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Monthly Archives: May 2014

31 05, 2014

MMRF excited about new myeloma therapy, SAR650984

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Normal 0 false false false EN-US X-NONE X-NONE MicrosoftInternetExplorer4 Walter Capone, President of the Multiple Myeloma Research Foundation (MMRF), is excited about a new myeloma therapy: SAR650984.  He mentioned this exciting new therapeutic option for heavily pretreated multiple myeloma patients while we were working together in Tampa two weeks ago. Here's the MMRF's press release

29 05, 2014

Truck loaded and on our way!

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As I mentioned in a post on May 21, we have planned three moving days.  The first was a preliminary move to get needed tools, bedding and that sort of thing over to the new "fixer" on Fernandina Beach.  Today's is "the big one;" three strong guys and a big truck. And the third?  My

28 05, 2014

Could genetics reveal which patients are more likely to develop ONJ?

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The focus of last night's on-air myeloma support group meeting was osteonecrosis of the jaw, better known as ONJ or BRONJ.  ONJ is a potentially serious side effect experienced by some patients while using bisphosphonates like Zometa and Aredia. Myeloma survivor and retired dentist, John Killip, discussed OMJ at length, including ways to prevent it

27 05, 2014

On-air myeloma support group meeting broadcast tonight at 6 PM Eastern

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Time for another monthly support group broadcast.  I've lost two dear friends since our last broadcast: Karl Vollstedt and Sandy Hirsch.  I'll be writing about both of them again soon.  Looking forward to hearing from some of you that knew them, too. The topic of tonight's hour long meeting is the concern many patients have

25 05, 2014

Rest in peace, Myeloma Angel

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The joy I felt from yesterday's fun, frivolous post quickly gave was to an overwhelming wave of sadness.  My dear friend, Millennium Patient Ambassador and broadcast myeloma support group member, Sandy Hirsch, died earlier this weekend from complications associated with her high risk multiple myeloma. Sandy was kind enough to travel down to Florida from

24 05, 2014

This reader has the right idea!

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Last March, readers Dick and Wendy traveled all the way from Oregon to join us at the 1st Annual Myeloma Beach Party in Tampa.  Unwilling to let multiple myeloma slow them down, the couple recently emailed me this picture from Hawaii: His short email read: Hi Pat, Your beach party bag made it all the

21 05, 2014



Today is the first of three "moving days."  I'm taking a load over by van this morning, then picking up our good friends, Ed and Michele, at the airport.  They're flying in to help us move and get settled. What next?  Back home to get ready for the official move next week. Yesterday I shared

19 05, 2014

Q and A about exciting new measles virotherapy

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The star of last week's successful blockbuster measles therapy announcement has been labeled MV-NIS. The acronym represents the "oncolytic measles virus (MV) derived from an attenuated Edmonston lineage vaccine strain (MV-Edm) that was adapted to grow on human cancer (HeLa) cells, then engineered to express the human thyroidal sodium iodide symporter (NIS) so that its

14 05, 2014

Immunotherapy meets individualized medicine

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Dr. Craig Hofmeister's T-cell therapy project garnered some well earned attention this week. Dr. Hofmeister's Ohio State University research team is one of several working on ways to use T-cells to fight cancer.  And fortunately for us, much of the work centers on multiple myeloma.  Here's an article that ran in Monday's Science World Report:

12 05, 2014

Hope for a cure: Tom’s allo transplant journey (Part Seventeen)

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