I experience countless emotional moments as I hear from myeloma patients and caregivers from around the country and sometimes, around the world. I wanted to share an exceptionally personal one with you here today.
It’s hard to believe that we’re only three months away from the 3rd Annual Pat’s Myeloma Beach Party. The event is a “party” in name only; there will be 15 myeloma experts on hand to address topics that last year’s attendees and readers feel are most important to them.
How much money would it take to cure multiple myeloma? 50 million? 100 million? With some off-the-charts luck, we’ll know in just over an hour. For the first time ever, I’m playing Powerball. The one time payout on the 1.5 billion dollar jackpot: 930 million dollars.
It’s official. We didn’t win the Powerball jackpot. One of our tickets did match three numbers, so I should get most of my $20 back. Turns out there were three winners, so there “only” would have been 300 million available to donate for myeloma research. It would have been fun to see what kind of difference 300 million could have made, wouldn’t it?
A lot has happened since I ran two of the final installments about the importance of controlling blood glucose by Danny Parker:
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Posted on February 25 2017 | 132 views
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Posted on January 24 2017 | 408 views
We are officially 40 days from the 2017 Pat’s Myeloma Survival School in Fernandina Beach, FL! Time is going so fast as preparations continue for the event. We are now close to the cut off dates to take advantage of the Group Rates. The rates that have been negotiated are at a huge discount from normal market rates. If you have not reserved your room yet, please do so ASAP!
Posted on January 18 2017 | 361 views
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Posted on December 05 2016 | 2,463 views
Posted on March 26 2016 | 1,671 views
We will all be meeting in Fernandina Beach, FL next Friday already! The excitement continues to grow as we continue to get everything in place.
Posted on March 22 2016 | 1,557 views
Can you believe it? In 10 days, we will all be gathering for the 2016 Pat’s Myeloma Survival School in Fernandina Beach, FL. We are so excited to see everyone and share great information for both patients and caregivers from our amazing speakers. We are looking forward to spending time with all of our friends, old and new and remembering all the fun we have while we are there! Also, a part of the weekend is our fun 5K Beach Walk and a Silent Auction with unique items from all different geographical areas. Registration is only $60/person and includes access to all speakers and activities, 4 meals and a swag bag. If you have not registered yet and want to join us for this unforgettable weekend, you can still register here:
Posted on March 09 2016 | 2,027 views
Posted on February 25 2016 | 3,075 views
Pat’s Beach Party Memorial is now Pat’s Myeloma Survival School, and before he so tragically left us, he put together an outstanding program for the newly diagnosed and long term myeloma survivor. As only Pat could do, he has lined up some of the best and most knowledgeable myeloma doctors and patient advocates to present the World of Myeloma According to Pat.
Posted on February 22 2016 | 3,143 views
Posted on February 12 2016 | 7,241 views
Posted on February 08 2016 | 12,459 views
The commonly used name here for plasmapheresis is plasma exchange. I”m being hooked up for my third, three hour round of plasma exchange. Honestly, I’m in pretty bad shape.
Posted on February 06 2016 | 4,508 views
Plasmapheresis and dialysis on the same day? My body is buzzing; literally buzzing. But it all seems to be working.
Posted on February 06 2016 | 4,838 views
As difficult as my myeloma journey has become, the one silver lining has always been my excellent kidneys; no worries on that front. That all changed today. I learned today that my kidneys are/have failed.
Posted on February 05 2016 | 3,397 views
I’m a medical mystery. Why should I be surprised? Some of the medical news is good. But overshadowing basic improvement are a long list of unanswered questions. I’ve never had more blood drawn in my life!