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Check-Out Margaret’s Corner For Natural Multiple Myeloma Treatment Alternatives

Posted on January 12 2010 by Pat Killingsworth | 6,028 views

One of the international myeloma blogs I follow regularly is Margaret’s Corner.  Margaret lives in Italy and is a very well read and technically informed patient who was diagnosed with MGUS, or the earliest, pre-treatment stage of multiple myeloma in 1999.  An advocate of using curcumin and other natural compounds with anti-myeloma properties, I feel it is safe to say Margaret is not a big fan of using more conventional therapy options (novel therapy agents such as Velcade, Thalomid or Revlimid, or stem cell transplants) unless absolutely necessary.  Margaret’s MGUS eventually progresssed to multiple myeloma in 2005. She has tirelessly pushed for more world-wide studies of alternative medical options to be used in treating multiple myeloma.

Click on the Margaret’s Corner link above and it will take you directly to her post from yesterday.  Here she gives a well written and thought-out analysis of a recent study about treating younger patients with myeloma.
I agree with most of what Margaret writes.  I am only critical of one thing.  Like a number of other cancer bloggers (myself incuded!) Margaret writes from her own unique perspective.  Alternative supplements and medications have worked well for her over the years.  So it is only natural she supports these alternatives.  To this I say “Way to go, Margaret!”  It’s just that sometimes some patients require more.

We have never met or spoken directly.  She has been critical of my seemingly blind support of novel therapy agents on this blog in the past.  Like Margaret, I write about what I know best and what has worked for me or friends of mine – in this case, Revlimid or Velcade.  That doesn’t mean I don’t support her efforts to promote natural alternatives to myeloma drugs.  It also doesn’t mean I own stock in Celgene or Millennium (which I don’t!) or any other pharmaceutical company.  And just because I post a study or write about a new emerging novel therapy break-through, it doesn’t mean I necessariy support the researcher’s position.  I believe in using the least invasive treatment option available to you at the time.  So, in many ways, Margaret and I are indeed on the same page.

The important point here is for all informed patients and/or patient advocates to remember myeloma isn’t a “one size fits all” type of cancer.  We should all strive to educate ourselves about the growing number of treatment options which are available to multiple myeloma patients, if you only know where to look. 

So to Margaret I say (in English, since I don’t know any Italian) “You go, girl!  Keep up the great work!”  I’m adding a link to Margaret’s blog today to make it easier for my readers to check-in on the myeloma world in Italy from time to time. 

Feel good and keep smiling, wherever you are!  Pat

2 Comments For This Post

  1. Beth Adams Says:

    I have had MGUS/SMM/StageI MM for 6 yrs., though in 1999 I knew something was wrong and bloodtests showed neutropenia and enlarged red blood cells (I was asked if I drank a lot). Not until the bone marrow biopsy in 2006 was the MM diagnosis made.
    Reading about the side effects of syn-chemicals, I have explored AHCC, medicinal mushrooms, Curcumin, Quercetin to name of few.
    I follow chemical/Big Pharma products–yet few people follow natural methods/products as religiously as I follow synthetics and naturals–Why is this??
    I take 8,000mg curcumin per day, Vitamin D3 and other products–my oncologist knows little of these things– a little about curcumin because of the MD Anderson studies– but nothing has changed in the 6 yrs. that I have been “smoldering”–
    There are the synthetics that oncologists recommend and we who favor natural means are left to our own devices, basically…………How about Cesium Chloride studies OR Sodium Chlorite to name a few !
    If I had not changed oncologists when I was diagnosed in March 2006– I would have been put on Zometa and Prednisone. I doubt with that early protocol that I would be stable and still smoldering 6 years later !
    I believe this to be the case in many cancer/MM scenarios– with the first diagnosis because most oncologists know very little of natural products (Essaic Tea, Kombucha, Poly-MVA, intervenous Vitamin C, German treatments to name a few)–they go with Big Pharma Products and often receive monies–oftentimes, it may be too early to use synthetics and natural products might due less harm and build up the immune system. Causing apoptosis of the cancer cells and building the immune system–Do No Harm is important. Perhaps combining the two works !? Sadly cancer treatment in the US has not improved much since 1940’s and the survival rate is dismal–the paranoia that oncologists have vis a vis inherent “cancer laws” is a tragedy. Alkalization can help –water systems (Japan), the Swiss and Mexican clinics can be helpful at EARLY stages not as a last resort !!
    I am fighting to save my life and it is a very rigorous task and requires diligence– There are some naturopathic oncologists but they are few and far between and here again– their ability to really treat with natural substances that have been tested is limited. Until greed and profit motive takes a backseat to CURE– we will not see many survivors with good quality of life.

  2. Pat Killingsworth Says:

    Hey Beth! Why not pursue unusual and/or radical alternative medicine options if you are smoldering. Big difference between MGUS and smoldering, though. Which are you? MGUS that progressed to smoldering? I believe less than 10% of those diagnosed with MGUS ever get active myeloma. Smoldering is different. Something like 10% chance a year it will progress. But until you become symptomatic and need aggressive treatment, keep experimenting! Curcumin a great idea! But Beth, myeloma and some of the other blood cancers are among the few cancers that do respond to conventional chemo. By the time your myeloma becomes active, you and your onc will have a choice of a half dozen different drugs that all work well–even if only at first. Keep us updated on your progress–and keep-up the nutritional attack!

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