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Monthly Archives: April 2014

29 04, 2014

Tom Brokaw back in the news

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NBC News reported yesterday that it will be naming the company's new West Coast headquarters after Tom Brokaw. Here's the scoop according to the popular entertainment website, Tom Brokaw On NBC News’ ‘Brokaw News Center’ And New Projects Senior TV Editor Brian Steinberg April 28, 2014 NBC News said it would name a new broadcast

28 04, 2014

Multiple myeloma is so inconvenient!

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I've written before about how living with multiple myeloma is like having a part time job.  Want proof?  Check out my schedule for the upcoming week: Today I'll drive an hour down to Tampa for a blood draw, and to pick up 350 pages of medical records to take with me to Mayo Clinic on

27 04, 2014

Proof clarithromycin can help overcome myeloma drug resistance

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From what may be possible in the future to an easy way to temporarily overcome myeloma drug resistance now. Apparently adding something as simple and innocuous as an antibiotic can add four or more months of effectiveness to fading Revlimid therapy.  Here's the abstract from a study published Friday in the American Journal of Hematology,

26 04, 2014

Exciting immunotherapy update

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Read this hopeful article about cutting edge cancer immunotherapies, courtesy Fred Hutchinson Cancer Research Center: Cancer immunotherapy’s untapped potential inspires optimism Xconomy Forum at Fred Hutch highlights excitement of recent progress, future promise April 24, 2014 By Dr. Sabrina Richards and Andrea Detter Cancer immunotherapy, buoyed by promising clinical data and a resurgence in research

24 04, 2014

Relaxation, exercise and nutrition webinar broadcast May 8th

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International Myeloma Foundation Support Group Director, Robin Tuohy, asked me to post information about an upcoming informational teleconference, sponsored by the IMF.  Glad to help get the word out, Robin! INTERNATIONAL MYELOMA FOUNDATION presents Living Well with Myeloma Teleconference Series “Living Well with Myeloma:  Stopping to Breathe While Moving Forward! The benefits of rest, relaxation,

22 04, 2014

22 year myeloma survivor shares longevity secrets

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It hasn't been easy.  22 year survivor, Jim Bond, credits four stem cell transplants (two autos and a pair of allos) along with new myeloma therapies for his longevity. Jim and his unflappable wife and caregiver, Kathleen, have been at this a long time.  They shared secrets about their challenging life together on this month's

21 04, 2014

“You guys are like rusty old trucks!”

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Joan is always busy taking care her husband and myeloma patient, Don, along with their rural home and garden in the Hocking Hills of Ohio .  She emails me daily, sharing frustrations about Don's doctors, the cold, lousy weather and Don's cantankerous demeanor. Don is a lot older than I am, but we have something

19 04, 2014

Mourning the loss of a true myeloma hero

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One of my closest friends died Thursday night.  Karl Vollstedt was the most generous and positive person that I've ever known. I met Karl--and his lovely wife, Lorraine--at the first multiple myeloma support group meeting I ever attended in the summer of 2007.  Karl had founded the Stillwater, Minnesota group three years before.  Don Wright,

18 04, 2014

More about dexamethasone

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I've recently received a lot of constructive criticism from readers that feel my doctors should reduce my weekly dexamethasone dose--or eliminate it altogether. I understand the risks of higher dose, long term use of any corticoid steroid.  But statistics clearly show the anti-myeloma benefit that dex brings to the table. Before I get started, here's

17 04, 2014

Medical marijuana: media bias and politics

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Coincidentally, Medpage Today ran a story about medical marijuana yesterday.  The focus?  How the medical establishment and media often take things out of context when it comes to cannabis. Here's an excerpt: Striking a Nerve: Bungling the Cannabis Story Published: Apr 16, 2014  By John Gever, Deputy Managing Editor, MedPage Today Correlation does not equal causation,

16 04, 2014

Dr. Donald Abrams: “Cannabis does not cure cancer.”

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What a fascinating, enlightening conversation!  An hour long broadcast wasn't enough time to cover Cannabis for Cancer. Dr. Donald I. Abrams is a cancer and integrative medicine specialist at the UCSF Osher Center for Integrative Medicine at Mount Zion. He provides integrative medicine consultations for cancer patients and has completed research in complementary and alternative

14 04, 2014

Medical Update: Settling in for a long, slow fight

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"How am I doing?" I'm often asked; by email, in person or on the phone.  Here's an update. Dr. Malhotra is now running a SPEP test (measures my M-spike) every two weeks.  This week's results: I remained at a steady 0.4, same as the last test that had dropped from 0.5 the month before. I'm

13 04, 2014

Don’t miss controversial Cure Talk broadcasts this week

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This is a very important broadcast week on Cure Talk Radio.  Monday, our Myeloma Cure Panel will discuss treating high risk multiple myeloma with Mayo Clinic expert Dr. Rafael Fonseca.  Tuesday, I host what should be a fascinating program about using marijuana for cancer patients with Dr. Donald Abrams. Monday's broadcast is at 6 PM