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Monthly Archives: February 2014

28 02, 2014

BREAKING NEWS: Marizomib granted FDA orphan drug status

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Triphase Accelerator Corp. announced today that it's new proteasome inhibitor, marizomib, has been granted orphan drug designation by the FDA's Office of Orphan Products Development for the treatment of multiple myeloma. Here's a statement about it from the CEO of Tiphase: “We are pleased that the FDA has granted orphan drug designation for the development

22 02, 2014

Pat’s Myeloma Beach Party today!

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Today's the big day!  Surprisingly, I slept well last night.  Up early to start setup for our Myeloma Beach Party at Bahama Breeze on Tampa Bay.  The weather forecast calls for 78 degrees and a chance of rain.  We'll take it! A group of us are having lunch together.  Main crowd will start arriving around

18 02, 2014

Ever used Velcade? Earn $100 by completing phone survey

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A national research firm is looking for patients that have used--or are using--Velcade.   Anyone who is interviewed will receive a $100 Visa gift card. The purpose of this study is to gather opinions of patients living with multiple myeloma.   The only other requirement is that you haven't had a stem cell transplant. Participation in

17 02, 2014

Myeloma Beach Party on Saturday

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Six days and counting!  Saturday some of the most amazing people I know will be gathering at Bahama Breeze Island Grill to celebrate life.  Together we're going to eat great food, enjoy a tropical umbrella drink (or two) and give multiple myeloma a defiant one finger salute! And except for the drinks, it's all FREE!

16 02, 2014

Comprehensive pain primer courtesy the LLS

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The Leukemia and Lymphoma Society (LLS) has produced a definitive review about pain and pain management for multiple myeloma and other blood cancer patients. It's basic, but I still learned a lot reading it.  Having recently struggled with sharp, intense pain caused by a pair of plasmacytomas underneath my rib cage, the report was timely

15 02, 2014

Tom Brokaw multiple myeloma update

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I heard a wonderful PSA today on the radio while driving back from radiation therapy.  It featured Tom Brokaw, discussing his multiple myeloma diagnosis and explaining what it is.  He then went on to make suggestions for things that people can to help their friends with cancer.  It was very well done.  That didn't take