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Monthly Archives: August 2011

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31 08, 2011

Actress Lisa Ray Speaks About Her Stem Cell Transplant

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I have been following international actress Lisa Ray's career since she was diagnosed with multiple myeloma several years ago. If you don't know much about her, you can catch-up by visiting a post I wrote about her last year: Interesting Toronto Sun Story/Interview With Multiple Myeloma Survivor Lisa Ray The actress underwent a successful autologous

30 08, 2011

Now That I’m Feeling Better, I’m Available To Speak To Support Groups Anywhere In The U.S. Free Of Charge!

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I just received an email from a multiple myeloma support group member and regular reader, Karen, wondering if I could come speak to their group in South Carolina.  She even offered to let me stay in her home. GREAT NEWS!  I would love to travel to meet with any multiple myeloma support group, anywhere in

28 08, 2011

High Risk Multiple Myeloma Patient Denied Option To Transplant By Insurance Company…

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One of our regular readers, Vannette from Utah, is the wife and caregiver to multiple myeloma patient, Glen. Vannette and I  have been emailing back and forth for quite some time.  The primary issue has been Glen's insurance company's refusal to approve his stem cell transplant on the grounds they consider Glen to be a

25 08, 2011

More Positive News For All Of You Curcumin Junkies Out There…

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Here are excerpts from a Reuters/CancerPage.com article about the positive, anti-cancer effects of curcumin: Why aren't there more clinical studies to help figure-out how and why curcumin works and optimum dosing? More Evidence Curry Ingredient May Fight Cancer By Alison McCook NEW YORK Mar 13, 2003 (Reuters Health) - An ingredient in the curry spice

23 08, 2011

Why Won’t Medicare Pay For A Myeloma Patient To Collect And Store Their Stem Cells? THAT’S CRAZY!

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In yesterday's article about stem cell transplants for older multiple myeloma patients, I mentioned in passing how Medicare might have an issue with harvesting first and transplanting later. My source was a myeloma survivor named Walt, and his wife and caregiver, JaneClare.  While speaking with them last week during our local Nature Coast Multiple Myeloma

22 08, 2011

Stem Cell Transplants For Older Patients

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I have been writing a lot about stem cell transplants lately, having recently lived through the experience myself. I hope my older readers haven't felt left out or disinterested.  Ten years ago, most transplant units excluded anyone over 70 years old.  But recently that number has steadily gone up to 75 or even 80 years

21 08, 2011

Carfilzomib, Elotuzumab, Panobinostat, Vorinostat And Arry520 All Show Promise In Late Stage Clinical Studies Against Multiple Myeloma

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Yesterday I wrote about three anti-myeloma clinical studies involving carfilzomib, elotuzumab and panobinostat. I referred to elotuzumab and panobinostat as promising "assisting type" drugs.  Also known as secondary or “helper” novel therapy agents, elotuzumab, panobinostat, vorinostat and/or ARRY520 are all showing promise working with primary novel therapy agents like thalidomide, Revlimid and Velcade. It is

20 08, 2011

If Taking Revlimid And/Or Velcade Isn’t Working For You Anymore, Don’t Forget About Elotuzumab And Panobinostat

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Once again, thank you for all of the emails I received with contact information for amyloidosis specialists that I could pass along to Bill and Diane.  The response was overwhelming! I don't know if you realize my blog is averaging around 1000 readers per day.  That's quite a lot for a site as specialized as

19 08, 2011

How Am I Doing?

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OK, OK... I know I haven't been keeping everyone updated about how I'm doing, now seven weeks following my stem cell transplant. Most every day features some good parts and not so good parts.  My stomach continues to be an issue.  I am controlling the worst of it with medication and by eating lots of

18 08, 2011

A Newly Diagnosed Multiple Myeloma/Amyloidosis Patient Needs Our Help!

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I had the opportunity to attend my local multiple myeloma support group meeting last evening for the first time since my stem cell transplant. It was wonderful to see so many of my old friends and fellow multiple myeloma survivors.  I had the opportunity to talk a bit about my recent experiences, and to show-off

14 08, 2011

Exciting Experimental Leukemia Therapy May Help Multiple Myeloma Patients Some Day

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My Editor at the Myeloma Beacon, Julie Shilane, wrote an excellent article Friday about a very new and experimental leukemia treatment which hit the mainstream news last week. I posted an article about this on my CancerNews.US site Thursday, about how scientists for the first time had used gene therapy to successfully destroy cancer tumors

13 08, 2011

Revlimid Dosing Being Re-Evaluated…

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This article concerns and fascinates me--all at the same time.  I discovered it earlier this week on a site called "Back to EurekAlert! Since it is technically a press release, I am going to reproduce it here in it's entirety.  While it is great that researchers have discovered lenalidomide (Revlimid) interacts with a protein in