Yesterday I wrote about how I have been fielding more and more questions from multiple myeloma patients and caregivers about where to find financial assistance.
I then provided a link to a site I haven’t tried: The Patient Advocate Foundation’s Co-Pay Relief (CPR) for Multiple Myeloma Patients.
Lori Puenti, fellow blogger, multiple myeloma caregiver and frequent reader and participant here, wrote this comment about yesterday’s post:
Nice Pat. I have had NO LUCK with the LLS on their assistance program. They cover nothing that we needed help with. I’m glad you were able to get something from them. I decided that it probably was a good omen we weren’t able to qualify for anything and that it meant someone else would have what they needed. We always seem to fall in the middle of too much or not enough. Seems to be the story of our life! 🙂
So true, Lori! My wife, Pattie, and I were excited to be approved for up to $10,000 in assistance from one of the nation’s largest financial aid programs for multiple myeloma patients, the Luekemia & Lymphoma Society (LLS), late last year.
But there are lots of exenses this co-pay program doesn’t cover–including co-pays for diagnostics like labs, x-rays, MRI’s, CT and PET scans.
A small group of us started a local multiple myeloma support group six months ago. The number one topic/concern was financial.
Possible sources of assistance, the Medicare donut-hole, supplemental Medicare policy options and related questions overwhelmed concerns about treatment options.
This once booming bedroom and retirement community–located about 50 minutes north of Tampa–has been hit hard with the housing crash and the rising cost of gas. A significant drop in tourism also hasn’t helped.
But anxiety over the cost of treatment isn’t isolated to hard-hit areas like mine. I run into questions about possible financial assistance options whenever I travel to speak to support groups around the country.
In some cases, I am finding that stress and anxiety over financial matters weighs more heavily on a patient and their family than fear of the cancer itself.
Let’s do this. I plan to run a series of articles next week, designed to help patients and caregivers deal with the financial burdens caused by their multiple myeloma.
I have already begun to gatther information for my series. But can I ask your help? Please send along thoughts and suggestions you may have about this. Have you found a helpful source of financial aid? What works? What doesn’t work? How do the stresses and financial budens of a cancer diagnosis affect you?
You can share your feedback in the comment section, or email me directly: pat@HelpWithCancer.org.
Please be sure to let me know if I can quote you in one of the articles, or if you prefer to remain anonomous.
I’m hoping we can all learn something which may help. Until then, feel good and keep smiling! Pat