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Eight columns about exercise? Lifestyle columnist, Danny Parker, must feel pretty strongly about it’s value. I’m with you, Danny! I can’t count the times that I have felt poorly following chemotherapy and exercising has helped me feel better and think more clearly:
Thursday I ran the first of a three part series about three important cancer research initiatives that the MMRF announced last week.
Is it more difficult for multiple myeloma patients to qualify for Social Security Disability (SSDI) these days?
IMF Medical Director, Dr. Brian Durie, has written a pair of posts about this year’s ASH. Here are the 8 new therapy agents that Dr. Durie will be watching:
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Posted on December 09 2013 | 66 views
Covering technical, four hour events like Friday’s pre-ASH symposium can be challenging; even grueling. My peripheral neuropathy and back pain makes it hard to sit still and type on the fly. And this year I’m trying to tweet simultaneously while blogging.
Posted on December 08 2013 | 234 views
I shared a cab on the way from the Convention Center to an evening dinner meeting last in the French Quarter yesterday. The large gentleman with an Aussie accent sitting next to me, introduced himself as Steve Roach, CEO of MY Foundation, the Australian branch of the IMF.
Posted on December 07 2013 | 316 views
Yesterday I wrote about the first half of the pre-ASH symposium, Critical Issues Need Answers: Providing Best Options for Myeloma Treatment in 2013.
Posted on December 07 2013 | 191 views
After listening to a number of the world’s top myeloma experts plead for better, more exacting diagnostics–and more definitive answers as to which patients should be treated with what drugs–news like this should be welcome indeed!
Posted on December 06 2013 | 330 views
Today I covered an intriguing and worthwhile four hour event on behalf of the IMF: Critical Issues Need Answers: Providing Best Options for Myeloma Treatment in 2013.
Posted on December 06 2013 | 195 views
IMF , emailed me this heartfelt plea for help yesterday. American patients that are using or have used pomalidomide (Pomalyst) can help speed Canadian approval of the new drug by completing a short survey.
Posted on December 05 2013 | 315 views
I had my next two Myeloma Beacon columns all planned, centered on the more emotional, patient perspective side of ASH. But when I submitted my monthly column draft Tuesday, I was told the Beacon had more than enough ASH related content. So important “patient perspective” or not, I needed to go in a different direction. I was disappointed until I realized that the Myeloma Beacon’s loss was our gain; I was now free to run that content at MMB.
Posted on December 04 2013 | 349 views
I saved this important plea for participation in a new clinical trial, designed to help patients with peripheral neuropathy (PN) that are, or will be, using Velcade.
Posted on December 03 2013 | 522 views
I figured yesterday’s post might stir up some controversy. But I would like to set the record straight about one thing: questions about the pharmaceutical industry’s motivation (or lack thereof) to cure multiple myeloma.
Posted on December 02 2013 | 434 views
Ever feel like you are a slave to big pharma? That drug companies exploit our cancer to help fill corporate coffers? I’m not necessarily a proponent of this type of thinking, but I see how big dollars both serve and corrupt the process; sort of a double edged sword.
Posted on December 01 2013 | 328 views
Posted on November 30 2013 | 359 views
Four weeks on and two weeks off. That’s my perpetual chemotherapy schedule. It’s a good thing that last week was one of my “off weeks.” I just returned from a grueling swing through the upper Midwest.
Posted on November 29 2013 | 481 views
Most of us should be able to agree that nutrition plays some role in cancer prevention and/or a patient’s quality of life. Can the right diet cure cancer? Probably not. Slow it down? Possibly.
Posted on November 28 2013 | 402 views
I know Thanksgiving is primarily an American, secular holiday. Honestly, that is one of the things I like best about the day. Everyone can celebrate Thanksgiving–no matter what their religion or political views.
Posted on November 27 2013 | 355 views
Have you all gotten your flu shot? If only it were that simple!
Posted on November 26 2013 | 400 views
So many of us in the myeloma community are forced to live with chronic pain. Collapsed and missing vertebrae, damaged ribs, an ailing left hip and painful nighttime cramping top my list.
Posted on November 25 2013 | 221 views
Our monthly on-air multiple myeloma support group broadcast is this evening at 6 PM Eastern time. Oncology nurse, Ann McNeill, will be our special guest. Ann will be sharing tips to help us understand our lab reports and results.
Posted on November 25 2013 | 345 views
I received this email from last week from Sue Enright with the International Myeloma Foundation (IMF), alerting me to an important broadcast replay for multiple myeloma patients and caregivers:
Posted on November 24 2013 | 342 views
I cut things off yesterday just when Cynthia, a smoldering multiple myeloma patient, was about to tell us about her broken foot:
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