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Free myeloma event January 28th at Moffitt

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Free myeloma event January 28th at Moffitt

Yesterday I wrote about a conversations I had with tough, never-say-die and long-lived multiple myeloma survivor, Dr. Arnold Goodman.  The meeting meant so much to me I practically gushed with admiration over Arnie’s ability to overcome the difficult hand he has been dealt.  But I don’t want to forget the reason we were there in the first place:  to help promote our FREE educational event at the end of the month.

Moffitt at sunsetSponsored by the Florida Educational Advocacy Group and hosted by Moffit Cancer Center on the campus of University of South Florida in Tampa, attendance is open to all multiple myeloma patients, caregivers, friends and family members regardless of where they are being treated.  Arnie helped get this educational series started several years ago.  I was fortunate to have attended one last year–and it was really good.

But if you know me, you know I’m never shy about making suggestions to improve something!  Last year I felt that the first part of the program moved too fast and may have been too advanced for newly diagnosed patients and caregivers.  I also wanted to keep the subject matter fresh and targeted.

So this year we are featuring an excellent program in the main auditorium called “Surgical Management of Myeloma Bone Disease.”  A pair of experts in bone repair and reconstruction will be speaking, including Dr. Nam Tran, MD, PhD, Assistant Member of the Department of Neurosurgery at Moffitt.

Following this one half hour presentation for all in the main auditorium, four smaller break-out Q/A break-0ut sessions will be available.  Expert advice will be available from myeloma specialists.  Patients that need to brush-up on their understanding of multiple myeloma can attend Myeloma 101.  Those considering a stem cell transplant option can learn more about the Role of Transplants Today.  There will also be a more advanced session which will focus on Novel Drugs for Relapsed Patients.  And lastly, I will be hosting an intimate, small group with tips for coping with myeloma and improving our quality of life.  This might be a good one for both patients or caregivers who feel overwhelmed and aren’t getting the help they need.

You can access an event schedule by CLICKING HERE.

One of my favorite parts of last year’s event was the dinner and reception following the meetings.  No, not because the elegant, catered meal was free–although that was nice!  But because we all had a chance to meet a half dozen or more myeloma experts and staff in a relaxed, personal setting.

Millennium and Celgene are sponsoring the event, so of course both companies will have representatives there to answer questions and distribute information.

You can register ahead of time by calling 888-663-3488, Option 5.  Or you can register the day of the event:  Here’s the schedule:

Park at the Gold Valet.  The event will be held in the Research Building on the right side.

Monday, January 28, 2013

Registration:                                        4:30 – 5:00

Main Program                                      5:00 – 5:30

Break-out Q/A Sessions                    5:30 – 6:15

Dinner and Reception                        6:15 – 7:30

I will be available to answer questions throughout the event, and available to sign books at the reception.  I pushed my publisher and I will have some copies of my new book, Financial Aid for Myeloma Patients and Caregivers, along with my other three myeloma related titles, too.

Hope to see you at Moffitt on January 28th!