I just flew back from my second Light the Night walk/fundraising appearance away from home the last two weeks. Last week the LLS sponsored event was a big one in Boston. Last night’s walk was a smaller, more family oriented gathering in Hampton, near Williamsburg, Virginia. My energy level is good. This week is the first of two off-weeks without any chemo.
That helps a lot; last week’s chemo-on-the-way-to-the airport experiment left me exhausted. Hard to push through meetings and evening gatherings when you aren’t sleeping well. Thanks for nothing, dex!
It’s difficult enough trying to get to sleep when traveling. Despite trying Ativan and even Benadryl, sleep was hard to come by in Boston. I slept a bit better this week.
My left iliac crest–site of my suspected bone lesion–continues to radiate pain down through my hip. It isn’t debilitating, just uncomfortable. And while I’m venting, what’s with this peripheral neuropathy? If I don’t balance my meds just right the tingling, burning and numbness is becoming close to debilitating.
This is something many of you can relate to. I was laying in bed this morning, catching up with Pattie. But I had to get up and get medicated.
I’ll share one thing I’ve learned over the years, meeting and hearing from literally hundreds of myeloma patients and caregivers at events and walks like the ones I’ve had the privilege to attend the past two weeks: MYELOMA SURVIVORS ARE TOUGH! The things we endure and live with–both physically and emotionally–acting like everything’s normal; that everything’s OK. Admirable and brave. “Stupid crazy!” as a Bostonian might say.
I will learn more about what’s going on with my hip and elevated M-spike when I meet with Dr. Alsina next Thursday. Until then, the world doesn’t stop turning. No time to waste when you’re on myeloma time! Enjoy your weekend, everyone.
Feel good and keep smiling! Pat