Last week I drove the one+ hours south to Moffitt Cancer Center for my official three month blood draw. Although my local medical oncologist had my M-protein tested a month back--and it showed no remaining M-spike--the in-house lab and on-site pathologist at Moffitt has been my primary source for lab work done since I moved
Earlier this week I spoke to a group of 50 nurses near my home here in Florida. One of the other speakers–oncology nurse Elizabeth Finley with Moffitt Cancer Center–reminded the audience several times how important it is to keep patients moving. Elizabeth stressed the importance of making sure patients take their pain meds regularly. Why?
I'll bet that no one else noticed this feature on Sokolove Law, LLC's website? FDA Watch List: Velcade 4/23/2012 Takeda Pharmaceuticals' Multiple myeloma medication Velcade (bortezomib) has found its way onto the Food and Drug Administration’s “Adverse Event Reporting System” list for Q3 2011 because of a potential link between its usage and death when given
While we were busy being inspired--and reading nutritional tips to help us control our myeloma--there was a lot going on with the new myeloma therapies and the FDA. So let's catch-up a bit, shall we! Check-out this Onyx Pharmaceuticals press release from Thursday: Onyx Pharmaceuticals Announces FDA Advisory Committee to Review Carfilzomib for the Treatment
What about sage and basil, the next recommendations? At risk of duplication, I’ll refer back to the column where we described the powerful effect of the ursolic acid in slowing myeloma. I’ve already praised apples whose peels contain prodigious amounts of ursolic acid. Now, its time to give due to Sage and Basil that also
DANNY'S BACK! After a long trip to Europe and a protracted battle with a viral infection, our good friend and nutritional myeloma guru, Danny Parker, sent me so much great copy this week--I'm going to run it in two installments: Diet and Multiple Myeloma: Healing Herbs: Parsley, Sage, Basil and Holy Basil What herbs might
I have been writing a lot about biking lately. PLEASE, PLEASE, PLEASE don't let the fact that you don't bike--or can't bike very far--detour you from setting-up a daily exercise plan and sticking with it! Whether you walk to the end of the block and back--or run marathons or bike cross country to help raise
I haven't ridden a bike for over twenty years. TWENTY YEARS! I rode a lot "back in the day." So what would make me consider taking-up bike riding again now? Read my two articles/posts from this weekend and you may want to join me! I know, I know--a lot of my readers don't read my
Wasn't it fun and inspiring learning about Andy Sninsky's crazy life on a bike yesterday? Andy's life with multiple myeloma has been challenging--and the way that he has responded has been uplifting. But just wait until you read about another friend of mine who's life did--and still does--center around riding his bike. Let me explain.
Wednesday evening I attended my local multiple myeloma support group's monthly meeting. I soon learned that we had an unscheduled speaker: Myeloma patient and cross-country cyclist Andy Sninsky. A citizen of both Austria and California, Andy was just finishing up a cycle ride of over 1300 miles from New Orleans to Jacksonville, Florida. Why? "To
Social media. Can't live with it--can't live without it! Just as a reminder, all proceeds from the sales of my books and other products in our slowly developing My Cancer Store go to help us keep doing what we do--keeping everyone updated on the latest and best ways to live a better life with multiple
Good Morning! Here's how I ended yesterday's travelogue about our weekend trip to Orlando's Universal Resort: Sunday morning I still felt poorly. So bad, in fact, that we discussed not returning for the second day. This is very unusual for me. I can feel bad, but a bit of sleep or well-timed meal and
I ended my post yesterday this way: "I titled this travelogue “A cautionary tale: The good, the bad and the ugly” for good reason. I’m glad I pushed myself to take this trip. But I do have some regrets. Hopefully, both you and I can learn from my mistakes! But you are going to
Pattie and I drove over to Orlando this weekend to visit Florida's Universal Resort for the first time. Even though we have lived down here for three years, I had never been to any of the area's large theme parks; not Disney, Universal, SeaWorld or even Busch Gardens, which is closer to our home near
Pleas read this excerpt from a transcript which is part of a CME credit program for physicians, produced by MedPageTODAY: SMITH: I'm Michael Smith of MedPage Today, and I'm here with Dr. Stan Gerson, Director of the Seidman Cancer Center at University Hospitals Case Medical Center in Cleveland. Dr. Gerson, welcome to MedPage. GERSON: Thank
Patients and caregivers were "all abuzz" last week over the new ImMucin anti-cancer vaccine. I even wrote two posts about it: Exciting new anti-cancer vaccine successfully tested in myeloma patients Three exciting new anti-cancer therapies where researchers worked “outside the box” Here is a more "measured" view of ImMucin in an article written
Here is some follow-up on a more well tested anti-myeloma antibody, Elotuzumab--the kind of therapy you will find featured in my new myeloma therapies book. A number of top myeloma experts, including Doctors Jakubowiak, Jagannath, Durie and Orlowski are big fans. This article is from an online trade publication called OncLive.com: Elotuzumab Responses High in
I wanted to keep those of you who kindly follow my site updated on my medical journey. As you have probably guessed, I would rather write about myeloma news and medical advances, tips for newly diagnosed patients and the like then to write about me. But I can see by how
Yesterday I shared the exciting--if possibly a bit premature--news about the experimental immunotherapy drug, ImMucin. Today, I would like to alert you to another possible major breakthrough in across-the-board cancer therapy: CD47. Although not specifically tested against multiple myeloma, this drug may some day help us--as well as thousands of other solid tumor cancer victims.
My inbox was burning-up with emails from readers who had just read about ImMucin, a new anti-cancer vaccine that is expected to work well against a number of different cancers. It just so happens the first human tests by Israeli researchers were conducted on multiple myeloma patients. And the results were everything researchers had hoped