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Monthly Archives: August 2014

Home/2014/August
30 08, 2014

Just another day? Not today!

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Talk about an up-and-down day!  Today is our 27th anniversary.  It also kicks off the 2014 college football season, something that both Pattie and I are passionate about. Both University of Wisconsin grads, we follow Badger sports closely, traveling see a game or two each season.  Tonight UW opens the season in hostile territory against

28 08, 2014

An angel on my shoulder

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I'm sure everyone is familiar with this old saying.  I could argue that all of you--so many loyal and caring readers--are my "angels."  But today I experienced something mysterious and spiritual during radiation therapy. In the past, my radiation therapy sessions have been short and sweet, only lasting 10 or 15 minutes.  But for a

27 08, 2014

RESEARCH UPDATE: Kyrpolis and Total Therapy 3

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I have written a number of times about counter-intuitive research results involving progression free survival (PFS) and overall survival (OS).  Here's another key example. I chose not to write about recent data from FOCUS, a key Kyprolis trial.  The drug's manufacturer, Onyx/Amgen, is attempting to garner FDA approval for myeloma patients that have relapsed two

24 08, 2014

Proof multiple myeloma docs have personal lives, too

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Dr. Bart Barlogie is a myeloma legend.  Love him or hate him, his unbridled obsession for finding a multiple myeloma cure has been relentless. The father of Total Therapy, Dr. Barlogie has helped the University of Arkansas Medical School (UAMS) develop one of the world's foremost multiple myeloma treatment centers, known as the Myeloma Institute

23 08, 2014

Myeloma featured on Cure Talk broadcasts

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Wednesday our Cure Talk panel was fortunate to spend over an hour with Emory University's Dr. Sagar Lonial, a well known myeloma specialist.  The focus was on ways to treat high risk multiple myeloma patients most effectively. I was pleased by how well the hour went.  No real technical glitches.  Intelligent questions from our panel

22 08, 2014

Marking time by my pillbox

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I may have written before about how much I love my new, four row pillbox.  Room for the dozen of pills and capsules that I take morning, noon and before my evening meal. The fourth row is for bedtime; handy compartments to house things like Tuesday night's 10, 4 mg little green dexamethasone pills.  And

19 08, 2014

Patient Snapshot Update: Chuck from Georgia

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The promise of becoming part of exciting, new clinical trials can be intoxicating.  But most only work for less than half of the patients that sign up. Here's an update from a Patient Snapshot alumnus, Chuck.  Sounds like he's one of the unlucky ones: Pat, Rewinding to my last update: http://multiplemyelomablog.com/2014/05/patient-snapshot-update-chucks-challenging-myeloma-journey.html I was just starting

16 08, 2014

I’m sick…

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Never a dull moment.  I woke up last night with a 101 degree fever.  It's my fault; I pushed too hard this week. I'm not ashamed to admit that getting sick like this is unsettling.  I'm congested and an upset stomach makes it difficult to eat.  I spent the day sleeping and trying to stay

15 08, 2014

IP6 follow-up

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A few days ago I wrote a skeptical post about a supplement called IP6.  I have received a number of comments and emails supporting the use of IP6 since then.  I'm good with that.  It may or may not help slow the advance of multiple myeloma. Susierose kindly forwarded me this research article about IP6

13 08, 2014

Is immunosupplement, IP6, the real deal?

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Anyone familiar with a supplement called IP6?  A reader, Richard, swears it has stopped his myeloma in its tracks when other more conventional meds weren't helping at all. Myeloma Cinderella's suzierose must be in contact with Richard, too.  I see she wrote a post about it back in January: Dr. Shamsuddin Cancer Researcher and IP6

12 08, 2014

Myeloma patients deserve more services designed to improve their quality of life

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Palliative care is specialized medical care for people with serious illnesses. It focuses on providing patients with relief from the symptoms, pain, and stress of a serious illness—whatever the diagnosis. The goal is to improve quality of life for both the patient and the family. Often mistakenly identified as end-of-life or hospice therapy, palliative care is