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Monthly Archives: November 2012

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30 11, 2012

BREAKING NEWS: Combination therapy numbers including Kyprolis trending unexpectedly high

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Dr. Berenson dropped several bombshell this evening on our Myeloma Cure Panel discussion.  REAL NEWS! Although Dr. Berenson couldn’t share specific date that he will be presenting next week at ASH in Atlanta, he let slip that substituting Kyprolis for Velcade in RVD or other multiple drug resistant patients is achieving surprisingly high success rates.

21 11, 2012

Something new: Pat’s journal article review

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I stumbled upon a fascinating journal article while I was doing some research for the post I ran about John yesterday.  Although I had seen the acronym, VDR-PACE, I wasn't familiar with the PACE part (continuous infusions of cis-platin, doxorubicin, cyclophosphamide, etoposide) of John's VDR-PACE inpatient induction regimen. It seems that VDR (Velcade, dexamethasone and

20 11, 2012

Patient Snapshot Updates: John and Roz

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I have been thinking about John from Spokane, Washington a lot these days.  He's been through so much!  He emails me most every week with updates.  If you recall, the plasmacytoma in his skull returned, requiring radiation therapy and delaying his march toward a tandem auto/allo stem cell transplant in Seattle. Here is a copy

17 11, 2012

Hospital? No way!

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I try to publish my posts by 10 am Eastern time every day.  That deadline is "soft," especially on the weekends.  If I don't post on time, some of you email me, worried that something is wrong.  Normally it's a merely a scheduling conflict if I'm late.  But not today.  Today your concern was warranted.

15 11, 2012

Can our bodies withstand perpetual chemotherapy?

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I have been saving this important post from earlier this month.  Something to reflect about:  Balancing the fear of preventing our drug resistant myeloma from gaining momentum with the toll constant maintenance therapy takes on our bone marrow and spirit... Take a Chemo Holiday By Richard Frank, MD - WebMD It is a fact of

14 11, 2012

The collective wisdom of my readers is a powerful thing.

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To start, I would like to apologize to a number of readers that never saw their comments published.  I normally receive an email whenever someone comments on any post--or so I thought.  But I learned today that there were 27 comments from the past week or so waiting to be approved by “the Administrator.”  HEY! 

12 11, 2012

Proof aspartame can cause multiple myeloma?

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More proof that there is a nutritional component to multiple myeloma.  According to a post on Digital Journal.com, a new human study shows that aspartame use is linked to increased risk of leukemia, non-Hodgkin lymphoma (NHL), and multiple myeloma in men.  Here's an excerpt: Study: Aspartame linked to blood cancers Hector Corsi - Digital Journal.com

11 11, 2012

One reader’s suggestion: Use positive imagery

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Judy from Idaho sent me this inspirational advice in response to my my last two posts about my poorly functioning bone marrow: Pat, instead of visualizing barren landscape for your bone marrow--imagine it as full of life and diversity.  Use your mind--it is powerful!                 A far more