Dr. Berenson dropped several bombshell this evening on our Myeloma Cure Panel discussion. REAL NEWS! Although Dr. Berenson couldn’t share specific date that he will be presenting next week at ASH in Atlanta, he let slip that substituting Kyprolis for Velcade in RVD or other multiple drug resistant patients is achieving surprisingly high success rates.
Dr. James Berenson, will be answering questions during our monthly Myeloma Cure Panel discussion this evening. As we all know, technology isn't always perfect. So unfortunately, only 50 patients and caregivers can listen to the 6 PM discussion live. And those slots are full. BUT, the good news is a link to the broadcast will
Thanks to all who took the time to "like" the My Cancer Store wall. Next, I wondered if I could ask our long-lived myeloma survivors to help me with a project I'm working on. Let me explain. A good friend of mine, author Dave Visel, is working on an ambitious myeloma related project. Dave wrote
I ran this post for the first time last spring. Despite all of the unexpected ups and downs, Pattie and I are continuing plan for the future. I love that! Working hard to build something together. It’s what helped build our marriage and keep us close for all of these years. In this case, the
Danny Parker has kindly agreed to sum-up the myeloma-related dietary research he has done for us this past year: Diet and Multiple Myeloma: Summary of Dietary Recommendations So, over the last year, we’ve examined many facets of diet and myeloma. Rather than send you looking for each segment, I thought it would be useful to
As I sat down to write this morning, I realized that I haven't done a follow-up post about my recent medical up-and-downs. Once again, my interest in all things myeloma has gotten in the way. Hope I haven't worried anyone! Here's what's been going on. The antibiotics (Levaquin) that worked like magic at first must
One of my international readers, Roberto (Rob) from Spain, forwarded me this article about a Spanish research team's goal of developing ways to overcome myeloma's ability to develop resistance to chemotherapy: A team of the Salamanca Cancer Center seeks to reverse the resistance of multiple myeloma tumor cells in disease treatments A team of scientists
I know a number of myeloma patients and caregivers that are reluctant to use the internet as an information source. They site negative and inaccurate information as the reason why. We all know that the internet is an almost miraculous source of information, linking research from all over the world and placing it at our
I hope all of you have a wonderful Thanksgiving--and that I can stop coughing! I may skip the short trip to have an early afternoon meal with Pattie's family today. I don't want to infect anyone else--I wouldn't wish this on anyone--and my nieces in grade school have a bug, too. I was pleased to
I stumbled upon a fascinating journal article while I was doing some research for the post I ran about John yesterday. Although I had seen the acronym, VDR-PACE, I wasn't familiar with the PACE part (continuous infusions of cis-platin, doxorubicin, cyclophosphamide, etoposide) of John's VDR-PACE inpatient induction regimen. It seems that VDR (Velcade, dexamethasone and
I have been thinking about John from Spokane, Washington a lot these days. He's been through so much! He emails me most every week with updates. If you recall, the plasmacytoma in his skull returned, requiring radiation therapy and delaying his march toward a tandem auto/allo stem cell transplant in Seattle. Here is a copy
In the Late Night with David Letterman tradition, here are the Top Ten ways that Pattie knows when I'm really sick: (10) I came home after work and found Pat asleep on the couch with our dog at his feet and two of our cats curled-up on top of him. (9) His hair isn't combed.
While laying in a feverish stupor yesterday, I realized that I never posted a link to last month's Myeloma Cure Panel broadcast that I hosted, Cure vs Control. It's a bit rough, but it might be worth a listen on a rainy day: Listen HERE! To the Myeloma Cure Panel discussion with Pat Killingsworth on
I try to publish my posts by 10 am Eastern time every day. That deadline is "soft," especially on the weekends. If I don't post on time, some of you email me, worried that something is wrong. Normally it's a merely a scheduling conflict if I'm late. But not today. Today your concern was warranted.
Nutritional columnist, Danny Parker, forwarded me this correspondence he recently shared with a reader named Susan: I love reading your column! It’s full of information those of us with myeloma need to know, information that will help us. I must admit, though, to feeling a bit overwhelmed right now regarding diet. I’ve read and reread
I have been saving this important post from earlier this month. Something to reflect about: Balancing the fear of preventing our drug resistant myeloma from gaining momentum with the toll constant maintenance therapy takes on our bone marrow and spirit... Take a Chemo Holiday By Richard Frank, MD - WebMD It is a fact of
To start, I would like to apologize to a number of readers that never saw their comments published. I normally receive an email whenever someone comments on any post--or so I thought. But I learned today that there were 27 comments from the past week or so waiting to be approved by “the Administrator.” HEY!
Here are some important odds 'n ends that I've been saving for a while. First, a question for my readers: The Myeloma Beacon just ran an article about whether myeloma patients should be allowed to undergo kidney transplants. Anyone out there know the guidelines for doing the same here in the United States? If you
More proof that there is a nutritional component to multiple myeloma. According to a post on Digital Journal.com, a new human study shows that aspartame use is linked to increased risk of leukemia, non-Hodgkin lymphoma (NHL), and multiple myeloma in men. Here's an excerpt: Study: Aspartame linked to blood cancers Hector Corsi - Digital Journal.com
Judy from Idaho sent me this inspirational advice in response to my my last two posts about my poorly functioning bone marrow: Pat, instead of visualizing barren landscape for your bone marrow--imagine it as full of life and diversity. Use your mind--it is powerful! A far more