Fresh from an energizing trip to Norwalk, Connecticut Thursday to meet Kathy Giusti and her MMRF research team, I was excited to tune-in to watch Kathy on MSNBC’s highest rated show, Morning Joe yesterday. Before we continue, why don’t you watch her interview and we’ll chat on the other side:
What did you think? Pattie and I both watched, agreeing that most of what Kathy had to say was probably lost on the general viewer. At Friday’s meeting, Kathy shared a preview of what she wanted to say Monday morning, and why. Having now watched several more times, I must say that Kathy hit her marks as scripted.
However, it is nearly impossible to get a technical message out effectively on a show like Morning Joe. Too many people cross-talking; too many distractions. Trying to explain three major initiatives? Impossible.
I thought Kathy did a marvelous job. She was focused and on message. If a lot of the message was lost, that’s OK; I caught it and I’m happy to pass it along!
Somewhere along the line, someone at the MMRF thought it would be a good idea to launch and promote three different initiatives at once. I can understand why; use the spotlight to pitch it all. Not the way I would have done it, but no one asked me!
The thing is, everything that Kathy briefly touched-on is vitally important to the myeloma research and patient community. So allow me to break-it-out for you now. I’ll provide supporting detail in future posts.
Kathy opened the interview by clearly listing the three important cancer research initiatives that the MMRF is rolling out this week: big data and genomics sequencing, open access by sharing research data and empowering patients to find clinical trials that are best for them.
The moderators zoomed in on Kathy’s second point, sharing data. I recognized an important catch phrase that I had heard on my visit: “It’s not that people are bad; its just that the system is broken.”
No one on the show understood why drug companies and research hospitals didn’t already share data. Once Kathy started talking about “intellectual property” they quickly moved on.
Let’s face it. Four minutes on-air is not near enough time to even scratch the surface of the important work that the MMRF is doing to help us. So every few days I’m going to highlight key parts of the MMRF’s master plan to systematically find a cure.
I’m working on a personal medical update tomorrow, so tune in Thursday for the first installment about why “big data and genomics” may someday save our lives.
Feel good and keep smiling! Pat