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Monthly Archives: November 2009

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30 11, 2009

Arkansas Rebuttal – My Thoughts

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There is no right or wrong answer here, and there certainly isn't anything wrong with attacking myeloma and being aggressive with one's therapy. Likewise, making a decision to choose a less invasive, more conservative therapy approach is OK too. The important and exciting news is that myeloma patients have therapy choices! That's great! But patients

23 11, 2009

Pattie’s Mother Died Today

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My wife Pattie's mother, Marie Doyle, died today from complications associated with her ten year battle against colon cancer. I just completed writing a long, personal post about this on my other blog, www.HelpWithCancer.Org. I hope you can read that post--I'm running out of energy tonight to say much more here. Even if it is

22 11, 2009

Secondary Combination Chemotherapy Drugs Can Help Primary Novel Therapy Drugs Work Better

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Dexamethasone has been combined with novel chemotherapy drugs like Thalomid, Velcade and Revlimid for years. But now there are a few newer drugs which are also starting to be used in combination as well. Doxil, cyclophosphamide and vorinostat are examples of this. All three are either available now, or have recently completed successful Phase III

18 11, 2009

Multiple Myeloma Genomics Initiative VS Bank On A Cure

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The Multiple Myeloma Research Foundation has just announced that their genomics initiative is the first to sequence myeloma genomes. According to the MMRF and Louise Perkins, the MMRF's chief scientific officer, “Data from this landmark project, the Multiple Myeloma Genomics Initiative, will be used to identify key therapeutic targets for myeloma and will play an

17 11, 2009

Today’s Genetic Coincidence

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I received my monthly Multiple Myeloma Research Foundation (MMRF) Newsletter in the mail today. Coincidentally, the featured front page article in the MMRF's publication is about their Genomics Initiative. How strange to get this the day after I posted an article about Bank On A Cure--a genome identification program under the talented and experienced leadership

15 11, 2009

Why Is It Called Multiple Myeloma? (Revisited)

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I wrote this post back in June about how multiple myeloma got it's name:My good friend, Karl Vollstedt, is the founder of our multiple myeloma support group in Stillwater, Minnesota. After listening to our members discuss their various ailments and treatments during a meeting, Karl is fond of saying "Well, as you all know, that

14 11, 2009

Important Advice For All Multiple Myeloma Patients!

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I hope you all read yesterday's third and final installment of Nick's myeloma story. He concludes by giving us five important things all myeloma patients should do. To summarize: Recognize that you are your own best advocate, and take ownership of your disease. Advice is great, but ultimately the choice is yours. Learn everything you

13 11, 2009

Hello Frances and Manisha!

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Multiple myeloma is a serious topic. But I do end each post with: "Feel good and keep smiling!" So I thought it would be fun to thank and acknowledge two of our regular readers. Frances drove all the way from St. Augustine, Florida to meet me and hear me speak Wednesday at the support group

13 11, 2009

Living WITHOUT Multiple Myeloma – Part Three

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Here is the third and final installment of Nick van Dyk's multiple myeloma story. He makes a number of important points which are relevant for any myeloma patient:There are a few things from my experience, though, that I think can serve just about anybody facing this diagnosis. So if I can leave you with a

12 11, 2009

Living WITHOUT Multiple Myeloma – Part Two

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Before I continue Nick's story, I wanted to share a wonderful experience I had yesterday with you. Before we moved to Florida, while I was writing my first book, I started corresponding with a gentleman named Jack Pacowta. Jack had started a multiple myeloma support group in Jacksonville, Florida. Jack was frank, open and honest

11 11, 2009

Living WITHOUT Multiple Myeloma

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My good friend and fellow patient, Nick van Dyk, from California, recently wrote an essay about his experiences with multiple myeloma. Like me, Nick blogs on a regular basis. He is one of the "young warriors," working with docs in Little Rock, Arkansas on an aggressive treatment plan designed not just to control myeloma, but