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Monthly Archives: November 2013

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30 11, 2013

Notes from an exhausted traveler

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Four weeks on and two weeks off.  That's my perpetual chemotherapy schedule.  It's a good thing that last week was one of my "off weeks."  I just returned from a grueling swing through the upper Midwest. I've been researching a researcher; University of Minnesota genetics professor, Brian Van Ness.  He's spearheading an initiative to help

27 11, 2013

Reminder: Don’t forget your flu shot!

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Have you all gotten your flu shot?  If only it were that simple! Since the vaccine uses a dead virus, there shouldn’t be a concern over contracting the flu from an injection.  But were you aware that a person’s immune system needs to be strong and functioning in order for the flu vaccine to work?

26 11, 2013

How I deal with pain

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So many of us in the myeloma community are forced to live with chronic pain.  Collapsed and missing vertebrae, damaged ribs, an ailing left hip and painful nighttime cramping top my list. Yes, it would be very difficult for me to function without pain meds.  But this post isn’t about that.  Nor is it about

25 11, 2013

Complementary/alternative medicine for multiple myeloma patients

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I received this email from last week from Sue Enright with the International Myeloma Foundation (IMF), alerting me to an important broadcast replay for multiple myeloma patients and caregivers: Dear Support Group leaders, Last week the International Myeloma Foundation presented our final "Living Well with Myeloma" teleconference of the year, entitled "Complementary and Alternative Medicine:

22 11, 2013

ASH insight from Dr. Brian Durie

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IMF Medical Director, Dr. Brian Durie, has written a pair of posts about this year's ASH.  Here are the 8 new therapy agents that Dr. Durie will be watching: anti-CD 38 monoclonal antibodies (MAb) daratumumab (abstracts #227 and #1986) and SAR 650984 (#284)  MLN 9708 (ixazomib citrate: abstracts #535, 1944, and 1983) ARRY 520 (abstracts

21 11, 2013

Staggering amount of myeloma related data to be revealed at this year’s ASH (Part Two)

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I promised more information about the upcoming American Society of Hematology (ASH) meetings in New Orleans; specifically data from promising clinical trials and laboratory studies that will be presented there.  Last week I ran these posts: Staggering amount of myeloma related data to be revealed at this year’s ASH (Part One)   Innovative genetic diagnostics

16 11, 2013

Innovative genetic diagnostics also featured at ASH

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Yesterday I started the first of what will be an ongoing series leading up to the American Society of Hematology (ASH) meetings.  Before I get to that, I wanted to share something I wrote on our My Cancer Store Facebook page: It will be awesome to focus on something other than IMiDs and proteasome inhibitors

14 11, 2013

Helpful reader contributions

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I've received dozens of email testimonials from myeloma patients and caregivers this week, raving about how well acupuncture has helped to minimize their peripheral neuropathy (PN) symptoms.  I'm convinced! Could I ask readers that have tried acupuncture to share how you've manage to pay for it.  Covered by insurance?  Medicare? Purdue University researcher, Gary Blau,

13 11, 2013

Peripheral Neuropathy: Can you feel the BUZZZ?

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Peripheral Neuropathy (PN) can manifest itself in a variety of ways.  Tingling and numbness in feet and hands are common.  Sometimes pain can shoot up one’s leg with each step. And/or a patient’s hands and feet can be painful, even at rest.  But today I experienced a freaky, new symptom. This is my fourth consecutive