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Monthly Archives: February 2011

28 02, 2011

Video Links For Multiple Myeloma Patients & Caregivers

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A few weeks ago I ran a story about a new, patient friendly Website,  You can view dozens of clips featuring me, my wife Patte, and a number of our other fellow patients by going to the My Multiple Myeloma Video Library.   I highly recommend you watch a few of these interviews.  We

28 02, 2011

FDA Grants Priority Review For Peripheral T-Cell Lymphoma (PTCL) Drug, Romidepsin (Trade Name Istodax)


I received this press release from Celgene Corporation this morning:FDA GRANTS PRIORITY REVIEW FOR ISTODAX® sNDA FOR TREATMENT OF PROGRESSIVE OR RELAPSED PTCL SUMMIT, NJ – (February 28, 2011) – Celgene Corporation today announced that the U.S. Food and Drug Administration (FDA) has granted Priority Review classification to its Supplemental New Drug Application (sNDA) regarding ISTODAX

27 02, 2011

LInks To Disturbing Details About Ground Zero Aftermath

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Last September I wrote an article about a possible connection between first responders after 9/11 and multiple myeloma:  9/11 First Responder Deals With Multiple Myeloma Aggressively--Blames Ground Zero. Yesterday I received a belated, related link from a reader who calls himself/herself "Dakota 1955," about the topic:   DUST - Part One.   DUST - Part

26 02, 2011

Multiple Myeloma & Allogeneic Transplant Survivor Shares His List Of Healthy"Power Foods"

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Yesterday I suggested combining traditional anti-myeloma therapies with holistic, non-traditional approaches.Here is a great example of this.  A friend of mine and myeloma survivor, Steve Joachim, has seen the light!  Steve wasn't given long to live a few years ago, having run out of therapy options to slow his aggressive cancer.  Nothing was working.  So

25 02, 2011

Combining Holistic, Alternative Approaches With Proven, Conventional Therapies Offers Multiple Myeloma Patients Hope

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While I have been busy writing about the active return of my multiple myeloma--and my reluctant decision to proceed to transplant early this summer--there has been lots of other multiple myeloma related news going on. Don't forget to check-out my new myeloma news site, from time to time to keep up on the latest research

24 02, 2011

What Happens After My Stem Cell Transplant? To Use Maintenance Or Not Use Maintenance – That Is The Question!

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Yesterday I shared how--after almost four years--I have decided to go ahead with a stem cell transplant.The decision wasn't as difficult as I made it seem.  Its time.  But I wanted to detail how and why I made my decision to help some of you who may find yourself in a similar situation in the

23 02, 2011

Pomegranate Juice Helps Stop Cancer


I ran an article about his on my site last Sunday:  Preliminary Study Results Show Pomegranate Capsules May Help Slow Prostate Cancer GrowthHere is Dr. Weil's take on this red "wonder fruit:"How Pomegranate Juice Affects Cancer Spread - Dr Weil's Daily Health Tips - Natural Health InformationI know it is expensive--but one way or

22 02, 2011

Yes, Some Myeloma Patients Do Pass Away…

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Dr. Mary Palmquist was a fellow Patient Ambassador, trained to speak to support groups and help other multiple myeloma patients and caregivers.  Her husband and caregiver, David was an Ambassador as well.Mary died this weekend from an unusually aggressive form of myeloma.  Somehow, David gathered the strength to write a wonderful and detailed accounting of her

22 02, 2011

Follow Multiple Myeloma & On Twitter!

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"Embrace technology!"  That was my New Year's resolution for 2011.   So here goes:  You can now officially follow my blogs on Twitter. But there is a bonus.  My Twitter site, "HelpWithMyeloma," will also feature lots of links to other multiple myeloma related news, pictures and videos, including my new Website. Simply click on the

22 02, 2011

Plea Made For More Pancreatic Research/Funding


Patrick Swayze's widow calls for more research into pancreatic cancerHere is a link to this article:  More Research For Pancreatic CancerGood luck!  Pancreatic cancer patients and caregivers need all of the help they can get--and they need hope!Feel good and keep smiling!  Pat

20 02, 2011

The IMF and International Myeloma Working Group Agree: No Evidence Long Term Use Of Revlimid Causes Secondary Cancer In Patients Who Have Not Undergone Stem Cell Transplantation

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Friday I wrote an article about the International Myeloma Foundation's (IMF) response to the new Revlimid/secondary cancer controversy:  The International Myeloma Foundation's Official Statement Concerning Data Linking Long Term/Post Transplant Revlimid Use To Secondary Cancers.While I was preparing the article, I corresponded several times with Robin Touhy, Regional Director of Support Groups for the IMF's