A surprising source of myeloma related information can be found on business/investment websites. I have written about this before. With big bucks at stake, financial newsletters and investment firms hire some of the best and brightest to help keep their clients updated. Even so, I must admit I never expected to run across an article
Our dear friend, John Knighten, is nearing the end. I can't remember knowing a more determined guy. From the start, John's high risk myeloma has been insidiously aggressive. But John and his family handled every fast ball and curve his myeloma threw their way. But the news about John isn't good. For those of you
Before I move on to today's topic, I would like to thank myeloma survivor, Cindy Chmielewski, and caregiver, Sue VanDuyn, for joining me last night for our second on-air multiple myeloma support group broadcast. We answered questions about everything from the best way to deal with peripheral neuropathy, to what impact nutrition and supplements have
Our second monthly on-air Blog Talk Radio multiple myeloma support group meeting is tonight at 6 PM. Fellow survivor and world famous tweeter, "Myeloma Teacher" Cindy Chmielewski, and co-group leader and caregiver, Sue VanDuyn, will be joining me to answer your questions. Thursday's topic: Be Your Own Best Advocate: Becoming an Empowered Patient! Here's the
Good news from my myeloma specialist, Dr. Melissa Alsina, at Moffitt Cancer Center. My myeloma is stable for the third quarterly visit in a row; locked-in at an M-spike of 0.2. My hemoglobin, platelet and white blood counts are up and a bit better, too. A once a week sub-q Velcade injection--along with 20 mg
Don Baylor wasn't the only prominent guest on our Blog Talk Radio panel Thursday evening. Myeloma specialist, Dr. James Berenson, joined-in and gave his two cents worth, too. I mentioned this weekend that Dr. Berenson assertively stated there is no solid evidence in medical literature supporting the claim that stress is bad for a cancer
Former baseball great and active hitting coach for the Arizona Diamondbacks, Don Baylor, was one of the featured guests on Thursday's Blog Talk Radio broadcast. But as I processed all I heard and shared Thursday night, the thought occurred to me that many of my readers may not realize who Don Baylor is, and why
Thursday night's Blog Talk Radio broadcast about myeloma and stress wondered off-topic a number of times. But there were a few tips to help minimize myeloma-related stress. And now that I've had some time to reflect back on the topic, let me share a more comprehensive list of suggestions. Two times during the hour myeloma
Thursday evening's Blog Talk Radio broadcast took me on a wild, emotional roller coaster ride. Not so much while we were on-air; you're too busy thinking about what to ask or answer next. Preparing for the show, I thought I was going to be asking questions, along with co-hosts, myeloma survivor Matt Goldman, and CureTalk's
I'm featured in the summer issue of Cure Magazine, along with fellow Myeloma Beacon patient columnist, Sean Murray. Medical writer Heather Van Epps interviewed me several times by phone, then polished-things-up via email. Cure even sent a photographer out to the house to do a photo shoot. Photo pro, Stephanie Dye, did an awesome job!
Here's the link for those of you that would like to listen-in to my discussion with former baseball superstar and myeloma survivor, Don Baylor, and myeloma expert and vocal stem cell transplant critic and myeloma specialist,Dr. Jim Berenson, this afternoon at 5 PM: http://www.blogtalkradio.com/curepanel/2013/06/20/don-baylor-and-dr-james-berenson-discuss-myeloma
Funny. I crisscross the country, flying here and there, speaking to myeloma support groups from coast to coast. Yet I rarely address our local group here north of Tampa. Last night I was the featured speaker. My topic; New Therapy Update: Finally some good news! I wanted to share my "good news" with the rest
I have several different items to share with you today. First, I have been saving a link to an in-depth article OncLive ran a week ago about the International Myeloma Foundation's power couple, Dr. Brian Durie and Susie Novis. The article features fascinating personal insights, most of which were new to me; and I know
Something was missing from this year's American Society of Clinical Oncology (ASCO) meetings in Chicago this year. Conspicuously absent was any news about one of the most promising anti-myeloma drugs, ARRY-520. Why? Was there a problem with ARRY-520's trial data? Absolutely not! It turns-out that decision makers at the company that is developing ARRY-520, Array
Good news! Our dear friend and Patient Snapshot favorite, John Knighten, is hanging on. Last April, John was given only a few weeks to live by his transplant team in Seattle. But the Spokane, Washington resident and former firefighter continues to fight through severed pain caused by a massive plasmacytoma (tumor) in his sinuses.
All work and no play makes for a dull blog! I hear from so many of you; sometimes you even send pictures. I love that! Like this fun, unexpected photo from Holt, taken after he completed a 10 mile hike: Or how about pictures from one of your support group meetings? I'm sure many of
After stepping-back and taking some time to establish her own rockin' blog, Myeloma Cinderella is back. What a treat! Back to back columns from my two favorite contributors. WARNING: You are leaving my acronym-free zone Myeloma Cinderella is big on acronyms--the alphabet soup I try to avoid--and often uses terms I don't normally use. I
I'm always energized when our favorite lifestyle writer, Danny Parker, submits a new column. Here's another good one: How might Exercise influence Myeloma? In a previous column, we discussed various studies of how exercise might influence quality of life—and even prognosis—for cancer patients. But what about such studies dealing with myeloma specifically? Is there evidence
This is BIG NEWS! I'm excited to announce that fellow myeloma patient, Matt Goldman and I will be on-air a week from today, interviewing former baseball great and myeloma survivor, Don Baylor, and noted myeloma expert, Dr. James Berenson. How exciting! There are still a few slots available if you would like to be one
This headline on a well known medical website made me laugh: From ASCO – Revlimid May be Effective for Newly Diagnosed Multiple Myeloma Really? Docs have been prescribing Revlimid to their newly diagnosed patients since late 2006! But the keystone novel therapy has never been officially approved for use in new patients by the FDA.