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Monthly Archives: January 2014

Home/2014/January
31 01, 2014

POP! SNAP! There goes a rib…

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In the past I have experienced bone damage at M-spikes as low as 0.5.  In the back of my mind I have been anticipating trouble; following 3 months hovering around 0.5, my number has crept up and held stable at 0.6 for 2 months.  Apparently my instincts were spot-on.  I broke a rib yesterday. Thursday

30 01, 2014

Link to my interview with MMRF V.P. Anne Quinn Young

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Tuesday night I moderated this month's Myeloma Cure Talk broadcast.  Our special guest: Anne Quinn Young. Anne is the Multiple Myeloma Research Foundation's (MMRF) Vice President of Marketing.  She discussed the latest MMRF initiatives, CoMMunity Gateway and big data with our experienced panel of multiple myeloma survivors, Gary Petersen, Cindy Chmielewski and Matt Goldman. I

26 01, 2014

Advice from cancer nutrition expert Dr. Donald Abrams

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Last week I shared a number of useful suggestions made on-air by my special guest, Dr. Donald Abrahms, on our monthly Cure Talk broadcast.  Here are some more: * Dr. Abrahms recommends eating mushrooms regularly.  Standard common button mushrooms you can find in supermarkets are fine.  But he was referring to what he called medicinal

24 01, 2014

Even experienced myeloma survivors have bad days

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Sometimes our bodies don't react to medications the way we have come to expect.  Yesterday was an unsettling and unpleasant reminder of that. Last week I received some pretty good news.  My monoclonal protein level--measured by my M-spike--remained stable.  Wednesday I saw my medical oncologist, Dr. Malhotra, then continued on to infusion for my sub-q

23 01, 2014

Hope for a cure: Tom’s allo transplant journey (Part Six)

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Congratulations, Tom!  Donor stem cells were infused yesterday.  Tom is part of a groundbreaking study where Velcade is used before, during and/or after transplant to help reduce graft/host disease (GVHD). My myeloma specialist, Dr. Melissa Alsina, is spearheading this probe into how and why Velcade seems to significantly block GVHD.  She recently told me that

20 01, 2014

Broadcast features expert nutritional advice for cancer patients

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I was honored to be selected to host an on-air Cure Talk interview with oncologist and integrative medicine specialist, Dr. Donald Abrams Friday evening.  It's a must listen for anyone concerned about nutrition and it's impact on cancer. Dr. Donald Abrams is a cancer and integrative medicine specialist at the UCSF Osher Center of Integrative

16 01, 2014

Best of ASH (Part Four)

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During a presentation at our monthly Nature Coast Multiple Myeloma Support Group meeting last evening, oncologist Dr. Vikas Malhotra, reviewed the Multiple Myeloma Research Foundation's (MMRF) Best of ASH power point presentation.  Near the end, an experimental drug, indatuximab ravtansine, was listed as part of a short list of exciting new myeloma therapies.  No one

15 01, 2014

Patient Snapshot: Howard Martinson

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In a tragic yet ironic twist, my dear friend and multiple myeloma survivor, Howard Martinson, unexpectedly lost his beloved wife and caregiver last year. Teresa was an amazing woman.  But an innocent sinus infection somehow became unstoppable; she died last fall with Howard at her side. I hadn't heard from Howard for a while, so