Today is Thursday. This was to be the big day–the day I got to go home.
Since I didn’t have to be at Moffitt until 10am, Pattie and her sister, Mary, helped pack up the room and check-out. There’s a lot of stuff after 16 days, inpatient, and another week staying at the Marriot.
Fortunately, my stomach felt as good as it has since my high dose melphalan chemotherapy infusion three weeks ago.
I’m getting my Ativan dosing finely tuned and learning to stay ahead of the nausea. In my meeting with Rick–who along with Karla, serve as physician assistants to Dr. Alsina–I learned my nausea is still a holdover side-effect from the melphalan.
“That stuff really does a number on your stomach lining!” Rick said. He recommended I double the amount of Zantac I take daily to help battle the extra acid my stomach is producing as it fights to return to normal.
I have lost around 8 lbs. since I checked-in June 28th–most of it water weight. But Rick recommended I eat small amounts every hour or two. This should stabilize my weight and help further neutralize my runaway stomach acid.
But I have buried the lead! All of my numbers are great, except for my platelet count. Considering what I had been through, a platelet count of 39 is fine. That is, unless you need a count of at least 50 before they can pull out my central line.
If the line is in–I’m stuck here!
But there is a solution. As I write this, I’m hooked up and having platelets infused to hopefully get my number up over 50.
A charming young nurse from Mississippi, named Amelia, is handling the infusion, and hopefully removing my central line.
Patients who need to harvest their cells prior to transplant get larger, more complicated lines which need to be surgically removed. So everyone was excited that my Hohn line can be removed simply and safely right here in an infusion room.
I’m going to pause now to help build-up the suspense. Will my platelet count reach 50? Is removing my line as easy as everyone claims? And, most importantly, will I be able to sleep in my own bed, surrounded by my lovely wife and our children: lots of stray cats and our Island Dog, Finnegan.
Until then, feel good and keep smiling! Pat