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Pat’s Medical Update: On the edge, but holding steady

Posted on January 17 2014 by Pat Killingsworth | 732 views

Good news.  Not great news, but it could be a lot worse; my IgG is up 10%, but my monoclonal protein level remained at 0.6 after the latest six week cycle.  Considering my history of bone involvement with M-spike readings as low as 0.5, the plan was to make a therapy change if it ticked up even a little.

Whew!   My myeloma specialist is out of town speaking to a group of physicians in South America.  If my M-spike had climbed higher, I was to email her so she schedule me next week to discuss and formalize our new treatment strategy.  Now I can skip that.  No extra trip down to Moffitt Cancer Center in Tampa next week.  No new side effects from one or more new drugs to adjust to.  Four more weeks of Velcade sub-q, once each week, with an oral 20 mg dexamethasone chaser.  Then another two weeks off.

This treatment schedule agrees with me.  My peripheral neuropathy is a bit worse, but I’m able to manage.  I’m stiff and tired the night following my Velcade injection, but that doesn’t bother me when I know what to expect.  Sure, dex makes it difficult to sleep.  But Pattie hasn’t complained about altered moods or my being too high strung; she’s used to it by now.

Stable is good.  Status quo.  I’ll take it!

Feel good and keep smiling!  Pat

 

16 Comments For This Post

  1. Bob Mungenast Says:

    Good news, thanks for sharing it with us. Stable IS good.

    I hope this can last for you for a long while so you can enjoy some normalcy in your life. I have been lucky to have had that for the past few months.

    Now you can settle down to a Sunday of football. Go Patriots!

  2. Ron Harvot Says:

    That is good news, I hope it continues to hold for you ;)

    Ron

  3. Steve Says:

    Great news, Pat! Stable is GOOD!

    Coincidentally, over the past few days I’ve learned my PET/CT shows no progression, my M spike however is up from 0.2 to 0.3 but my K/L ratio remains normal. Experienceing disease stability while on extended drug holiday ( 14 months)….I’ll take that ANY day! May yet do a couple of bone turnover tests but with any luck at all I will be able to put off a BMB for another 12 months or so! ;)

    Stay well!

  4. Barb D. Says:

    Whew is right! I like stable.

  5. Pat Killingsworth Says:

    Always great to hear from so many good friends! :)

  6. Pam Says:

    Great news, Pat!! Status quo……..we’ll take it!

  7. Pat Killingsworth Says:

    Sounds like you’re doing OK, too. Hope so!

  8. Bill O'Halloran Says:

    Good news, Pat. I hope it continues for you.

    Bill

  9. Pat Killingsworth Says:

    Staying warm Bill? Thanks for the support!

  10. Nancy Shamanna Says:

    Steady as she goes, Pat! From whatever you are doing with your lifestyle and also from the drugs you are taking, I am glad to know that it is holding the M protein at a tolerable level for you. It was nice to speak with you yesterday on the Cure Talk Blog show. I did gather some new insights into myeloma too. Dr. Abrams, who is an oncologist who also does complementary medicine, was a very interesting speaker.

  11. Bonnie Tesh Says:

    You’re doing good, Pat. Keep on keeping on. Hoping and praying you remain stable, or even better. I remain in remission but my free light chain count has bumped up to “high normal,” which will be rechecked in March. My only treatment is Aredia q. 3 mo.
    Thank you for all the information you share.

  12. Pat Killingsworth Says:

    Anytime I hear “rechecked in March,” I smile. Good for you! Thanks for the encouragement!

  13. Linda Says:

    So happy for you Pat!

  14. Pat Killingsworth Says:

    :)

  15. Emma Says:

    Hi Pat, glad to hear things are stable. I’m happy for you!

  16. Pat Killingsworth Says:

    Thank you! Guess it could be a lot worse…

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