Please Subscribe to get a daily link to Pat's blog via email


Your privacy is important to us. We will never spam you and keep your personal data secure.

Monthly Archives: January 2012

29 01, 2012

I’ll sleep when I’m dead…


I'm home from the hospital, well rested and no worse for wear--unless you count the seven or eight spots where nurses couldn't get IVs started because I was so dehydrated. As I was getting ready to email a myeloma friend and tell him to “be careful and take it easy,” I checked my own email

28 01, 2012

Late night medical update

Tags: |6 Comments

Thanks to everyone for your thoughtful calls, emails and comments.  But it's OK--I'm OK. But even though I argued with the doctor on call here at the hospital late this afternoon, he/we made the decision it would be best for me to spend one more night. I didn't talk with either of my doctors (being

26 01, 2012

I’m soooo sick!

Tags: , , |16 Comments

I want to apologize.  I try to publish my posts each day by 10 am Eastern time. Well, it's now 3 PM.  I just received a call from a reader, wondering if I'm OK.  I love that! Unfortunately, I'm not OK.  Two weeks ago I spent close to a week recovering from the worst cold

25 01, 2012

Helpful summary of new proteasome inhibitor anti-myeloma agents in the research pipeline

Tags: , , , , |0 Comments

Here is a link to an excellent Myeloma Beacon review/summary which compares different experimental proteasome inhibitors Marizomib (NPI-0052) and MLN9708 with Velcade and carfilzomib: Marizomib May Be Effective In Relapsed / Refractory Multiple Myeloma (ASH 2011) Hopefully, each of these three new agents will help a number of patients who have become refractory to Velcade

24 01, 2012

Diet and Multiple Myeloma (Part 5): Eating to Starve Cancer

Tags: , , , , , |20 Comments

Good Morning!  Let's get right to Danny Parker's column--installment number five in his series about multiple myeloma and nutrition:   Diet and Multiple Myeloma (Part 5): Eating to Starve Cancer Ever wondered how Revlimid works? Lenalidomide is a powerful anti-angiogenic agent. And just what is that? Put simply, angiogenesis is the process where new blood

23 01, 2012

BREAKING NEWS: Velcade sub-q approved

Tags: , , |0 Comments

While it is a bit "after the fact," it is exciting to learn this evening that the FDA has approved administering Velcade sub-q. Let me share an email I received from company spokesperson, Peter Schrager, along with the official press release/announcement: Pat, Hope all is well. Today, Millennium: The Takeda Oncology Company announced that the

22 01, 2012

Statistics do lie! Here’s an example why…


I received a disturbing follow-up email from a reader last week. She had been searching for help to find a therapy that might work for her brother with multiple myeloma. Unfortunately, her brother died before he could even start therapy. Last year, a member of our support group here in Florida recently passed away after

21 01, 2012

Is pomalidomide a wonder drug? Depends how you spin it…

Tags: , , , , , |4 Comments

OncologySTAT ran this feature article about pomalidomide last week in their hematology edition.  Here are a few excerpts: Pomalidomide Elicits Responses When Other Myeloma Regimens Fail By P. Wendling SAN DIEGO - The potent, next-generation immunomodulatory inhibitor pomalidomide works in at least one-third of patients with relapsed and/or refractory multiple myeloma when nothing else does,

20 01, 2012

Stem Cell Transplants from a Patient’s Perspective is available NOW!

Tags: , , , , |4 Comments

Today is a proud day for me.  The first print run of my second book, Stem Cell Transplants from a Patient’s Perspective, has been shipped by the publisher. While it will take a week or two for the book to show-up on, our online My Cancer Store is stocked and ready to go. My

19 01, 2012

Affirmation is the key to a positive attitude

Tags: , , |7 Comments

Yesterday I promised to share some tips on ways to stay positive in the face of adversity. This is certainly something that I--along with many other multiple myeloma survivors--face nearly everyday. Let me start by admitting that I’m not an “over -the-top, read self help books and always think positive” kind of guy. I don’t

18 01, 2012

Nature Outlook series focuses on multiple myeloma

Tags: , |2 Comments

Monday I shared a link-back to an article from Nature Magazine about the validity of using stem cell transplants as a primary anti-myeloma therapy;  featuring a lot about me and my transplant experience this past summer:  Stem cells: Transplants on trial This article is part of seventeen article feature called Nature Outlook, all about multiple

16 01, 2012

Monday morning homework

Tags: , , , , , , , |14 Comments

Last month I was featured in a Nature Magazine article about multiple myeloma and stem cell transplants: Stem cells: Transplants on trial By Elie Dolgin They included this handsome picture, too! Point of fact, the photo editors--located in England--flipped the captions of the two pictures I sent them.  The actual stem cell infusion pic was