nutrition on the International Myeloma Foundation’s (IMF) website a few weeks back:

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Pattie and Finnegan 3

About Pat, Caregivers

Reflections from a quiet, thoughtful Sunday together

Posted on May 19 2013 | 272 views

Today was just what my wife, Pattie and I needed; a mental health day.  My hip felt good enough to walk along with Pattie and our dog, Finnegan, in a beautiful wooded area for a half an hour or so.  We came home, ate breakfast and then pulled-out the legal pad.  Time to revisit some of the vexing questions facing our future.

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Martin

Nutrition, Tips

Exercise & Multiple Myeloma (Part Three)

Posted on May 18 2013 | 291 views

Our good friend and healthy lifestyle columnist, Danny Parker, has been off-the-grid for several days at a Buddhist retreat.  Upon his return, Danny discovered lots of comments and questions about Interleukin-6 (IL-6).  He has been gracious enough to put-together an unscheduled column to try and help explain what’s going on:

Comments (1)

News, Therapy

Myeloma doc’s dilemma: “Where do we use what, when and how?”

Posted on May 17 2013 | 341 views

Awesome Patient Power video features Dr. Shaji Kumar discussing how new understanding of myeloma pathology and therapy is moving the multiple myeloma treatment field toward personalization to improve outcomes.

Comments (7)

twitter

News, Research

Twitter and upcoming ASCO meetings in Chicago

Posted on May 16 2013 | 228 views

I’m guessing that most of our readers don’t “tweet.”  Facebook seems to be the more popular social media among us 50 and older types.  But I like twitter.  And doctors love it!   Easy way to access abstracts and to post theirs.

Comments (1)

Caregivers, Tips

Still time to register for tonight’s broadcast!

Posted on May 15 2013 | 160 views

I learned a few moments ago that there are still slots available if you would like to participate in tonight’s support group meeting.  Here is the direct link to register below:

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sue

About Pat, Caregivers, Inspirational

Nationwide myeloma support group broadcast tonight

Posted on May 15 2013 | 229 views

Tonight I’m taking part in an experiment.  With the help of Priya Menon and the team at Cure Talk, we will be launching an on-air, nationwide multiple myeloma support group.

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Exercise & Multiple Myeloma (Part Two)

Research, Tips

Exercise & Multiple Myeloma (Part Two)

Posted on May 14 2013 | 416 views

I think Danny’s column this week is exceptional.  See what you think:

Comments (13)

About Pat, Caregivers, Tips

What happens if your caregiver can’t help anymore?

Posted on May 13 2013 | 403 views

70% of multiple myeloma patients are over 70 years old.  So it isn’t unreasonable to anticipate that a wife or husband–currently acting as caregiver–might be blindsided by a serious medical setback themselves.  What then?  Do you have a contingency plan?

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Honeymoon Island_088

About Pat, Caregivers

Unexpeced Mother’s Day hiccup leaves us searching for answers

Posted on May 12 2013 | 517 views

What do we do when our caregiver is unable to help us?  Pattie has been having medical issues for years.  Still undiagnosed, her wrists are mangled and painful.  Her back seizes-up on her, often with no warning.  Her joints swell and I can see the pain and fear in her eyes.

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About Pat, Tips

Pat’s Surgical Update: One week post surgery

Posted on May 11 2013 | 303 views

I started writing this post yesterday afternoon, exactly one week following my hip replacement surgery.  I’ve received so many kind comments and emails.  Thank you!  But hearing from John Knighten puts things in perspective.  I feel so bad for the guy.  Our thoughts and prayers are with you and your family, John!

Comments (7)

Caregivers, Inspirational, Tips

On-air myeloma support group meeting launches Wednesday, May 15th at 6 PM

Posted on May 10 2013 | 727 views

Our local Nature Coast Multiple Myeloma Support Group meets the third Wednesday of every month at 6 PM.  That’s next Wednesday.  It won’t happen again, but this month at the same time, Cure Talk is helping me to launch a monthly online/on air support group.  Our one hour broadcast will allow 50 myeloma patients and caregivers to ask questions about myeloma related issues live and in real time.

Comments (4)

John-brighter-days-ahead

Inspirational, News

Patient Snapshot Update: John Knighten needs our prayers!

Posted on May 09 2013 | 624 views

I often describe how living with multiple myeloma is like riding a roller coaster.  In the beginning, the bottom falls-out and you drop screaming.  Then you slowly climb-up, often doing things you never dreamed you could.  At that point its a relatively easy ride around the corner and up and down a few minor bumps.  Then comes relapse; another jaw-dropping, emotional crash…

Comments (9)

Pat hip surgery_728

About Pat, Inspirational

THE MONEY SHOT!

Posted on May 08 2013 | 397 views

Enough of the hospital gown shots already!  But I have received some really fun emails from readers, teasing me about “showing more skin.”  I think we’ve all had the feeling from time to time that we are being watched.  Remember a few days ago when I wrote I was suspicious of Pattie; the way she had been lurking behind me?

Comments (9)

Exercise & Multiple Myeloma (Part One)

Inspirational, Nutrition, Support, Tips

Exercise & Multiple Myeloma (Part One)

Posted on May 07 2013 | 650 views

Comments (3)

Pat hip surgery_727

About Pat

Pat’s surgical update: Monday morning

Posted on May 06 2013 | 438 views

I’m home!  Pattie was having transportation issues taking me home on Monday–and I was feeling surprisingly good–so we checked-out around 6 o’clock Sunday evening.  I chased the doctor down the hall using my walker trying to get him to change is orders from Monday to Sunday.  The fact I could catch him that way may have helped influence his decision!

Comments (19)

Research Update: Racial/genetic factors, HDAC inhibitors and Daratumumab

Research, Supplements/Drugs, Therapy

Research Update: Racial/genetic factors, HDAC inhibitors and Daratumumab

Posted on May 05 2013 | 676 views

There is a lot going on in the world of myeloma research.  Fortunately for us, it seems like these hard working scientists never sleep!  And things certainly don’t stop because I’m in the hospital having a hip replaced!  To start, here’s a link to an interesting research paper that was published in the latest edition of the American Society of Hematology publication, BLOOD:

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About Pat

Pat’s surgical update: Saturday evening

Posted on May 04 2013 | 285 views

I’m off the IV pain meds.  Good news, no IV pole to drag around.  Nurses only use it it in the evening now to administer some antibiotics.  Magic pain button was working well for me.  Dilaudid (hydromorphone hydrochloride), a hydrogenated ketone of morphine, is an opioid analgesic.  A lot better than old fashioned morphine, at least for me.

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