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Monthly Archives: March 2012

30 03, 2012

Mini allogeneic (donor) transplants may turn-out to be great salvage therapy option

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It was easy to become a bit discouraged as I wrote my book last year, Stem Cell Transplants from a Patient's Perspective. As I interviews lots of donor transplant patients, it didn't take long to figure out that their side-effects were significant and long lasting. But I did speak with a few that tried mini

29 03, 2012

Helpful video with tips about how to deal with treatment side-effects

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I saved this video from last month, featuring multiple myeloma experts Dr. Bill Bensinger of Seattle Cancer Care Alliance (SCCA)and Dr. Noopur Raje of Masschusetts General Hospital discussing limiting side-effects for multiple myeloma patients. This interview is from a"Living Well With Multiple Myeloma" event held at SCCA in November 2011: I don't know Dr. Bensinger,

28 03, 2012

First responders continue to fight for cancer compensation

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I haven't written much about the connection between the 9/11 attacks and an alarming rate of multiple myeloma cases among first responders at Ground Zero. Up to this point, litigators have refused to acknowledge a connection between the World Trade Center (WTC) site and certain cancers--including multiple myeloma.  That is, until now. Here is an

27 03, 2012

Treat multiple myeloma like it’s a marathon–not a sprint!

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The Myeloma Beacon's Virginia Li wrote an interesting report late last week, highlighting how "more is not necessarily better" when it comes to myeloma therapy. Here is the first part of her article: Among Velcade-Based Combinations, Four-Drug Combo Is Not More Effective Than Similar Three-Drug Combos For Newly Diagnosed Multiple Myeloma The results of a

26 03, 2012

Inspiration and hope for younger multiple myeloma patients…

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Here is a link to a very powerful, inspirational PSA called Sarah's Story. I first met Sarah in a patient meeting at the Millennium Pharmaceutical corporate offices near Boston. She is the youngest myeloma patient that I have ever met.  Her mother started a foundation to aid myeloma research--an understandable reaction when your 20 year

25 03, 2012

Lots of myeloma related odds ‘n ends continued…

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More odds and ends to share... One of our regular readers and contributors named Mark, passed-along these helpful suggestions after learning I was having issues with nausea again. Pat, Sorry to hear of your digestive issues.  Have you tried using Culturelle Lactobacillus?  I am on a Study using it and I think it works.  The

23 03, 2012

My nausea is back…

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Guess my system enjoyed taking time-off of chemo meds a bit too much this week. My only serious experience with nausea since day 100 post transplant has been the day after I take my 40 mg of dex.  But the last few nights, Revlimid alone has seemed to cause it--and Wednesday night was very bad. 

22 03, 2012

Details about my skin cancer follow-up appointment today

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Sorry that I'm so late getting this post out to you today.  I planned to post right after I returned home from my short follow-up  dermatology/skin cancer appointment first thing this morning. This "short" appointment ended-up taking up over an hour.  Not because I was sitting around waiting too long, but because 2 additional procedures

21 03, 2012

What do you consider to be the most important qualities when you are looking for a doctor?

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I attended a myeloma informational seminar last week at Moffitt Cancer Center here is Florida and wrote about what I saw: News and views from “New Treatment Options” seminar last night at Moffitt At the end of my post, I wrote this: "I did overhear several comments made by attending patients and caregivers last night

19 03, 2012

Help with site is new and improved!

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Our new and improved Help with site is up and running! Pattie and I started that blog way back in the fall of 2008.  We wanted to share our experiences as cancer survivors and caregivers--and to run articles about cancer related nutrition, alternative medicine, supplements and important research developments we felt were relevant to

18 03, 2012

A myeloma patient’s story

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Nashville's Fox 13 reporter, Lauren Johnson, filed this report about local multiple myeloma patient Jana Stressel yesterday. The human interest story appealed to me in it's simplicity.  It' short and to the point, eventually describing what's involved with her undergoing an allo stem transplant, using her brothers stem cells... Stem Cell Transplant Offers New Lease

16 03, 2012

Peripheral neuropathy (PN) revisited – Part Two

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I just noticed that the first link was broken from yesterday's post that contained links to important Myeloma Beacon columns--and several other resources about peripheral neuropathy (PN).   It is fixed if you would like more background information and helpful suggestions from past years. Today, let's take a look at ways that you and I can

13 03, 2012

News and views from “New Treatment Options” seminar last night at Moffitt

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I attended a Florida Educational Advocacy Group event last evening at Moffitt Cancer Center in Tampa.  The topic:  New Treatment Options for Multiple Myeloma. Since I'm just completing a new book on the subject, I felt it was important to attend. I rode down and back with JaneClare and Walt, a fun couple I know