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Dr. Shain

Inspirational, News, Support, Tips

MMRF Educational event answers important questions

Posted on October 30 2014 | 210 views

Last week I spoke to a group of over 100 patients and caregivers in Tampa.  But my “patient perspective” was an afterthought.  The main event featured a number of well known myeloma experts.  Having attended a number of events like this, I didn’t expect to hear much that was new.  I was wrong!

Comments (0)

Great news from Mayo Clinic!

About Pat, Diagnostics, Inspirational, News, Side effects, Tips

Great news from Mayo Clinic!

Posted on October 29 2014 | 494 views

I met with my Mayo Clinic myeloma specialist, Dr. Roy, Monday.  Great news all the way around!

Comments (22)

DR LI

Nutrition, Tips

Researcher argues diet can help slow myeloma

Posted on October 28 2014 | 587 views

A new reader, Hailey, from Washington, DC, sent me a link to this fascinating video about using nutrition to help defeat cancer.  Recorded in 2010, the advice presented by researcher, Dr. William Li, is timeless.  Give it a look; success by patients with multiple myeloma are featured in the presentation:

Comments (4)

AMELIA 3

About Pat, News

2015 Myeloma Beach Party dates set

Posted on October 27 2014 | 394 views

Last year’s Myeloma Beach Party was a blast!  An amazing afternoon and evening spent together on the waterfront in Tampa.  This year we’ve decided to take things to the next level; an entire weekend of activities March 20th – 22nd at Fernandina Beach on Amelia Island near Jacksonville.

Comments (8)

Songs-For-Life-Google- -Profile-Photo-250×250

Inspirational, News

Innovative multiple myeloma music fundraiser

Posted on October 26 2014 | 261 views

As I reported last month, I’ve been working with myeloma activist, Jenny Ahlstrom, to help develop a revolutionary way to fund–and help speed forward–cutting edge clinical trials.  Jenny has multiple myeloma, but is doing exceptionally well.  She’s not letting her diagnosis slow her down.  Even while preparing for a busy week in San Francisco at ASH, Jenny has found time to help start an innovative fund raiser; the woman is always working on a half dozen projects at once.

Comments (0)

Things seem to be looking up!

About Pat, Inspirational

Things seem to be looking up!

Posted on October 25 2014 | 565 views

When my email went down earlier this week, I was surprised how much I enjoyed the break.  So when Pattie’s family came to visit this weekend, I decided to try it again: I didn’t check email or access the internet for 24 hours.  The downside?  It all doesn’t magically go away!

Comments (13)

News, Research

10 million dollar hint: Daratumumab is a winner!

Posted on October 24 2014 | 444 views

Like a “tell” in poker, sometimes financial news reveals what pharmaceutical companies are reluctant (or prohibited) to report.  I don’t want to read too much into  it, but considering all of the good things I’ve heard about daratumumab, this smells like very good news:

Comments (2)

ERIC Hansen

Caregivers, Inspirational, Tips

Many myeloma patients face geographic challenges

Posted on October 23 2014 | 432 views

It never ceases to amaze me how far afield some of our readers are here at MMB.  New Zealand, Australia, Europe–even Africa.

Comments (5)

Dr. Roodman

About Pat, Supplements/Drugs, Tips, Transplants

Curcumin, communication and computers

Posted on October 22 2014 | 458 views

Sometimes I suffer from techno paralysis.

Comments (9)

News, Research, Transplants

Phase 3 trial results good news for nauseous SCT patients

Posted on October 21 2014 | 381 views

Reflecting back on my autologous stem cell transplant in the summer of 2011, the experience wasn’t all that bad–except for one glaring issue: nausea.  I understand some patients experience very little nausea during the recovery process.  But for the rest of us, it’s a truly miserable experience.

Comments (5)

MARK

Caregivers, Inspirational, Transplants

Patient Snapshot Update: Mark from Ohio

Posted on October 20 2014 | 516 views

From time to time I like to do follow-ups about former Patient Snapshot subjects–especially when the news is good.   In February, 2013, I wrote about Mark, a newly diagnosed patient that was having a hard time.  Mark’s daughter, Stephanie, had emailed me for help; she was very concerned about her dad.  I was more than happy to, eventually featuring Mark in two posts:

Comments (2)

BEACH

About Pat, Inspirational

Renovation reality: Was our move worth it? (Part Two)

Posted on October 18 2014 | 591 views

Thanks for the encouraging emails and comments!  I’m stoked (OK, dexed up!) to keep on working.  I did see that some of you are having trouble downloading the extra large pictures I posted yesterday–and I have a lot more to put up today–so I’ll cut the size down on this next batch.

Comments (9)

DSCN1382

About Pat, Inspirational, Support

Renovation reality: Was our move worth it?

Posted on October 17 2014 | 568 views

Last year I surprised Pattie when I asked her where she wanted to live when I was gone.  It was a difficult topic, but she didn’t hesitate.  “Not here.” she said.  “Then let’s move now, when I can still help out.”  I responded, kick-starting an exhausting, eight month long odyssey.

Comments (5)

Pat’s medical updates

About Pat, News, Side effects

Pat’s medical updates

Posted on October 16 2014 | 682 views

Lots to share today.  I’ll start with how I’m feeling and what comes next.

Comments (2)

RESEARCH

Research

Hopeful Research updates

Posted on October 15 2014 | 482 views

The American Society of Hematology (ASH) meetings are just around the corner, so there should be a lot of myeloma related news soon.  In the meantime, here’s an update.

Comments (0)

gary’s art

Caregivers, Inspirational, Tips

Activist implores myeloma patients to seek expert advice

Posted on October 14 2014 | 786 views

A week ago, good friend and fellow patient blogger, Gary Petersen, wrote a post about an important topic:

Comments (17)

News, Research

Panobinostat could be FDA approved soon

Posted on October 13 2014 | 422 views

Looks like I called it!  A few weeks ago I inferred that panobinostat could well be the next myeloma drug to garner FDA approval:

Comments (2)

Bone Broadcast

Diagnostics, News, Research, Tips

Bone Damage in Multiple Myeloma with Dr. Amrita Krishnan

Posted on October 12 2014 | 630 views

Are you like me?  Are your bones negatively affected by multiple myeloma?  If so, Wednesday’s Myeloma Cure Panel discussion could be important.

Comments (6)

Pelican

About Pat, Caregivers, Inspirational

Oceanfront reflections of Boston

Posted on October 11 2014 | 470 views

Still don’t feel well, but I don’t care.  Our walk on the beach this morning was spectacular!

Comments (4)

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