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About Pat, Caregivers, Inspirational, RIP

Lessons learned from one of my first myeloma heroes

Posted on August 31 2014 | 270 views

What a nice surprise!  Last night I received an email from an old friend, Joan Liedl.  Joan was wife and caregiver to a good friend of mine, Loren, who passed away back in January of 2010.

Comments (2)

LSU

About Pat, Caregivers, Inspirational

Just another day? Not today!

Posted on August 30 2014 | 302 views

Talk about an up-and-down day!  Today is our 27th anniversary.  It also kicks off the 2014 college football season, something that both Pattie and I are passionate about.

Comments (5)

Jenny and husband

Inspirational, News, Research

Yes we can! Myeloma patients can help find a cure!

Posted on August 29 2014 | 485 views

Yesterday was a game changer for me.   A reassuring visit from my guardian angel, then an exciting and energizing hour long, on-air conversation with myeloma patient and activist, Jenny Ahlstrom.

Comments (3)

About Pat, Support

An angel on my shoulder

Posted on August 28 2014 | 547 views

I’m sure everyone is familiar with this old saying.  I could argue that all of you–so many loyal and caring readers–are my “angels.”  But today I experienced something mysterious and spiritual during radiation therapy.

Comments (12)

Kyprolis

News, Research, Side effects

RESEARCH UPDATE: Kyrpolis and Total Therapy 3

Posted on August 27 2014 | 468 views

I have written a number of times about counter-intuitive research results involving progression free survival (PFS) and overall survival (OS).  Here’s another key example.

Comments (4)

DSCN0105

About Pat, Caregivers, Inspirational, Transplants

MYELOMA FLASHBACK: Recovering from my SCT

Posted on August 26 2014 | 429 views

What was I doing three years ago?  Recovering from an autologous (using my own cells) stem cell transplant at Moffitt Cancer Center.  Has it really been three years?

Comments (4)

Finnegan

About Pat, Therapy

Have you experienced side effects from radiation therapy?

Posted on August 25 2014 | 429 views

I started radiation therapy today.  It took longer than session’s I’ve experienced in the past; something to do with getting the monster machine rotated from one hip to the other.

Comments (6)

photo-1

Inspirational

Proof multiple myeloma docs have personal lives, too

Posted on August 24 2014 | 688 views

Dr. Bart Barlogie is a myeloma legend.  Love him or hate him, his unbridled obsession for finding a multiple myeloma cure has been relentless.

Comments (5)

Cure Talk

News, Research, Tips, Transplants

Myeloma featured on Cure Talk broadcasts

Posted on August 23 2014 | 423 views

Wednesday our Cure Talk panel was fortunate to spend over an hour with Emory University’s Dr. Sagar Lonial, a well known myeloma specialist.  The focus was on ways to treat high risk multiple myeloma patients most effectively.

Comments (0)

Pool construction 034

About Pat, Inspirational, Tips

Marking time by my pillbox

Posted on August 22 2014 | 527 views

I may have written before about how much I love my new, four row pillbox.  Room for the dozen of pills and capsules that I take morning, noon and before my evening meal.

Comments (8)

Jenny Hack

Inspirational, News, Support

Enthusiastic reader shines as myeloma activist

Posted on August 21 2014 | 664 views

Floridian Jenny Hack is a regular reader and member of the Jacksonville Multiple Myeloma support group.  I met her a number of years ago, and was happy to see her again at the meeting last week.  Jenny has become a focused and dedicated activist, working hard to help get oral chemotherapy meds paid for like IV chemotherapy drugs are, not as part of  more expensive drug plans.

Comments (10)

According to ASCO, a neutropenic fever is a very dangerous thing

About Pat, News, Side effects, Tips

According to ASCO, a neutropenic fever is a very dangerous thing

Posted on August 20 2014 | 538 views

It is so sad to hear that Arnie has passed away.  We met him briefly at your beach party, and I am sorry now that I didn’t take the time to visit longer.  I think back when I was first diagnosed, and I became somewhat familiar with the regulars who posted here almost five years ago now.  I wonder how man of those voices are silent now…

Comments (0)

Patient Snapshot Update: Chuck from Georgia

Inspirational, News, Tips, Transplants

Patient Snapshot Update: Chuck from Georgia

Posted on August 19 2014 | 449 views

The promise of becoming part of exciting, new clinical trials can be intoxicating.  But most only work for less than half of the patients that sign up.

Comments (1)

OncoPep

News, Research

Immunotherapy clinical trial for smoldering myeloma looking for patients

Posted on August 18 2014 | 601 views

I’m feeling much better.  Time to focus on something other than me!

Comments (6)

fernandina beach

About Pat, Side effects, Tips

MEDICAL UPDATE: News is mixed

Posted on August 17 2014 | 882 views

Thanks for all of your thoughtful comments and emails!

Comments (17)

About Pat

I’m sick…

Posted on August 16 2014 | 763 views

Never a dull moment.  I woke up last night with a 101 degree fever.  It’s my fault; I pushed too hard this week.

Comments (29)

Dr. Lawenda

Research, Supplements/Drugs, Tips

IP6 follow-up

Posted on August 15 2014 | 455 views

A few days ago I wrote a skeptical post about a supplement called IP6.  I have received a number of comments and emails supporting the use of IP6 since then.  I’m good with that.  It may or may not help slow the advance of multiple myeloma.

Comments (0)

Have multiple myeloma and need help?  Visit a support group!

About Pat, Caregivers, Inspirational, Support, Transplants

Have multiple myeloma and need help? Visit a support group!

Posted on August 14 2014 | 458 views

I was fortunate to be a guest at the multiple myeloma support group that meets monthly at Mayo Clinic in Jacksonville last evening.  But it wasn’t my first visit.  Five years ago I drove across Florida to speak to the group and promote my first book, Living with Multiple Myeloma.

Comments (2)

Research, Supplements/Drugs

Is immunosupplement, IP6, the real deal?

Posted on August 13 2014 | 926 views

Anyone familiar with a supplement called IP6?  A reader, Richard, swears it has stopped his myeloma in its tracks when other more conventional meds weren’t helping at all.

Comments (9)

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