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Monthly Archives: September 2010

30 09, 2010 Article Compares & Contrasts (Pun Intended!) Radiation Exposure From Scans Commonly Used By Multiple Myeloma Patients

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I just ran a lengthy article on my other site,, titled:Radiation Exposure Associated With CT Scans/MRI's/PET Scans/Conventional X-Rays: Is It Worth The Risk?I consider this a must read for multiple myeloma patients who are concerned about radiation exposure from any of these common imaging tests.Feel good and keep smiling! Pat

28 09, 2010 Article Expands On Our Ongoing Discussion About The High Cost Of Chemotherapy Drugs

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I just posted an article on our site I thought my readers here might be interested in: Controversial Article About The High Cost Of Chemotherapy DrugsThe post explores many of the same questions I posed in my five part series about the high cost of multiple myeloma related chemotherapy drugs from earlier this month.Although

28 09, 2010

Information About New Phase 1 Study Using CX-4945 In Relapsed/Refractory Multiple Myeloma Patients

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Here is a link to the Phase 1 clinical study I wrote about yesterday, featuring Cylene Pharmaceuticals' CX-4945:Study of CX-4945 in Patients With Relapsed or Refractory Multiple MyelomaThe study is currently recruiting participants. Here are some highlights:Purpose This Phase 1 study of oral CX-4945 is designed to test the safety, tolerability, and highest safe dose

27 09, 2010

Follow-Up To Reader From India’s Question About Carfilzomib Studies

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I just heard back from Onyx Pharmaceuticals' Director of Communications, Lori Murray, with an answer to yesterday's question from our reader in India:Hi Pat, We have a Phase 3 trial in Europe/Eastern Europe evaluating CFZ in relapsed/refractory to support a European filing. Unfortunately, we don’t have anything currently enrolling in India in the relapsed/refractory setting.

27 09, 2010

Phase 1 Study Featuring New Oral CK2 Inhibitor, CX-4945, Is Expanding

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Cylene Pharmaceuticals, Inc, a San Diego-based, private biotechnology company, announced the expansion of their CX-4945 multiple myeloma related clinical trials late last week.Cylene Pharmaceuticals, Inc, a San Diego-based, private biotechnology company, announced the expansion of their CX-4945 multiple myeloma related clinical trials late last week.Here is the first part of the press release from

25 09, 2010

Reader Question: What Is MDX-1097?

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A reader e-mailed me yesterday, asking if I had "heard of a drug in development for myeloma called MDX-1097?" She went on to ask if I thought it looked promising.MDX-1097 was designed to help patients with a Kappa restricted type of multiple myeloma. Here is the abstract about MDX-1097 from last December's ASH meetings in

21 09, 2010

These Pictures Are Worth A Thousand Words: View A Stem Cell Transplant Step By Step In These Amazing Photos

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Want to see something incredible? Multiple myeloma patient, Larry, with the help of his wife and caregiver Sharon, shared the following pictorial with us this week. I will let Sharon explain in her own words: Because we were full of questions before my husband's SCT in February, 2010 at Northwestern University's Prentice Women's Hospital in

20 09, 2010

Myeloma Hope Blog Helps Multiple Myeloma Patients Understand Test Results & Better Anticipate Side-Effects

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Looking for an excellent, technically focused patient blog? Check-out Myeloma Hope. My good friend, Don from Minnesota, includes lots of instructive details using his blood work and other tests to illustrate the hows and whys of myeloma chemistry. He also uses photos and charts which really help. An added bonus: Don's personal story is very

18 09, 2010

The MMRF & IMF Need To Remember Who They Represent–The Patient–Not The Drug Companies

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I had already written part of today's article. But after reading this comment from Nick in California, defending the MMRF, I decided to go in a different direction:Nick said... Hmm...not sure what to make of this, to be honest with you! :)While the MMRF doesn't necessarily agree with the approach that my oncologist takes, I

17 09, 2010

A Closer Look At The International Myeloma Foundation–Why Can’t The IMF and MMRF Just Get Along?

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Yesterday I shared my feelings about the Multiple Myeloma Research Foundation (MMRF). It is unfortunate that their great work is sometimes overshadowed by hyperbole—by the group's culture of aggressive fundraising and self promotion.Today let's examine the other major player in the multiple myeloma sand box: The International Myeloma Foundation (IMF).The IMF's site is less “over

16 09, 2010

Multiple Myeloma Research Foundation Does Important Work. Too Bad It Is Obscured By The Group’s "Over The Top" Aggressive Fundraising Style

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Today I will be exploring the Multiple Myeloma Reasearch Foundation's (MMRF) role as a fundraiser. How focused, targeted, efficient and transparent is the MMRF? Here is how the MMRF describes it's mission on the MMRF Website:The MMRF relentlessly pursues innovative means that accelerate the development of next-generation multiple myeloma treatments to extend the lives of