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Monthly Archives: August 2013

31 08, 2013

Foods and supplements myeloma patients should avoid (Part Four)

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Time to finish-up the last contraindicated foods and supplements on my list of no-no's for multiple myeloma patients: 6)  Too much alcohol 7)  Otherwise healthy things not to take with Velcade 8)  Glucosamine 9)  Alpha lipoic acid 10)  Concentrated antioxidant supplements Too much alcohol?  This started a firestorm of comments; both serious and tongue-in-cheek.  Once

30 08, 2013

Pros and cons of taking L-glutamine and alpha lipoic acid

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You can't see behind the scenes into my email in-box, but if you could you would find the same backlash defending alpha lipoic acid (ALA)  that you can read in several comments following yesterday's post.  L-glutamine is also used to help minimize peripheral neuropathy symptoms.  It appears on my list, too.  Both  of these powerful

29 08, 2013

Foods and supplements myeloma patients should avoid (Part Three)

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Let's pause here for some healthy perspective.  I'm not suggesting that all myeloma patients never eat a piece of chocolate birthday cake or drink a glass of wine.  That's crazy!  This list of foods and supplements to avoid is a basic guideline. I've been receiving emails that sound like they're from petulant children that don't

28 08, 2013

On-air support group tonight; Danny Parker featured Monday

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I will write more about foods and supplements for myeloma patients to avoid tomorrow.  Today I need to promo a pair of important Cure Panel Talk Show broadcasts, starting with tonight's live, on-air support group.  We will be discussing Treatment Extremes: Comparing and Contrasting Different Treatment Options. Here's the link to register for the 6

26 08, 2013

Foods and supplements myeloma patients should avoid (Part Two)

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More about Amgen's announced acquisition of Onyx Pharmaceuticals (Kyprolis), after details become available later today. Saturday I shared a list of 10 foods and supplements that myeloma patients may want to avoid.  I've heard from a number of you, asking for more information on the topic sooner rather than later.  Your wish is my command!

25 08, 2013

BREAKING NEWS: Amgen to buy Onyx Pharmaceuticals

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This is BIG NEWS, especially for a Sunday afternoon: Amgen to Acquire Onyx Pharmaceuticals for $125 per Share in Cash Attractive Addition to Amgen's Leading Oncology Portfolio and Pipeline Kyprolis(R) (carfilzomib) for Injection Is at Early Stages of Launch in Multiple Myeloma; Showing Strong Physician Support Acquisition Expected to Contribute to Growth and Value for

24 08, 2013

Foods and supplements myeloma patients should avoid (Part One)

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In my ongoing series, Alternative/complimentary medicine for myeloma patients,  I have been focusing on foods and supplements we should consume.  Now how about a few to avoid. This list is more controversial than the others.  The science behind some of these contraindicated foods and supplements is lab based; there's no live human studies to support

21 08, 2013

Blog Talk Radio spotlights allo (donor) stem cell transplants

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Two important international Blog Talk Radio broadcasts coming up.  Tonight at 6 PM, catch stem cell transplant and myeloma expert, Dr. Ravi Vij and Anne Quinn Young, VP of Marketing with the Multiple Myeloma Research Foundation (MMRF).  The topic:  Pros and cons of using allogeneic (donor) transplants against multiple myeloma. You can listen-in by phone,

20 08, 2013

BREAKING NEWS: More genetic evidence that myeloma may run in families


WOW!  We made U.S. News and World Report!  Multiple myeloma doesn't make headlines very often--except on the financial pages.  Here's an excerpt and link to yesterday's article: Researchers Link Aging Gene to Blood Cancer Their findings indicate a person's risk for the disease could be inherited By Allie Bidwell – August 18, 2013 The same

19 08, 2013

Conflicting statistics make treating myeloma complicated; see a specialist!

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Sites like this one often share statistical data revealed to us through clinical studies.  On the surface it seems simple enough.  But things aren't always what they seem.  Let me explain. Most all of the news in myeloma research these days confirms the OS advantage of achieving a complete response (CR).  Logically this makes sense;

18 08, 2013

Alternative/complimentary medicine for myeloma patients (Part Two)

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Did you get a chance to read the National Center for Alternative and Complimentary Medicine report, Complimentary, Alternative or Integrative Health: What's in a Name?  In it, you should have noticed that by far the most commonly used approach involves natural products.  And in that category, nutritional supplements easily tops the list. My short primer

17 08, 2013

Alternative/complimentary medicine for myeloma patients (Part One)

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I have been following a recent debate among the myeloma community: Is it a good idea for a myeloma patient to try alternative medicine?  Several readers seemed to be confusing alternative medicine with complementary medicine.  Did you know that there is a National Center for Complementary and Alternative Medicine?  I didn’t! A caregiver emailed this

16 08, 2013

Exercise & Multiple Myeloma: (Part Seven)

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Having just returned from a two week long Buddhist retreat, our Renaissance Man extraordinaire and lifestyle columnist,  Danny Parker, is ready with the next installment of his expose' exploring the joys and value of exercise: Exercise after a stem cell transplant The day after my stem cell transplant, my nurse practitioner came into my room

15 08, 2013

Allo (donor) stem cell transplants: Forgotten path to a cure?

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I wanted to give a shout-out to one of our regular readers.  Mark is a younger, allogeneic (donor) recipient and strong advocate for the procedure.  Mark, after all of this time I don't have your email.  Next Wednesday, I am participating on a Blog Talk Radio Panel about allos and would like your input/questions to

14 08, 2013

Well known myeloma specialist: Patients who don’t achieve CR may live as long as patients who do

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Last Saturday the Myeloma Beacon ran an opinion piece by one of the best and brightest multiple myeloma specialists, Mayo Clinic's Dr. Vincent Rajkumar,  titled, Should Myeloma Patients Panic If They Do Not Achieve A Complete Response? In it, Dr. Rajkumar stressed that myeloma patients should not despair if they are unable to achieve a

13 08, 2013

Remembering my father (Part Two)

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Ted Killingsworth was born and raised in South Carolina.  My father put himself through college at Clemson University and rose to the rank of Captain in the Air Force, serving as a civil engineer in Japan and the Philippines after World War Two. Dad was a great man.  Professionally, he practiced law for over 50

12 08, 2013

Remembering my father


Last week I wrote about how my good friend, Ardy Germann, was losing her battle with myeloma: Sometimes it can be difficult to focus on positive things…   I learned last evening that Ardy had died over the weekend.  Such a special, caring person.  Ardy, you will be missed. Obituaries only provide a sketchy outline