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Things seem to be looking up!

About Pat, Inspirational

Things seem to be looking up!

Posted on October 25 2014 | 143 views

When my email went down earlier this week, I was surprised how much I enjoyed the break.  So when Pattie’s family came to visit this weekend, I decided to try it again: I didn’t check email or access the internet for 24 hours.  The downside?  It all doesn’t magically go away!

Comments (2)

News, Research

10 million dollar hint: Daratumumab is a winner!

Posted on October 24 2014 | 339 views

Like a “tell” in poker, sometimes financial news reveals what pharmaceutical companies are reluctant (or prohibited) to report.  I don’t want to read too much into  it, but considering all of the good things I’ve heard about daratumumab, this smells like very good news:

Comments (1)

ERIC Hansen

Caregivers, Inspirational, Tips

Many myeloma patients face geographic challenges

Posted on October 23 2014 | 367 views

It never ceases to amaze me how far afield some of our readers are here at MMB.  New Zealand, Australia, Europe–even Africa.

Comments (5)

Dr. Roodman

About Pat, Supplements/Drugs, Tips, Transplants

Curcumin, communication and computers

Posted on October 22 2014 | 380 views

Sometimes I suffer from techno paralysis.

Comments (8)

News, Research, Transplants

Phase 3 trial results good news for nauseous SCT patients

Posted on October 21 2014 | 346 views

Reflecting back on my autologous stem cell transplant in the summer of 2011, the experience wasn’t all that bad–except for one glaring issue: nausea.  I understand some patients experience very little nausea during the recovery process.  But for the rest of us, it’s a truly miserable experience.

Comments (4)


Caregivers, Inspirational, Transplants

Patient Snapshot Update: Mark from Ohio

Posted on October 20 2014 | 478 views

From time to time I like to do follow-ups about former Patient Snapshot subjects–especially when the news is good.   In February, 2013, I wrote about Mark, a newly diagnosed patient that was having a hard time.  Mark’s daughter, Stephanie, had emailed me for help; she was very concerned about her dad.  I was more than happy to, eventually featuring Mark in two posts:

Comments (2)


About Pat, Inspirational

Renovation reality: Was our move worth it? (Part Two)

Posted on October 18 2014 | 554 views

Thanks for the encouraging emails and comments!  I’m stoked (OK, dexed up!) to keep on working.  I did see that some of you are having trouble downloading the extra large pictures I posted yesterday–and I have a lot more to put up today–so I’ll cut the size down on this next batch.

Comments (9)


About Pat, Inspirational, Support

Renovation reality: Was our move worth it?

Posted on October 17 2014 | 529 views

Last year I surprised Pattie when I asked her where she wanted to live when I was gone.  It was a difficult topic, but she didn’t hesitate.  “Not here.” she said.  “Then let’s move now, when I can still help out.”  I responded, kick-starting an exhausting, eight month long odyssey.

Comments (5)

Pat’s medical updates

About Pat, News, Side effects

Pat’s medical updates

Posted on October 16 2014 | 603 views

Lots to share today.  I’ll start with how I’m feeling and what comes next.

Comments (2)



Hopeful Research updates

Posted on October 15 2014 | 456 views

The American Society of Hematology (ASH) meetings are just around the corner, so there should be a lot of myeloma related news soon.  In the meantime, here’s an update.

Comments (0)

gary’s art

Caregivers, Inspirational, Tips

Activist implores myeloma patients to seek expert advice

Posted on October 14 2014 | 760 views

A week ago, good friend and fellow patient blogger, Gary Petersen, wrote a post about an important topic:

Comments (17)

News, Research

Panobinostat could be FDA approved soon

Posted on October 13 2014 | 386 views

Looks like I called it!  A few weeks ago I inferred that panobinostat could well be the next myeloma drug to garner FDA approval:

Comments (2)

Bone Broadcast

Diagnostics, News, Research, Tips

Bone Damage in Multiple Myeloma with Dr. Amrita Krishnan

Posted on October 12 2014 | 518 views

Are you like me?  Are your bones negatively affected by multiple myeloma?  If so, Wednesday’s Myeloma Cure Panel discussion could be important.

Comments (6)


About Pat, Caregivers, Inspirational

Oceanfront reflections of Boston

Posted on October 11 2014 | 445 views

Still don’t feel well, but I don’t care.  Our walk on the beach this morning was spectacular!

Comments (4)


About Pat, Side effects, Transplants

Pomalidomide working, but not without unpleasant side effects

Posted on October 10 2014 | 582 views

It’s good to be home!  My flight from Boston was a bit bumpy but on time.

Comments (5)


About Pat, Caregivers, Inspirational

Sick or not, Light the Night in Boston was spectacular!

Posted on October 09 2014 | 451 views

Every October a group of myeloma survivors and caregivers get together in Boston to help celebrate our lives–and the lives of those we lost this year.  Our reunion centers on the Leukemia and Lymphoma Society’s (LLS) Light the Night fundraiser.  The even was tonight.

Comments (4)

Dr. Barlogie


Dr. Barlogie retiring? Say it ain’t so!

Posted on October 08 2014 | 542 views

I heard that Dr. Bart Barlogie was retiring.  Is it true?

Comments (3)


Inspirational, Nutrition, Side effects, Therapy, Tips

Patient Snapshot: Matt from California

Posted on October 07 2014 | 860 views

I’ve “known” Matt for what seems to be a long time.  We have spoken by phone and exchanged emails for almost two years.  I find his story exceptionally hopeful.  Matt’s unusual type of multiple myeloma was unresponsive to therapy combinations that work for most everyone else.  Then a breakthrough!

Comments (16)

60 Minutes

News, Research, Supplements/Drugs

60 Minutes broadcast investigates high cost of blood cancer drugs

Posted on October 06 2014 | 1,083 views

I have expressed concern about the high cost of chemotherapy meds for me and my fellow multiple myeloma patients a number of times.  So last night’s 60 Minutes report about it really hit home.

Comments (26)


Myeloma Trials

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