This is the 500th post I have shared on this site. I blog here everyday. 7 days a week, including holidays, rain or shine. Why? Because multiple myeloma never takes a day off, so neither do I.
As promised, here are more positive tips and suggestions from our fellow myeloma patients and caregivers. Henry (Hank) wrote a poem about being positive I would like to share with you today:
I’m sixty six now ain’t that that a bitch unto itself
What is it I should be doing?
Should I still? Should I still be working?
I had planned to work until I was 70
Am I feeling sorry for myself?
I don’t think so
I wake up at night singing
Must be the cancer mass they tell me that is the bottom of my brain
Thought it only attacked the bone marrow
Live and Learn
Looks like they aren’t doing any more to keep me going
Seems like they are playing a waiting game
I will beat them at that
I am going to have the last laugh
I ain’t leaving until it is on my time!!!!
Thanks, Hank! I will share another poem Hank wrote tomorrow. Tom sent me his thoughts as well:
WOW! That’s tough one, I think for people who aren’t in someway grounded in a religion. I am a Catholic. I remember sitting in my recliner, the one I slept in for 8 months with 6 broken ribs while 3 doctors couldn’t figure out what I had. I started to engage in a “pity party” all by myself. Then I looked a a crucifix, with His broken body, and said to myself, “Why not me?”
That has carried me since 2003. I pray the rosary for people I know who are going through worse things than me, I have a sister-in-law with a colostomy. I have a cousin whose “omentum” was eaten away by an infection gotten in the hospital. He needed 23 pints of blood to survive and has a net placed over his entire stomach, but they can’t attach it to anything to keep it in place. I have a teenage niece with a son and no husband. I have neighbors who retirement finances were wiped out in the crash and real estate bust. I have a son whose house is worth 40% of his mortgage. I have a friend whose husband suddenly walked out on her after 40 years of marriage.
My life is pretty good. When I get up every day, I thank God I did it. And then I try to remember to dedicate something today to Him.
The key to all of it is to put your own life in the total perspective. Some days, I get tired of spending 24 hours just to stay alive. Then I look at the folks around me whose husband or wife dropped dead from brain aneurisms. We don’t live in a vacuum. We are part of a process called life. It isn’t how long we live, but how we live it. Just look at Pope John Paul II who started his Papacy as a hale and hearty man of 58 years. He ended it by being a very public figure bent over form Parkinson’s and being shot. If he can do it, why can’t I?
Another very important thing to do is turn off the TV news. And for people my age – 69 – turn off the reality shows. Both emphasize the selfishness and self-absorption that a small group of young people and all politicians demonstrate.
I read a lot. All libraries have great book stores that sell good books for a dollar or less.
I hope this helps, Pat
It does help, Tom! Reading is a great suggestion. My only issue: Because of my bone and back pain I find it difficult to sit in one position for very long. I am writing this on one knee at my desktop now. Just couldn’t sit any longer.
We all need to find ways to cope. You know the old saying: “Whatever works!”
Feel good and keep smiling, dear friends! Pat