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Caregivers, Side effects, Transplants

Hope for a cure: Tom’s allo transplant journey (Part Sixteen)

Posted on April 23 2014 | 182 views

Hearing from Jim Bond got me thinking about Tom from Ohio, our adopted allogeneic stem cell transplant recipient.  Let’s check in and see how Tom’s doing:

Comments (0)

Jim and Kathleen

Caregivers, Inspirational, Tips

22 year myeloma survivor shares longevity secrets

Posted on April 22 2014 | 457 views

It hasn’t been easy.   22 year survivor, Jim Bond, credits four stem cell transplants (two autos and a pair of allos) along with new myeloma therapies for his longevity.

Comments (5)

About Pat, Caregivers, Inspirational

“You guys are like rusty old trucks!”

Posted on April 21 2014 | 327 views

Joan is always busy taking care her husband and myeloma patient, Don, along with their rural home and garden in the Hocking Hills of Ohio .  She emails me daily, sharing frustrations about Don’s doctors, the cold, lousy weather and Don’s cantankerous demeanor.

Comments (4)


Diagnostics, Inspirational, Transplants

Patient Snapshot: Martha from Oregon

Posted on April 20 2014 | 365 views

After sharing the devastating news about my friend, Karl, yesterday, I’m happy to post the story of a newly diagnosed patient that is responding to therapy as expected: Martha from Oregon.

Comments (8)

Mourning the loss of a true myeloma hero

Inspirational, RIP, Support

Mourning the loss of a true myeloma hero

Posted on April 19 2014 | 699 views

One of my closest friends died Thursday night.  Karl Vollstedt was the most generous and positive person that I’ve ever known.

Comments (16)

More about dexamethasone

News, Side effects, Supplements/Drugs, Therapy

More about dexamethasone

Posted on April 18 2014 | 635 views

I’ve recently received a lot of constructive criticism from readers that feel my doctors should reduce my weekly dexamethasone dose–or eliminate it altogether.

Comments (28)


Diagnostics, News, Research, Side effects

Medical marijuana: media bias and politics

Posted on April 17 2014 | 333 views

Coincidentally, Medpage Today ran a story about medical marijuana yesterday.  The focus?  How the medical establishment and media often take things out of context when it comes to cannabis.

Comments (5)

Dr. Donald Abrams: “Cannabis does not cure cancer.”

News, Research, Side effects, Supplements/Drugs, Tips

Dr. Donald Abrams: “Cannabis does not cure cancer.”

Posted on April 16 2014 | 402 views

What a fascinating, enlightening conversation!  An hour long broadcast wasn’t enough time to cover Cannabis for Cancer.

Comments (5)

Dr. F 2

Diagnostics, News, Research, Therapy, Transplants

High risk multiple myeloma: Mayo Clinic expert chimes in

Posted on April 15 2014 | 635 views

How many different types of multiple myeloma are there?  Six?  Ten or twelve?  According to Dr. Rafael Fonseca, ” Every patient’s myeloma is likely different.”

Comments (4)

About Pat, Diagnostics

Medical Update: Settling in for a long, slow fight

Posted on April 14 2014 | 661 views

“How am I doing?” I’m often asked; by email, in person or on the phone.  Here’s an update.

Comments (15)

Dr. F

News, Tips

Don’t miss controversial Cure Talk broadcasts this week

Posted on April 13 2014 | 343 views

This is a very important broadcast week on Cure Talk Radio.  Monday, our Myeloma Cure Panel will discuss treating high risk multiple myeloma with Mayo Clinic expert Dr. Rafael Fonseca.  Tuesday, I host what should be a fascinating program about using marijuana for cancer patients with Dr. Donald Abrams.

Comments (0)

Hope for a cure: Tom’s allo transplant journey (Part Fifteen)

Inspirational, Transplants

Hope for a cure: Tom’s allo transplant journey (Part Fifteen)

Posted on April 12 2014 | 436 views

We haven’t heard from Tom for over a week.  Here’s his latest email update:

Comments (3)

Pat Patient Power 2

About Pat, Inspirational, Tips

Patient Power’s Andrew Schorr interviews me: Part Two

Posted on April 11 2014 | 402 views

I spent 30 minutes chatting with award winning interviewer, Andrew Schorr at ASH in New Orleans this past December.  I think he saved the best for last.

Comments (4)

Spokane prayer

Caregivers, Inspirational

The power of prayer

Posted on April 10 2014 | 402 views

Prayer.  I receive dozens of emails each week from readers kind enough to mention that they’re praying for me.  I think it helps!  Knowing I have so many friends supporting me is encouraging.

Comments (11)

Updated versions of my first two books available NOW!

About Pat, Books, News

Updated versions of my first two books available NOW!

Posted on April 09 2014 | 259 views

I’m excited to announce that my publisher has released new and improved versions of my my first two books, Living with Multiple Myeloma and  Stem Cell Transplants from a Patient’s Perspective.

Comments (3)

Dr. San Miguel

News, Research, Therapy

Smoldering myeloma treatment landscape is changing

Posted on April 08 2014 | 539 views

Watchful waiting is currently the medical standard of care for patients with smoldering myeloma.  2014 could be the year that changes.

Comments (11)

Dr R

News, Research, Transplants

T cell and vaccine immunotherapy

Posted on April 07 2014 | 635 views

Questions about the therapy Dr. Rapoport used to help Patient Snapshot allogeneic stem cell transplant survivor, Mary Jeanne, and others do so well?  Our good friend, Jenny Ahlstrom, recently interviewed him on a mPatient Myeloma Radio broadcast.

Comments (10)


Inspirational, Transplants

Patient Snapshot: Allo transplant survivor Mary Jeanne from Baltimore (Part Two)

Posted on April 06 2014 | 448 views

It turns out that Mary Jeanne was part of an enlightening clinical trial.  Allogenic transplants a thing of the past for myeloma patients?  Don’t tell all of the success stories from this study!

Comments (3)



Patient Snapshot: Allo transplant survivor Mary Jeanne from Baltimore (Part One)

Posted on April 05 2014 | 514 views

Comments (4)


Myeloma Trials

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