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There should be a therapy road map for late stage myeloma patients

About Pat, Caregivers, Research, Therapy, Transplants

There should be a therapy road map for late stage myeloma patients

Posted on January 30 2015 | 296 views

I’ve written a number of times about the importance of developing a comprehensive myeloma therapy plan.  Truth is, very few physicians subscribe to this type of thinking.  “Let’s see what happens first.” That’s the mantra.

Comments (2)

News, Research

Has European innovation developed a new myeloma pathway?

Posted on January 29 2015 | 263 views

Researchers are feverishly searching for alternate ways to attack multiple myeloma.  Sometimes referred to as “pathways,” I think of it in simple terms: anything that works differently than  an IMiD, proteasome inhibitor or alkylating agent.

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Important info for myeloma patients and caregivers

Caregivers, News, Research, Side effects, Support, Tips

Important info for myeloma patients and caregivers

Posted on January 28 2015 | 287 views

I’ve been accumulating a wide variety of helpful information since the start of the start of the new year.  Not enough to post about one by one, but I didn’t want that to stop me from passing them along.

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Inspirational

Don’t let worry ruin your good days

Posted on January 27 2015 | 362 views

I received a number of insightful emails in response to last Thursday’s post, The emotional side of multiple myeloma can be devastating.

Comments (3)

News, Therapy

High cost of chemotherapy shouldn’t keep our doctors from trying

Posted on January 26 2015 | 395 views

Any news clip, article or column about multiple myeloma that appears in the mainstream media always gets my attention.  Myeloma survivor, Bob Tufts, makes some thoughtful points on his blog post last week in the Huffington Post.  Here’s a pair of excerpts:

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Hope for a cure: Tom’s allo transplant journey (Part Twenty Six)

Caregivers, Inspirational, Transplants

Hope for a cure: Tom’s allo transplant journey (Part Twenty Six)

Posted on January 25 2015 | 390 views

I’m pleased to report that our old friend, Tom from Ohio, is up and getting around just fine.  Can you believe its been a year since his transplant?

Comments (2)

This year’s Patient Power interview: Raising your myeloma IQ

About Pat, Inspirational

This year’s Patient Power interview: Raising your myeloma IQ

Posted on January 24 2015 | 386 views

Cancer survivor and Patient Power moderator, Carol Preston, interviewed me last month at ASH in San Francisco about the importance of patient education:

Comments (3)

In tough times, myeloma patients surrounded by heroes

About Pat, Caregivers, Inspirational, RIP

In tough times, myeloma patients surrounded by heroes

Posted on January 23 2015 | 362 views

I’m disillusioned this morning.  Waking up to our favorite am news show, CBS This Morning, I was bombarded by stories about corrupt politicians and others that only seem to care about themselves.  I know all too well that none of us are perfect.  But here’s a radical thought: Why can’t people just be nice?

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About Pat, Caregivers, Inspirational, Side effects, Tips, Transplants

The emotional side of multiple myeloma can be devastating

Posted on January 22 2015 | 869 views

As I mentioned in yesterday’s post, I wanted to take the time to address this email individually.  Karen (caregiver) wrote me about her newly diagnosed husband, Peter.  Although unfortunate, Peter’s part of the story is relatively unremarkable.  It was Karen’s cry for help as a caregiver that touched me.

Comments (13)

About Pat, Diagnostics, News, Support

Reader emails always enlightening

Posted on January 21 2015 | 377 views

I receive a half dozen emails about a topic for every one comment you see after I publish a blog post.  I enjoy getting emails from readers.  Often they’re uplifting, helping me power through another day.  And I get some of my best post ideas from them. Here are several examples:

Comments (0)

Dr. Perkins

About Pat, Therapy

Radiation therapy? I’m pulling the plug…

Posted on January 20 2015 | 546 views

More financial complications.  Wait until you hear this twisted tale.

Comments (9)

Update: ARRY-520

Research, Side effects, Supplements/Drugs, Therapy

Update: ARRY-520

Posted on January 19 2015 | 417 views

At the American Society of Hematology (ASH) meetings in San Francisco last December, I had a chance to sit down with Selena Rush, Director of Clinical Operations at Array Biopharma.  Array manufactures the promising new myeloma therapy, ARRY-520 (filanesib).

Comments (3)

IMG_7287

Inspirational, Transplants

Patient Snapshot: David from Florida (Part Seven)

Posted on January 17 2015 | 409 views

I heard from David Friday.  He continues to do better than expected.  I asked him to pass along some updated pictures:

Comments (0)

Register for Pat’s Myeloma Beach Party NOW!

About Pat, Caregivers, Inspirational, News

Register for Pat’s Myeloma Beach Party NOW!

Posted on January 16 2015 | 1,065 views

Your Christmas decorations are packed away, New Year’s Eve hangovers are gone.  Nine weeks and counting; time to focus the event of the year: Pat’s Myeloma Beach Party!

Comments (3)

About Pat, News, Therapy

It’s a four-peat! Add topical chemo to my therapy list

Posted on January 15 2015 | 614 views

I thought I had been through it all; oral chemo (Revlimid and pomalidomide), infusion chemo (high dose melphalan and Velcade IV) and most recently, Velcade via sub-q injection.  Three different ways to administer chemo.  Who knew there was a fourth?

Comments (9)

CDF logo

News, Tips

Good Days from CDF Helps Myeloma Patients in Need

Posted on January 14 2015 | 513 views

Great news!  Funding to help multiple myeloma patients is still available through the Chronic Disease Fund (CDF).  There may have been some confusion among readers because the group has changed its name.

Comments (2)

New Durie shot

Research, Therapy

Selinexor shows promise; fewer side effects than existing therapies

Posted on January 13 2015 | 555 views

A reader emailed me yesterday with questions about a clinical study featuring the experimental drug, selinexor (KPT-330).  A year ago, The International Myeloma Foundation’s (IMF) Medical Director, Dr. Brian Durie, shared his excitement about eight different new myeloma therapies prior to ASH 2013.  Selinexor,  an oral drug from Karyopharm, was one of them:

Comments (0)

DSCN1443

About Pat, Caregivers, Inspirational, Side effects

Priceless memories help keep me fighting

Posted on January 12 2015 | 516 views

Pattie and I had a busy year’s end.  As I shared before, we traveled back to Tampa twice to watch football: the first time to see Green Bay play the Tampa Bay Bucs, and ten days later for the Wisconsin Badgers vs Auburn Tigers bowl game on New Year’s Day.  I promised some pictures.  In honor of Green Bay’s improbable, come-from-behind playoff victory against the Dallas Cowboys Sunday, today is the day.

Comments (2)

Transplants

Patient Snapshot: David from Florida (Part Six)

Posted on January 11 2015 | 386 views

From inpatient to outpatient in a short seventeen days!  Way to go, David!  It took me sixteen days to check-in for outpatient care following my auto at Moffitt.  This next installment of David’s story will bring us up to date as he continues to grow stronger and recover:

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