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Monthly Archives: March 2010

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31 03, 2010

Multiple Myeloma Research Foundation Awards One Million Dollar Research Grant

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Good news from the Multiple Myeloma Research Foundation (MMRF) about an impressive one million dollar grant it recently awarded for continued multiple myeloma research:The Multiple Myeloma Research Foundation (MMRF) and MannKind Corporation announced that MannKind has successfully achieved all milestones of a research agreement with MMRF to develop a novel, first-in-class inhibitor for the treatment

28 03, 2010

Links To Media Reports Concerning Elijah Alexander’s Passing

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Here are links to a number of different news reports about our friend and fellow multiple myeloma patient Elijah Alexander:  Associated Press, ABC Action News, Denver Star-Telegraph.  Still no definitive answer as to cause of death.  Several unconfirmed reports do say it was "myeloma related."  The Post-Chronicle wrote this in Their March 26th report: Elijah Alexander, a

23 03, 2010

Notes From Today’s Leukemia & Lymphoma Society Teleconference- Myeloma: Progress in Treatment and Side Effect Management

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I listened to a teleconference today, Myeloma: Progress in Treatment and Side Effect Management. The program featured my new oncologist, Dr. Melissa Alsina, and oncology nurse Kathy Daily. Sponsored by the Leukemia & Lymphoma Society (LLS), the program was a good, basic primer for a newly diagnosed patient. Nothing new or exciting here. But several of

23 03, 2010

International Myeloma Foundation’s Dr. Durie Talks About Frontline Therapy Options For Newly Diagnosed Multiple Myeloma Patients

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Here is a link to video lecture done by Cedars-Sinai Cancer Center's multiple myeloma specialist Dr. Brian Durie: "What Are the Current Options for Frontline Therapy" last year at the IMF's Washington 2009 Patient & Family Seminar. The International Myeloma Foundation (IMF) feature a wide variety of similar programs, covering everything from Managing the Side effects

22 03, 2010

A Multiple Myeloma Patient’s Wish Helps Ease My Pain Following University Of Wisconsin’s NCAA Tournament Loss Sunday

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The Trip to Jacksonville was fun—even though my beloved Badgers were "spanked" by Cornell, losing by eighteen points.  On Saturday I read an e-mail from a woman who is struggling with a very aggressive and unresponsive form of multiple myeloma.  She just endured a second transplant after only six months, since her myeloma was not

19 03, 2010

Newly Diagnosed Multiple Myeloma Patients: Should You Go Directly To Stem Cell Transplant Or Should You Wait?

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I write this blog each and every day from a patient's perspective.  But considering the e-mails I get requesting advice from other patients and caregivers, I aspire to learn as much as I can about our cancer.  I want to be as informed as possible when I respond to my new friends--and I need to learn as

18 03, 2010

Young Women With Multiple Myeloma at Highest Risk for Nausea and Pain From Stem Cell Transplant

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I did not know that woman are at higher risk for pain and nausea following a SCT.  (Don't be confused--a SCT and HSCT are the same thing--a stem cell transplant) Here is part of an article I read today on Medscape Medical News today:March 16, 2010 (Atlanta, Georgia) — Researchers have identified predictors of adverse

17 03, 2010

SUPPORT EQUAL ORAL DRUG REIMBURSEMENT – International Myeloma Foundation Continues To Lobby For Lower Cost Oral Chemotherapy

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I have written a number of times about the International Myeloma Foundation's efforts to help save cancer patients money on their oral chemotherapy.  Here is an e-poster/press release from the IMF, asking for help with the program:SUPPORT EQUAL ORAL DRUG REIMBURSEMENT –IMPROVED RESEARCH – ACCESS TO CLINICAL TRIALSThe Cancer Drug Coverage Parity Act (H.R. 2366)Specific

16 03, 2010

Millennium Launching New Multiple Myeloma Educational Website For Patients & Caregivers

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Millennium  and the Takeda Oncology Company in Cambridge, Massachusetts, will soon be launching an exciting, new interactive Website designed for multiple myeloma patients and caregivers named mymultiplemyeloma.com.  You can learn more about the site by watching a free webcast on March 24th at 1:00 PM EST.  For more info click on the following link:  About

16 03, 2010

Abstract Link For Multiple Myeloma Research Study In England

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I'm not sure why I found this British abstract about multiple myeloma interesting--maybe because it was basic and easy to read--while providing a different European perspective.  Here is part of the abstract titled, Trends in the incidence and survival of multiple myeloma in South East England 1985-2004 (2010), by Renshaw, Christine,Ketley, Nicolas,Møller, Henrik,Davies, Elizabeth A

15 03, 2010

International Blogger Disects Smoldering Multiple Myeloma Study On Her Blog, Margaret’s Corner

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Here is a link to the first part of a two part analysis of a research study about smoldering myeloma I found on an excellent alternative medicine for multiple myeloma patients named Margaret's Corner:  Smoldering (asymptomatic) multiple myeloma: current diagnostic criteria, new predictors of outcome, and follow-up recommendations. Part I.  Margaret is not a fan of

15 03, 2010

More Evidence For Pushing Multiple Myeloma Patients Toward Complete Response (CR)

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More about how important it can be to reach a complete response (CR) at some point during your treatment:Complete Remission Predicts for Long Survival of Patients with Multiple MyelomaResearchers from the M. D. Anderson Cancer Center have reported that achieving a complete remission (CR) was the dominant prognostic factor for long survival of patients with