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Categorized | Inspirational


Posted on July 12 2014 by Pat Killingsworth | 1,524 views

Joyce from Minnesota has reluctantly agreed to let me share the lovely poem she sent me yesterday, responding to my last two posts.  In it, Joyce puts into words what I’ve been trying to say for years:


Someday, we won’t have to spend what precious time we have left on earth to pour through medical application forms and documents to find out what’s covered and what’s not. 

Someday, we won’t have to be an “intellectual genius” to figure out when to apply for Medicare Part B, frantically keeping our proof of credible insurance, so that we’re not charged the 10% extra per year for Medicare Part B for every year we didn’t have it.

Someday, we won’t have to spend time figuring out whether it’s better to keep our private insurance, (yes it is) if we’re lucky enough to have it, rather than going with a supplement and Medicare Parts A & B and worrying about diving into the donut hole in January, only to come up for air and find out that 5% of our catastrophic drug is not covered… let’s see that’s another $400.00 a month… surprise!

Someday, we won’t have to continually worry about whether next year we can afford our private insurance–those of us lucky enough to have it.

Someday, we won’t have to worry about, “Can we keep the same Doctor, please!  The one that saved my life!”

Someday, we won’t be living on the financial “edge” of things.   I didn’t choose to be disabled!

Some day, I won’t be so angry about this!

Someday, move over; I might be forced into the human services line. Yikes!

Some day, I wish I would wake up and this would just all be a bad dream. Some day, I pray that all of this is easier for all of us.

Thanks for your post today.

No, thank you, Joyce!   Heartfelt, poignant and real.

“I didn’t choose to be disabled.”  She writes.  So true.  I’m tearing up now…

Let me close by adding this:

I didn’t choose to have multiple myeloma–and it’s not my fault!

Feel good and keep smiling!  Pat

11 Comments For This Post

  1. Barb D. Says:

    Thank you Joyce, so well said!

  2. Kate Eckles Says:

    Tears on a Sat morning!! Thank you, Joyce and Pat, for sharing! Someday, in the world to come, there will be no more myeloma…no more broken bones due to cancerous lesions…no more unpleasant side effects from more taxing stem cell transplants that may or may not work…Someday!! Until then, keep fighting and know that you are not alone!!!

  3. kathym Says:

    The truth is powerful and inspiring. Here’s a thought Pat, maybe Joyce would consider sending a copy to OUR Congress, and “cc:” all the major health care insurers! I am sure you could get all of us to sign on this one. We the people, we the consumer, we the american tax payer…

  4. Brian Helstien Says:

    I second Katym’s post.

  5. Maria Says:

    Having Cancer is bad enough without worrying about health insurance. It is scary. My major conserne should not be what happens if I loose my job and my health insurance.

  6. Pat Killingsworth Says:

    AMEN! Heartfelt thoughts about such an unfortunate bond we all share…

  7. Joyce Says:

    I mis-wrote in the 3rd paragraph, 4th line down. It should have said “for air and find out that 5% of our catastrophic drug is NOT covered, let’s see that’s another $400 per month…..surprise!

    Thanks to all above for your kind comments.

  8. Pat Killingsworth Says:

    I’ll change it for you, Joyce. It isn’t the specifics about your poem that touches us all; it’s how relateable it is.

  9. Denise Says:

    This rings true for so many of us. The things we have to worry about, constantly, instead of making the most of every day, living in the moment, making great memories for our kids. There are so many things I want to do with Tim and our daughter, while he is still well enough, but, alas, we are not wealthy and need to keep our health insurance and our house. Just no easy way. I feel terrible that my husband spends all his time working and so little time doing things he really wants to do. We left on vacation not knowing if our group health ins. policy, through Tim’s business, was going to be cancelled. Know why? Because our employee took an extra week vacation, in addition to the 2 weeks he is paid for(he won a free trip while he was on his honeymoon.) He was also in the hospital and out sick for a few days with his Chrohn’s disease, AND we own a wood flooring business. No one has their floors done during Christmas and New Year’s weeks. We also got snowed in for a week in February and had to postpone the job for that week. Our insurance company was trying to claim that our employee was not full time because there were 1 or 2 quarters that he did not work 13 weeks. He worked 12 or 11 in 2 out of the last 5 quarters. They were going to drop us. REALLY?!!! I just heard yesterday that they will keep us on. Unbelievable.

  10. Pat Killingsworth Says:

    I’m sure your story rings true for many of our readers. Sure does for me! Thanks, Denise! Glad things seem to be working out.

  11. Joyce Says:

    So sorry that you’ve had those extra worries. I too worry about my husband who is 16 years older than I am. I am 60 he is 76 and trying to work full time on some bad knees, that he’s not enjoying his life. The plan was for me to work til I was 70 and he to retire first…well so much for well laid plans. The “C” word sent this out the window.

    Just a suggestion, but you might want to check with the Insurance Commissioner in your State, some things they try to do are not always legal. For example I found out that if I became disabled on my group policy through my work, I CANNOT be cancelled and I can continue to stay on COBRA, unless I don’t pay the premium or for some reason they quit offering that type of policy to the whole group. Now this is true in MN, but I don’t know what other states.

    Will keep you and your family in my prayers.

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