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Monthly Archives: August 2009

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10 08, 2009

Maintenance Therapy

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Here is a link to a good New York Times article, printed July 20th of this year about the trend to extend chemotherapy in cancer patients. This trend, sometimes called maintenance therapy, is now commonly used for multiple myeloma. Controversial questions include: What is the optimum dosing schedule and when do you stop treatment? What

9 08, 2009

Why Is It Called Multiple Myeloma?

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In one of my first posts on this site, I wrote about my friend Karl Volstadt, founder of our Stillwater, Minnesota Myeloma Support Group. After listening to our members discuss their various ailments and treatments during a meeting, Karl is fond of saying "Well, as you all know, that is why they call it multiple

7 08, 2009

Perifosine Approved For Phase III Trial

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Found this article about new anti-cancer drug on http://www.myelomaforums.com/:The U.S. Food and Drug Administration has announced approval for a Phase 3 clinical trial evaluating perifosine in relapsed and refractory multiple myeloma patients. Perifosine, also known as KRX-0401, is an oral anti-cancer agent produced by Aeterna Zentaris and licensed in the U.S., Canada, and Mexico by

7 08, 2009

Mother-In-Law Update

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My wife Pattie's mother is being moved by medi-vac tomorrow to be near friends and family in Minocqua, Wisconsin. For those of you that haven't been following her situation, Pattie's mom, Marie Doyle, has been having a difficult time of late. A combination of diabetes, congestive heart failure and the associated inactivity have taken their

6 08, 2009

Race & Cancer Risk Revisited

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Several days ago I shared my admiration and excitement in meeting Elijah Alexander during the drug company meetings in Boston last month. I have always had questions and concerns about how few African Americans I would see at Mayo Clinic or in cancer support groups I have attended over the years. Here is the first

5 08, 2009

More Later

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I just posted an update about my mother-in-law's cancer on http://www.helpwithcancer.org/. I am sitting in the Atlanta International Airport as I write this on my way back to Tampa. I'm running late. Is it crazy that I don't want to pay $7.95 to use the Internet here? I will get back on track Wednesday.Until then,

4 08, 2009

Myeloma Forum Interactive Website

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The following article recently appeared on the cover page of http://www.myelomaforums.com/, an interactive Website for myeloma patients and their families: Hello! My name is Pat Killingsworth and my wife and I are both cancer survivors. Pattie has outlasted cervical, uterine and ovarian cancer. I was diagnosed with multiple myeloma in April of 2007. We have

2 08, 2009

Elijah Alexander

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I saved the largest of our new Millennium Patient Advisory Board members for last. Although battling multiple myeloma for over five years, Elijah Alexander still sports the look of a professional football player. Three years after retiring from his ten year career as a linebacker with the Denver Broncos and Oakland Raiders, Elijah was surprised

1 08, 2009

Boxes, Boxes Everywhere!

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I promised to write about Elijah Alexander and his personal battle with myeloma yesterday. Sorry! Were you waiting on pins and needles for my post? (If only that were true!) Friday was moving day for me. My wife and I purchased a home on the gulf coast of Florida several months ago. The plan (which