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Dr. Roodman

About Pat, Supplements/Drugs, Tips, Transplants

Curcumin, communication and computers

Posted on October 22 2014 | 165 views

Sometimes I suffer from techno paralysis.

Comments (0)

News, Research, Transplants

Phase 3 trial results good news for nauseous SCT patients

Posted on October 21 2014 | 280 views

Reflecting back on my autologous stem cell transplant in the summer of 2011, the experience wasn’t all that bad–except for one glaring issue: nausea.  I understand some patients experience very little nausea during the recovery process.  But for the rest of us, it’s a truly miserable experience.

Comments (3)

MARK

Caregivers, Inspirational, Transplants

Patient Snapshot Update: Mark from Ohio

Posted on October 20 2014 | 436 views

From time to time I like to do follow-ups about former Patient Snapshot subjects–especially when the news is good.   In February, 2013, I wrote about Mark, a newly diagnosed patient that was having a hard time.  Mark’s daughter, Stephanie, had emailed me for help; she was very concerned about her dad.  I was more than happy to, eventually featuring Mark in two posts:

Comments (2)

BEACH

About Pat, Inspirational

Renovation reality: Was our move worth it? (Part Two)

Posted on October 18 2014 | 529 views

Thanks for the encouraging emails and comments!  I’m stoked (OK, dexed up!) to keep on working.  I did see that some of you are having trouble downloading the extra large pictures I posted yesterday–and I have a lot more to put up today–so I’ll cut the size down on this next batch.

Comments (9)

DSCN1382

About Pat, Inspirational, Support

Renovation reality: Was our move worth it?

Posted on October 17 2014 | 509 views

Last year I surprised Pattie when I asked her where she wanted to live when I was gone.  It was a difficult topic, but she didn’t hesitate.  “Not here.” she said.  “Then let’s move now, when I can still help out.”  I responded, kick-starting an exhausting, eight month long odyssey.

Comments (5)

Pat’s medical updates

About Pat, News, Side effects

Pat’s medical updates

Posted on October 16 2014 | 536 views

Lots to share today.  I’ll start with how I’m feeling and what comes next.

Comments (2)

RESEARCH

Research

Hopeful Research updates

Posted on October 15 2014 | 432 views

The American Society of Hematology (ASH) meetings are just around the corner, so there should be a lot of myeloma related news soon.  In the meantime, here’s an update.

Comments (0)

gary’s art

Caregivers, Inspirational, Tips

Activist implores myeloma patients to seek expert advice

Posted on October 14 2014 | 730 views

A week ago, good friend and fellow patient blogger, Gary Petersen, wrote a post about an important topic:

Comments (17)

News, Research

Panobinostat could be FDA approved soon

Posted on October 13 2014 | 373 views

Looks like I called it!  A few weeks ago I inferred that panobinostat could well be the next myeloma drug to garner FDA approval:

Comments (2)

Bone Broadcast

Diagnostics, News, Research, Tips

Bone Damage in Multiple Myeloma with Dr. Amrita Krishnan

Posted on October 12 2014 | 481 views

Are you like me?  Are your bones negatively affected by multiple myeloma?  If so, Wednesday’s Myeloma Cure Panel discussion could be important.

Comments (6)

Pelican

About Pat, Caregivers, Inspirational

Oceanfront reflections of Boston

Posted on October 11 2014 | 435 views

Still don’t feel well, but I don’t care.  Our walk on the beach this morning was spectacular!

Comments (4)

BOSTON

About Pat, Side effects, Transplants

Pomalidomide working, but not without unpleasant side effects

Posted on October 10 2014 | 568 views

It’s good to be home!  My flight from Boston was a bit bumpy but on time.

Comments (5)

LLS

About Pat, Caregivers, Inspirational

Sick or not, Light the Night in Boston was spectacular!

Posted on October 09 2014 | 436 views

Every October a group of myeloma survivors and caregivers get together in Boston to help celebrate our lives–and the lives of those we lost this year.  Our reunion centers on the Leukemia and Lymphoma Society’s (LLS) Light the Night fundraiser.  The even was tonight.

Comments (4)

Dr. Barlogie

News

Dr. Barlogie retiring? Say it ain’t so!

Posted on October 08 2014 | 529 views

I heard that Dr. Bart Barlogie was retiring.  Is it true?

Comments (3)

Matt_1

Inspirational, Nutrition, Side effects, Therapy, Tips

Patient Snapshot: Matt from California

Posted on October 07 2014 | 838 views

I’ve “known” Matt for what seems to be a long time.  We have spoken by phone and exchanged emails for almost two years.  I find his story exceptionally hopeful.  Matt’s unusual type of multiple myeloma was unresponsive to therapy combinations that work for most everyone else.  Then a breakthrough!

Comments (16)

60 Minutes

News, Research, Supplements/Drugs

60 Minutes broadcast investigates high cost of blood cancer drugs

Posted on October 06 2014 | 1,060 views

I have expressed concern about the high cost of chemotherapy meds for me and my fellow multiple myeloma patients a number of times.  So last night’s 60 Minutes report about it really hit home.

Comments (26)

DON

Inspirational, News

After running a marathon in all 50 States, what’s next?

Posted on October 05 2014 | 435 views

My good friend, myeloma survivor, serial marathoner and folk hero, Don Wright, just keeps on truckin’.  Despite being hospitalized with pneumonia two weeks ago, Don was at it again this weekend in Portland.

Comments (7)

Meeting with specialists at ASH my ace-in-the-hole

About Pat, Research, Therapy, Transplants

Meeting with specialists at ASH my ace-in-the-hole

Posted on October 04 2014 | 619 views

After two weeks of feedback, one thing is clear: I’m fortunate to have a lot of therapy options left.

Comments (7)

Nick 2

About Pat, Inspirational, Side effects, Support, Tips, Transplants

Have you relapsed? Check-out Nick’s suggestions to help bounce back

Posted on October 03 2014 | 755 views

A week ago fellow blogger, Nick Van Dyk, took the time to construct a thoughtful road map for me to use in my search for the optimum late stage myeloma therapy.  I felt that his input is so important, so well done and instructive, I wanted to wait until I had time to share my thoughts about his thoughts with you.

Comments (12)

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