Please Subscribe to get a daily link to Pat's blog via email

Subscribe!

Your privacy is important to us. We will never spam you and keep your personal data secure.

Monthly Archives: January 2010

Home/2010/January
29 01, 2010

Docs Warned To Watch Dosage Of Velcade In Multiple Myeloma Patients With Liver Issues

Tags: , , , , , , |0 Comments

Here is an interesting and cautionary report I found about Velcade on AboutLawsuits.Com yesterday:The multiple myeloma drug Velcade has been found to increase the risk of liver toxicity and liver damage in patients suffering from moderate to severe liver problems, resulting in a warning to doctors this month that such patients should be started on

24 01, 2010

Back To Basics: What Is Induction Therapy, & Why Is It Important For Treating Multiple Myeloma?

Tags: , , , , , |0 Comments

Recent e-mails have reminded me just how many newly diagnosed patients and/or caregivers log-on to this site each and every day.  Keeping this in mind, every week I am going to start a weekly series called "Back to Basics,"  designed to help bring our new readers up to speed.One question:  What is induction therapy?  According

24 01, 2010

MMRF Site Features Comprehensive Treatment Options For Multiple Myeloma Patients

Tags: , , , |0 Comments

The Multiple Myeloma Research Foundation (MMRF) features an excellent, in-depth Website listing and explaining treatment options for myeloma patients. One piece of advice: Every newly diagnosed myeloma patient that may be a stem cell transplant candidate now, or in the future, should make arrangements to have their stem cells harvested. This accomplishes two things. First,

22 01, 2010

Two Part Article About Cord Blood Stem Cell Transplants Featured At www.HelpWithCancer.Org

Tags: , , , |1 Comment

Pattie and I just finished posting the second half of a two part series about using umbilical cord blood for stem cell transplantation.  The article's primary focus is leukemia, but the principles apply to multiple myeloma as well.  A dear friend of ours, Steve Joachim, successfully completed a cord blood stem cell transplant (SCT)last year.  Steve

21 01, 2010

Personal Testimonial For Care Recieved At The University of Arkansas Myeloma Research Center – Part Three

Tags: , , , , , |0 Comments

Here is the third and final installment of David and Lori Puenti's "Personal Testimonial For Care Recieved At The University of Arkansas Myeloma Research Center:"So what else can a research institute offer you?  Well they are focused on one disease.  Typically they have diagnosticians who are affiliated with their research as well.  So when your

20 01, 2010

Personal Testimonial For Care Recieved At The University of Arkansas Myeloma Research Center – Part Two

Tags: , , , , |1 Comment

Here is Part Two of David and Lori Puenti's comprehensive story about their decision making process following David's multiple myeloma diagnosis: Rather than talk about Little Rock, I would rather talk about why I knew that we needed to go to a "Researching Facility" as I call them.  I would urge anyone, with any rare disease, and even

19 01, 2010

Update About Gabapentin

Tags: , , |0 Comments

Friday I wrote this short post about Gabapentin, and how I believed it had been subtly helped my neuropathy for years:There seems to be a wide variety of opinions about how effective the neuropathy drug, gabapentin (brand name Neurontin) really is. Most myeloma patients with neuropathy I have spoken with dismiss it as irrelevant. So

19 01, 2010

Personal Testimonial For Care Recieved At The University of Arkansas Myeloma Research Center – Part One

Tags: , , , , |1 Comment

I asked reader and caregiver, Lori Puente, to write an article for our site, describing the care her husband, David, has received since November, 2008 at the University of Arkansas Myeloma Research Center.  Lori is a strong advocate for myeloma patients everywhere.  She feels that many patients are often not presented with a full range

16 01, 2010

Majestic Research Finds Hematologists/Oncologists Expect To Change Multiple Myeloma Treatment Practices Due To ASH 2009 Data

Tags: , , , , , , |0 Comments

Cancer Foundation for the World, Inc and Today's Healthy Living.com both featured stories about this today on their Websites:In a study published by Majestic Research's Market Research Group (formerly Rood Research), it was found that many hematologists and oncologists who attended the American Society of Hematology (ASH) 2009 Annual Meeting expect to change their multiple

15 01, 2010

Gabapentin Works—For Me

Tags: , , |0 Comments

There seems to be a wide variety of opinions about how effective the neuropathy drug, gabapentin (brand name Neurontin) really is. Most myeloma patients with neuropathy I have spoken with dismiss it as irrelevant. So when I switched insurance plans after January 1st, I decided to let it go—to not refill the gabapentin perscription I

14 01, 2010

Dana-Farber & Mayo Clinic Both Working On Revlimid/Velcade/Dex Combination Therapy For Multiple Myeloma

Tags: , , , , , , |0 Comments

This story was forwarded to me this morning from the International Myeloma Foundation (IMF).  This information isn't really new. News from December ASH meetings I attended in New Orleans will be released and re-released periodically until next major conference--most likely national oncology convention in Chicago this June.  The point I found interesting is both Dana-Farber

13 01, 2010

More About MGUS – Help & Hope For Newly Diagnosed Multiple Myeloma Patients & Their Families

Tags: , , , |7 Comments

Yesterday I wrote about MGUS and Margaret from Italy's technically excellent multiple myeloma blog. I have recieved several e-mails from newly diagnosed patients and/or their family members asking me what MGUS and other commonly used multiple myeloma related acronyms stand for.  I get queries like this a lot.  That is one reason that I, unlike