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A Multiple Myeloma Patient’s Quality Of Life Often Gets Lost In Improving Life Expectancy Media Hype

Posted on May 03 2010 by Pat Killingsworth | 609 views

Here is a copy of the comment left yesterday by one of our readers, about Millennium’s press release about longer survival rates when using Velcade:

whiteandmissing said…

That’s great but what about quality of life while taking this standard of care. My quality has greatly diminished since diagnosis and transplant and with no current treatment I am still good for not even 50% of normal work and activities. There has to be other alternatives and I would personally like to see more experiences from others that highlight their overall health improvements while going through this short term condition know as multiple myeloma.

I can’t tell much, if anything about this fellow patient.  Are they a man or woman?  How old?  Where are they from?  Who is treating them?  Actually, I’m not sure any of that is the point. (I just like to know–I’m always curious about other patient’s situations.) What is important is their last statement: 
 
There has to be other alternatives and I would personally like to see more experiences from others that highlight their overall health improvements while going through this short term condition know as multiple myeloma.

I must admit I get caught up in all of the clinical trial hype.  I’m especially interested (as are many of you!) in life expectancy data–probably because it is improving so rapidly.  Forgotten in all of this are many of the patient stories I hear and read about every day.  Starting tomorrow, I would like to share with you some of the many success stories I have heard over the past several years–and maybe a few stories about friends who’s treatment isn’t going so well.  All are brave, caring people.  They all have one thing in common:  They are grateful to be alive and embrace their “new normal–their new lives after multiple myeloma.

Feel good and keep smiling!  Pat

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