We are fast approaching the 2017 Pat’s Myeloma Survival School and Muscles for Myeloma Beach Walk in Fernandina Beach, FL! In two weeks, we will all be enjoying time together while gaining the latest information on treatment options, good food and fun! We are so excited to see all of you!
We are officially 40 days from the 2017 Pat’s Myeloma Survival School in Fernandina Beach, FL! Time is going so fast as preparations continue for the event. We are now close to the cut off dates to take advantage of the Group Rates. The rates that have been negotiated are at a huge discount from […]
REMINDER-VERY IMPORTANT!! Hurry and get yourself registered ASAP for the Beach Walk this year! Tell all your friends to join you! We need to get shirts ordered for all of you and we need to know how many to order and which size. The cutoff to order them to have them in time […]
As promised, here is the hotel information for the event. There are cut off dates in place to take advantage of the group rates we have negotiated, so PLEASE make your reservation ASAP! It’s better to have a room reserved than wait and not have one available for you. It’s not a problem to cancel […]
It’s Time to come back to Fernandina Beach, FL for the 2017 Pat’s Myeloma Survival School! The 2017 event will mark our 4th Annual Myeloma weekend and we are very excited about what we have planned for all of you!
We will all be meeting in Fernandina Beach, FL next Friday already! The excitement continues to grow as we continue to get everything in place.
Can you believe it? In 10 days, we will all be gathering for the 2016 Pat’s Myeloma Survival School in Fernandina Beach, FL. We are so excited to see everyone and share great information for both patients and caregivers from our amazing speakers. We are looking forward to spending time with all of our friends, […]
Fernandina Beach Women’s Club
2016 PAT’S MYELOMA SURVIVAL SCHOOL
We would first like to thank everyone for the outpouring of thoughts, prayers and support during this time. They mean more than you could ever know and we hold them close to our hearts every day. As we move forward planning the event that was so important to Pat, your support gives us strength and […]
I only met Pat twice, but I feel like I’ve known him forever. We shared a passion for our native state of Wisconsin. Last time the Badger football team got into the Rose Bowl, I invited Pat and Pattie to California so we could all go to the game together. They did and, despite losing […]
The commonly used name here for plasmapheresis is plasma exchange. I”m being hooked up for my third, three hour round of plasma exchange. Honestly, I’m in pretty bad shape.
Plasmapheresis and dialysis on the same day? My body is buzzing; literally buzzing. But it all seems to be working.
As difficult as my myeloma journey has become, the one silver lining has always been my excellent kidneys; no worries on that front. That all changed today. I learned today that my kidneys are/have failed.
I’m a medical mystery. Why should I be surprised? Some of the medical news is good. But overshadowing basic improvement are a long list of unanswered questions. I’ve never had more blood drawn in my life!
Ongoing struggles recovering from my second stem cell transplant in six months make it easy to write compelling posts. But enough already! I was admitted to our local Baptist hospital last night after an emergency room visit that revealed I had pneumonia that was getting worse by the hour.