Canadian myeloma community join together in awareness effort

Posted on September 22 2012 by Pat Killingsworth | 7,958 views

Here’s a “shout-out” to our friends north of the border.  Isn’t this cool?

Myeloma Canada says patients, families and friends unite across Canada in September to raise awareness of myeloma, and highlight the important advances being made in treatment

11 Communities across Canada to Take Part in Multiple Myeloma Marches during Blood Cancer Awareness Month

MONTREAL, Sept. 18, 2012 /CNW Telbec/ – This month, people in 11 locations across six provinces will be marching together to “make myeloma matter”.  Myeloma, also called multiple myeloma, is a blood cancer that affects cells in the bone marrow.  Seven new cases are diagnosed each day in Canada and the disease remains incurable, but new treatments are providing new hope for patients.  The Marches will take place on September 23rd and 30th.  September is national blood cancer month in Canada.

“It’s essential for patients to know about treatment advances including drugs such as Revlimid and Velcade that are dramatically changing lives”, said Aldo Del Col, Co-founder & Executive Director of Myeloma Canada.  “Dr. Donna Reece at Princess Margaret Hospital in Toronto has even reported that newer, more tolerable drugs can be used for long-term maintenance therapy that may eventually transform myeloma into a chronic disease.  Nevertheless, myeloma is not curable and we need to support more research and fight for approval of even newer drugs as they become available”.

The Marches began in 2009 in Montreal, expanded to six cities last year, and this year will take place in 11 communities across Canada led by patients, families and friends, each with a dramatic story of courage and survival.

  • In Saskatoon the March is led by the family of George Ferguson who was hospitalized for more than three months with life threatening complications after he was diagnosed in May 2010. Since then, thanks to promising new treatments, he celebrated his son’s wedding this year.
  • In Winnipeg, Heidy Foot says “life is a journey…sometimes we can choose the path we want to take and sometimes we are forced to take a certain path due to illness or family circumstance”.  Heidy’s path leads her to march in honour of her Aunt Maggie who has been battling myeloma for the past six years.
  • In Quebec sisters Laurie and Maude Carrier will lead the March in honour of their father, who was near death in the emergency room by the time he was diagnosed.  He too has overcome many obstacles since his diagnosis, and the family says Myeloma Canada gave them “unwavering hope”, as they struggled to return to normal lives.
  • In Windsor-Essex County, Emma Roung asks, “why should we care about this disease with the unfamiliar name? Because, when my husband was diagnosed in 2010 we had trouble getting information even from health professionals. So I am leading a March to raise awareness in memory of my husband and on behalf of the nearly 50 Canadians diagnosed with myeloma every week”.

These and other patient stories  personify winning strategies in the fight against cancer that Dr. Andrew Belch of the Cross Cancer Institute in Edmonton has described as “finally moving the goal posts” in treating myeloma.

The first March was held this year on September 16th in Halifax.  Upcoming Marches will be held on September 23rd in Mississauga, Ottawa-Gatineau, Saskatoon, Sault Ste. Marie, St. John’s and Winnipeg; and on September 30th in Montreal, Quebec City, Saguenay and Windsor Essex-County. Details can be found at www.myelomamarch.ca.

About Myeloma Canada

Myeloma Canada is the only national organization exclusively devoted to the Canadian myeloma community. As a patient-driven, patient-focused organization, Myeloma Canada has been making myeloma matter since 2004, working with leading myeloma researchers and clinicians as well as other cancer organizations and local support groups across Canada. Myeloma Canada seeks to strengthen the voice of the Canadian myeloma community and improve the quality of life of myeloma patients, their caregivers and families through education, awareness, advocacy and research.

Myeloma Canada is making myeloma matter for the over 7,000 Canadians affected by this incurable, yet increasingly treatable cancer by:

  • Providing educational resources and support to patients, their families and caregivers
  • Increasing awareness of the disease and its effects on the lives of patients and families
  • Advancing research and promoting access to new drug trials in Canada
  • Facilitating access to new therapies, treatment options and health care resources

About Multiple Myeloma

Multiple myeloma (or simply myeloma) is a rare cancer of the bone marrow affecting production of red cells, white cells and platelets, and can lead to anaemia, infections, renal failure, bone damage and severe pain. Every day, seven more Canadians are diagnosed with this incurable but increasingly treatable cancer.

New drugs have been successful in extending the lives of patients, but the reality is that myeloma remains a fatal disease and more needs to be done to advance the search for a cure.

SOURCE: MYELOMA CANADA

Certainly a different approach to a problem that knows no borders.  Good luck to our myeloma friends in Canada!

Feel good and keep smiling!  Pat

6 Comments For This Post

  1. Gary Says:

    Makes me proud to be a Canadian. The Maple Leaf Forever!

  2. Pat Killingsworth Says:

    A regular reader from Canada, Carol, just sent me this email:

    Hi Pat….In Alberta… The Southern Alberta Myeloma Patient Society holds our own Multiple Miles For Myeloma Walk/Run…in Calgary.

    We held our 4th one on July 28 of this year and raised over $120,000 that stays right here in Calgary and goes to research at the University Of Calgary. Dr Nizar Bahlis and his wife Dr Paola Neri(my doctors) are world renowned myeloma researchers and they have a lab here in Calgary that we support. The Edmonton group also holds a Multiple Miles For Myeloma Walk and sends their money to the Edmonton University where Dr Linda Palarski another top notch Myeloma researcher has a lab.

    The Myeloma Vancouver Group holds a Stroll for the Cure ( which is on tomorrow) and all the money they raise supports Clinical trials at theVancouver General Hospital.

    I do believe our efforts to support research to find new treatments for myeloma should to be noted as well!

    I agree, Carol! Glad to help!

  3. Carol Says:

    Thanks for recognizing our efforts as well Pat!!!!

  4. Nancy Shamanna Says:

    Thanks Pat…I am so glad to have ‘met’ you (and your good wife) online this year! You were the first columnist I ever posted in to (pestered!) on the Beacon and your kindness was very special! I think you suggested I write a column and now am very much enjoying doing that…it has given me a real focus for learning, and I hope to share with others too. As Carol said, thanks for posting our news here from Calgary also. i have been invited to the Myeloma Canada patients’ conference next weekend in Winnipeg. Dilip and I are very much looking forward to attending that too, and hearing some myeloma specialists speak. We are ‘lucky’ enough to be in a hub of research here in Canada, and fund raising also, Just as you are in the US. We didn’t ask to get myeloma, but at least we can feel useful by trying to help foster improvements in the treatment area, and to let patients know that there is a large international group to connect with also.

    Carol has been recognized for her work in patient support and fundraising in souther Alberta in the Canadian ‘Walmart Mom of the Year’ award. She is now in the top ten finalists from 17,000 entries. She has already won cash awards for our support group, and next weekend she will be in Toronto for the finals. Good luck, Carol!

    hI Gary….you always write in about dosages, don’t you? Nice to know you are one of us. Have a good ‘rest of your weekend’ everyone! And take good care of yourselves…I think that has to be ‘half the battle’….Nancy

  5. Anne Spencer Says:

    Hi Pat,
    Thank you for recognizing our work in Canada to “Make Myeloma Matter” and for all the work that you do as well.

    I am one of the coordinators for the myeloma marchs. This year I am working on our 2nd annual march in Mississauga, Ontario that will be taking place on September 22 2013.

    I am doing this for my Dad who was diagnosed in November of 2009. Since then he has had a hard battle against this horrfying cancer but is now in partial remission.

    I still feel the need to bring awareness to this cancer as so many people just has never heard about it.

    I invite you and others to follow us on twitter @myelomamarch905.

    Thank you again for all the work that you do.

    Anne

  6. Pat Killingsworth Says:

    Glad to help. Good luck!

1 Trackbacks For This Post

  1. What Is Acute Myelogenous Leukemia? | ABC-CARE.NET Says:

    [...] Care ServicesTeam Perfect Match runs NWMIndia : The land of Ayurveda- cures cancer : Indian TV TodayCanadian myeloma community join together in awareness effort .recentcomments a{display:inline !important;padding:0 !important;margin:0 [...]

Leave a Reply


Myeloma Trials

Powered by

Follow On Twitter!

Follow HelpWithMyeloma on Twitter

Archives