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Dr Hari black and white

News, Research, Transplants

Dr. Hari discusses ASH, Total Therapy and allo transplants

Posted on December 18 2014 | 283 views

I often labe myeloma related broadcasts as “must listen.”  Last night’s Cure Talks Myeloma Panel discussion with myeloma specialist,  Dr.Parameswaran  Hari, was a “must listen squared!  I didn’t mean to dominate the discussion, but following a brief review of ASH related data, Dr. Hari spent over a half hour answering my questions about Total Therapy and allogeneic transplants.  Please take the time to listen to this one!

Comments (4)

Michael Young and Restless

About Pat, Caregivers, Research

When it comes to myeloma, reality is stranger than fiction

Posted on December 17 2014 | 264 views

I admit it; I watch the daytime soap opera, Young and the Restless.  Actually I don’t “watch it.”  I rarely sit still long enough to watch anything.  But I record the episodes and play them back when I’m doing dishes or folding laundry.  That’s right; with Pattie working full time, call me “Mr. Mom.”

Comments (2)

San Fran Docs

Inspirational, News, Research

ASH questions answered on-air Wednesday

Posted on December 16 2014 | 273 views

Don’t miss this month’s Cure Talks broadcast Wednesday afternoon, featuring young, up-and-coming myeloma specialist, Dr. Paramaswaran Hari.

Comments (1)

CrowdCare Logo

Caregivers, Inspirational, News, Research

CrowdCare Foundation working hard to help us NOW!

Posted on December 15 2014 | 297 views

I hinted about how many amazing topics I have to write about following the American Society of Hematology (ASH) annual meetings last week.  I’m hopeful about research initiatives I heard; my spirits buoyed by seeing so many old friends and supporters–and I plan to write about it all.

Comments (6)

A new twist using T cells to fight multiple myeloma

News, Research

A new twist using T cells to fight multiple myeloma

Posted on December 14 2014 | 412 views

Here’s exciting news about a completely different type of immunotherapy: individually modified T Cells.

Comments (5)

Nick Van Dyk’s stem cell transplant primer

Transplants

Nick Van Dyk’s stem cell transplant primer

Posted on December 13 2014 | 416 views

The year following my stem cell transplant, I wrote a 300 page book, Stem Cell Transplants from a Patient’s Perspective.  I published a second edition this spring.  It’s full of tips and interviews with other transplant patients.

Comments (7)

photo-4

About Pat, Inspirational, News, Research

14 hour days still leave time for fun!

Posted on December 12 2014 | 395 views

I attended ASH, courtesy of my new friends at Myeloma Crowd Foundation.  I spent a lot of time with the fun,–sometimes crazy and never dull–Gary Peterson.  Gary and I volunteered to join a new Patient Advisory Board, designed to help Myeloma Crowd identify the best of the best myeloma clinical trials, and then to work closely with the newly formed Scientific Board to help move things forward and get them funded.

Comments (6)

New myeloma drug looks promising

News, Research

New myeloma drug looks promising

Posted on December 11 2014 | 393 views

I  wrote about an experimental drug, BT-062, after last year’s ASH. The drug still seems to be flying below the radar. I’m going to find out why; numbers look really good!

Comments (2)

Brave, wounded soldiers: myeloma therapy can really beat us up!

About Pat, Inspirational, Side effects, Supplements/Drugs

Brave, wounded soldiers: myeloma therapy can really beat us up!

Posted on December 10 2014 | 508 views

I’m going to be continuing my series with tips to help deal with chemotherapy side effects when the dust clears after ASH.  But speaking with a number of myeloma survivors in San Francisco got me thinking.  What is the cumulative effect of myeloma therapy on our bodies?

Comments (10)

noopur-raje-328

About Pat, News, Research

Dr. Noopur Raje reviews immunotherapy data from ASH

Posted on December 09 2014 | 556 views

I had the good fortune of dining with Dr. Noopur Raje last evening here in San Francisco.  We discussed several of the studies she reviews in this CancerNetwork.com article:

Comments (2)

Hopeful immunotherapy update from ASH

News, Research

Hopeful immunotherapy update from ASH

Posted on December 08 2014 | 461 views

As promised, here’s an update on the two hottest immunotherapies at ASH this year: daratumumab and SAR650984.

Comments (4)

Copycat myeloma therapies no joke

News, Research, Side effects

Copycat myeloma therapies no joke

Posted on December 08 2014 | 457 views

“Copycat therapies?”  That may be a bit harsh.  I’m referring to a seemingly endless stream of drugs under development from the same class.

Comments (2)

Busy Sunday at ASH

About Pat, News, Research

Busy Sunday at ASH

Posted on December 07 2014 | 409 views

It’s the holiday season. One of the things I look forward to most in December? Spending time at ASH.

Comments (4)

ASH 2014: Exciting myeloma combo drug ready for Stage 2

About Pat, News, Research

ASH 2014: Exciting myeloma combo drug ready for Stage 2

Posted on December 06 2014 | 531 views

ASH news is flying around the internet!  Most is anticipatory; early teasers of technical presentations still to come.  Most myeloma related news here pops Sunday and Monday.  That’s why I didn’t arrive until today.

Comments (2)

Dannys graph

Inspirational, News, Nutrition, Side effects, Tips

Danny Parker: Thoughts from the Edge of Relapse (Part Two)

Posted on December 05 2014 | 675 views

Two weeks ago I ran part one of Danny Parker’s column, Thoughts from the Edge of Relapse.  I was waiting for Danny pass along his latest test results.  Did RVD (Revlimid/Velcade/dexamethasone) do the trick?  Was it able to vanquish his wakening multiple myeloma before it picks up a head of steam?

Comments (9)

Pattie on the beach

About Pat, News

We made the cover!

Posted on December 03 2014 | 586 views

Our local newspaper featured an article about Pattie and me today.  Apparently one of the reporters read a story about me in a radiology newsletter and decided to follow up.  Here’s the first half of the article:

Comments (5)

Dr Berenson

News, Research, Transplants

Myeloma News: panobinostat, Kyprolis, oprozomib, Dr. Berenson Q/A

Posted on December 02 2014 | 567 views

Here we go!  Holiday is past and one week to ASH.  First, looks like Novartis managed to buy more time to try and save FDA ponobinostat approval:

Comments (0)

MMRF previews myeloma research

News, Research

MMRF previews myeloma research

Posted on December 01 2014 | 557 views

The American Society of Hematology(ASH) annual meeting starts Friday in San Francisco.  I’m flying out early Saturday morning.  Multiple Myeloma Research Foundation (MMRF) spokesperson, Anne Quinn Young, did a nice job previewing the event in the group’s newsletter.  Here’s an excerpt:

Comments (3)

Managing chemotherapy side effects (Part Four)

About Pat, Nutrition, Research, Side effects, Support, Tips, Transplants

Managing chemotherapy side effects (Part Four)

Posted on November 30 2014 | 472 views

Yesterday I promised to address the two most powerful weapons a myeloma patient have in his or her cognitive arsenals: counseling and psycho-therapeutic drugs.

Comments (4)

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