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Great News To Start The New Year!

Posted on January 02 2010 by Pat Killingsworth | 659 views

Everyday I get questions from multiple myeloma patients – no, actually – most questions come from a patients significant other, friend or family member. One of the ways I try and help is by e-mailing regularly back and forth – as often as they need.  I have developed a number of close friendships this way.  I thought I would share one of these e-mails with all of you as a way to start the new year on an uplifting note:

Hello Pat! (and Pattie!)….

I hope you’re relaxing after your trip to Orlando…

I finally have some good news to share regarding my sister. She came up to NY on December 23rd and spent Christmas with my brother and his family. I saw her on the 27th and she was very, very down. She cried and cried, and really didn’t show any optimism or hope at all. It was a difficult day.

On Monday the 28th my sister, brother and his wife made the 30 mile trip down to Sloan-Kettering. They met for two-and-a-half hours with a female doctor. I forget the doc’s name, but my sister really liked her. Things went relatively well until my sister had an EKG and they detected an irregular heartbeat. After that, they sent her for an echo-cardiogram and a test for amyloidosis. As you know, amyloidosis is diagnosed in 10-15% of MM patients; from what I understand it makes treatment much more difficult. Needless to say, her spirits really took a dive, and the past two and a half days have been tough.

But….the doctor called this morning and her first words were “I have nothing but good news for you!” My sister’s test for amyloid came back negative and my echo was completely normal.

She also said that her level of myeloma was extremely low and that she thinks just one more ’round of the velcade will be all that will be required before her trip back to Florida!  As you can guess, this news was just what the doctor ordered! I think she has turned a psychological corner, and we’re all praying that 2010, in spite of all the challenges, will be a good year for her.

And so…thank you both again for your support, guidance, and friendship. My sister knows who you are, and I’m guessing that she’ll reach out to you someday soon. Until then….please accept my entire family’s sincere wishes for a verry HAPPY and HEALTHY New Year!!!

Best regards…Bob O’Connor

Isn’t that cool!  Isn’t that great!  You are so welcome, Bob!  May everyone out there get nothing but good good news like this during 2010.  Happy New Year!

Feel good and keep smiling!  Pat

2 Comments For This Post

  1. Jerry Says:

    I have heard this reference about 10 to 15 % of myeloma patients getting Amyloidosis. But I also heard that most of them are the light chain protein secretors only (LCO). Since Amyloidosis is associated with light chain proteins. And only 15% of myeloma patients are LCO. Does this means a high percentage of LCO myeloma patients develope amyloidosis? I also heard it is more prevalent with the lambda type light chain. Does that mean if you are a lambda LCO type you should be on the alert for amyloidosis?

  2. Pat Killingsworth Says:

    Hi Jerry-
    Not sure about the details, but I did ask a myeloma researcher at ASH about the connection. He said yes, a significant number of myeloma patients also develop amyloidosis, and vice versa- Pat

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