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Monthly Archives: April 2010

30 04, 2010

Is 66 Your Lucky Number? 66 New Multiple Myeloma Drugs Under Development

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I just read an article on a business related Website,  New Study, "Pipeline Insight: Lymphomas, Multiple Myeloma & Myelodysplastic Syndromes", Published.According to the article, “There are currently 66 drugs under development for multiple myeloma, of which 8 are in late phase development.” The balance of the article discusses which drug company stock to buy.

29 04, 2010


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I have always been a vivid dreamer. I'm into dreams, but I've never used a dream journal or had any of my dreams analyzed. Late last night/early this morning I had the most significant and telling dream sequence. Let me preface this by saying my dreams always have a plot. They are like a television

28 04, 2010

Treatment Strategies For Relapsed/Refractory Multiple Myeloma- Part Two: Clinical Trials & New Drug Combination Strategies

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Here are course notes from the class I completed yesterday, Optimal Management Strategies and Novel Agents in Multiple Myeloma, specifically the section about clinical trials and new drug combination strategies:At the present time, the novel agents we have discussed are used in combination with bortezomib or lenalidomide; additional new agents are being evaluated. Some of

27 04, 2010

Treatment Strategies For Relapsed/Refractory Multiple Myeloma- Part One

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I completed an advanced multiple myeloma related course this morning, Relapsed/Refractory Multiple Myeloma: Options for Subsequent Therapy: Optimal Management Strategies and Novel Agents in Multiple Myeloma, By: Amitabha Mazumder, MD.  Dr. Mazumder is Professor of Medicine at NY Medical College. Here are some of the basic points from the coursework: A new patient response category,

25 04, 2010

High Cut-Off Hemodialysis (HCH) Being Used To Help Multiple Myeloma Patients With Kidney Involvement

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While reviewing my multiple myeloma research files this afternoon, I came across an interesting article in the August 2009 Issue of Oncology Nursing News about hemodialysis and multiple myeloma:When used in combination with chemotherapy, a novel procedure called high cut-off hemodialysis (HCH) may improve health and extend life in people with multiple myeloma. Because multiple myeloma

23 04, 2010

Activist Multiple Myeloma Patient Working To Help Reduce Cost Of Oral Chemotherapy

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I found this newspapter article last week about a fellow multiple myeloma patient's work to achieve equitable payment of oral chemotherapy costs by insurance companies.  I met Tom last fall in Cambridge.  He is a bright, articulate, caring guy.  I'm glad he's feeling well enough to help the International Myeloma Foundation (IMF) lobby congress on our behalf:Cancer survivor argues for

21 04, 2010

Nineteen Year Multiple Myeloma Survivor’s Advice: Forget The Stats!

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I wanted to share this e-mail "rant" I recieved from Barbara, a nineteen year multiple myeloma survivor this weekend, about an often discussed topic on this site--patient survival statistics: Any up-to-date review of patient response to current treatment regimes suggests median new patient survival greater than 7 years. UAMS would say closer to 10. MDA has

20 04, 2010

More Suggestions To Help Reduce Effects Of Peripheral Neuropathy

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I recieved this e-mail list of anti-neuropathy supplements from a multiple myeloma patient in Maine yesterday:- Vitamin B12, 1,000 mg.- Vitamin Super B-Complex 1 QD- Vitamin E, 400 I.U.- Vitamin D-3, 400 I.U.- Triple Strength Glucosomine Chondroitin- Odorless Garlic, Cap. 1,000 mg.- Folic Acid, 800 mcg.- Alpha Lipoic Acid, 200 mg.- Calcium, 600 mg. (w/Vit. D)He takes

20 04, 2010

Multiple Myeloma Fund Raising Effort

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Hearing you have multiple myeloma is always devastating news—especially when you are young. One of my readers, Topper, supports this fund raising effort by the Wilson Family, on behalf of their youngest daughter, Laura. Here is a link to the MMRF host site:  San Francisco Race For Research- Wilson Family Team.  Feel good, keep smiling

19 04, 2010

Multiple Myeloma Patients Should Beware Of Supplement Use While Taking Velcade

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I recieved an e-mail today from a multiple myeloma patient who learned she shouldn't take alpha lipoic acid--a commonly recommended supplement to help control peripheral neuropathy--while taking Velcade.  She included a link to a study, presented at last December's ASH meetings in New Orleans, about the conflict.  Here are the researcher's conclusions:Conclusions: Our data suggest that ALA has

18 04, 2010

Link To Carfilzomib Clinical Studies From The International Myeloma Foundation For Newly Diagnosed Or Relapsed Multiple Myeloma Patients

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Here is a link I found helpful from the International Myeloma Foundation (IMF), referencing six different research studies that are still accepting multiple myeloma patients:  Carfilzomib Treatment Studies.  As you may recall, there was a lot of excitement about carfilzomib's potential to reduce some of the side effects associated with a similar drug, Velcade, at

16 04, 2010

Quick Update From Panama Beach, Florida Wedding

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Hello from sunny Panama Beach!  My best friend's wedding went off without a hitch this morning.  Beautiful, sunny weather.  A gorgeous bride, Lisa.  Delightful family and guests.  I was best man--and didn't lose the rings!  Everyone was bare foot and all are happy and sun burned.  Congratulations Tim and Lisa!  Tonight we will all meet

15 04, 2010

Multiple Myleloma Time Out!

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It's 7 am. Pattie and I are getting ready to head to northern Florida—the panhandle—for my best friend's wedding. My college roommate, Tim Hanna, is marrying a wonderful woman named Lisa. They have been seeing each other for several years now. Tim is the three term mayor of Appleton, Wisconsin, a small city of about

14 04, 2010

UAMS Researchers Identify Abnormal Over Expression Of MicroRNAs In High-Risk Multiple Myeloma

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Here is a link to a timely press release, Scientists Find New Genetic Clue for Multiple Myeloma Diagnosis, Treatment, Released: 4/12/2010.  Source: University of Arkansas for Medical Sciences Newswise  Multiple myeloma researchers at the University of Arkansas for Medical Sciences (UAMS) recently discovered that widespread activity of a specific class of genes can identify aggressive, or

12 04, 2010

Patient Reader Shares His Concerns About Low Testosterone Levels Among Male Multiple Myeloma Patients

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Here is an e-mail I recieved Saturday from a new reader, John, who is concerned about the effects chemotherapy treatments may have on males with multiple myeloma:Pat...As a fellow MM patient, I've noticed a lack of information regarding the impact of MM treatments on testosterone production. As a result of either SCT, melphalan, Revlimid it

8 04, 2010

The Pain Has Become My Friend—How Sick Is That?

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My pain is like an old friend. It reminds me I am alive. Not to be overly dramatic, but I'm not sure how it would feel anymore if I didn't feel the pain—if I didn't have cancer. But here's the thing: My pain isn't that bad. A jolt here—a twinge there. I'm convinced that's why