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Monthly Archives: June 2013

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27 06, 2013

On-air support group meeting tonight!

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Our second monthly on-air Blog Talk Radio multiple myeloma support group meeting is tonight at 6 PM.  Fellow survivor and world famous tweeter, "Myeloma Teacher" Cindy Chmielewski, and co-group leader and caregiver, Sue VanDuyn, will be joining me to answer your questions.  Thursday's topic: Be Your Own Best Advocate: Becoming an Empowered Patient!   Here's the

25 06, 2013

Peripheral neuropathy? Dr. Berenson recommends alpha lipoic acid

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Don Baylor wasn't the only prominent guest on our Blog Talk Radio panel Thursday evening.  Myeloma specialist, Dr. James Berenson, joined-in and gave his two cents worth, too. I mentioned this weekend that Dr. Berenson assertively stated there is no solid evidence in medical literature supporting the claim that stress is bad for a cancer

22 06, 2013

One patient’s inspiration can be another’s frustration…

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Thursday evening's Blog Talk Radio broadcast took me on a wild, emotional roller coaster ride.  Not so much while we were on-air; you're too busy thinking about what to ask or answer next.  Preparing for the show, I thought I was going to be asking questions, along with co-hosts, myeloma survivor Matt Goldman, and CureTalk's

21 06, 2013

Cure Magazine interviews me; plus my on-air interview with Don Baylor

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I'm featured in the summer issue of Cure Magazine, along with fellow Myeloma Beacon patient columnist, Sean Murray. Medical writer Heather Van Epps interviewed me several times by phone, then polished-things-up via email.  Cure even sent a photographer  out to the house to do a photo shoot.   Photo pro, Stephanie Dye, did an awesome job! 

20 06, 2013

Don’t miss broadcast this afternoon!

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Here's the link for those of you that would like to listen-in to my discussion with former baseball superstar and myeloma survivor, Don Baylor, and myeloma expert and vocal stem cell transplant critic and myeloma specialist,Dr. Jim Berenson, this afternoon at 5 PM: http://www.blogtalkradio.com/curepanel/2013/06/20/don-baylor-and-dr-james-berenson-discuss-myeloma 

19 06, 2013

Myeloma Updates: Durie/Novis insight & support group shout-out

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I have several different items to share with you today.  First, I have been saving a link to an in-depth article OncLive ran a week ago about the International Myeloma Foundation's power couple, Dr. Brian Durie and Susie Novis.  The article features fascinating personal insights, most of which were new to me; and I know

18 06, 2013

Missing in action at ASCO, ARRY-520 hot topic in Europe

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Something was missing from this year's American Society of Clinical Oncology (ASCO) meetings in Chicago this year.  Conspicuously absent was any news about one of the most promising anti-myeloma drugs, ARRY-520.  Why?  Was there a problem with ARRY-520's trial data? Absolutely not!  It turns-out that decision makers at the company that is developing ARRY-520, Array

17 06, 2013

Broadcast features battling survivor John Knighten and family

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Good news!  Our dear friend and Patient Snapshot favorite, John Knighten, is hanging on.  Last April, John was given only a few weeks to live by his transplant team in Seattle.   But the Spokane, Washington resident and former firefighter continues to fight through severed pain caused by a massive plasmacytoma (tumor) in his sinuses.

15 06, 2013

Consolidation Therapy? Myeloma Cinderella clues-us-in

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After stepping-back and taking some time to establish her own rockin' blog, Myeloma Cinderella is back.  What a treat!  Back to back columns from my two favorite contributors. WARNING: You are leaving my acronym-free zone Myeloma Cinderella is big on acronyms--the alphabet soup I try to avoid--and often uses terms I don't normally use.  I

14 06, 2013

Exercise & Multiple Myeloma (Part Five)

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I'm always energized when our favorite lifestyle writer, Danny Parker, submits a new column.  Here's another good one: How might Exercise influence Myeloma? In a previous column, we discussed various studies of how exercise might influence quality of life—and even prognosis—for cancer patients. But what about such studies dealing with myeloma specifically? Is there evidence

12 06, 2013

Myeloma Updates: Revlimid, Social Security Disability assistance and a fond farewell

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This headline on a well known medical website made me laugh: From ASCO – Revlimid May be Effective for Newly Diagnosed Multiple Myeloma Really?  Docs have been prescribing Revlimid to their newly diagnosed patients since late 2006!  But the keystone novel therapy has never been officially approved for use in new patients by the FDA.