Yesterday I promised to address the two most powerful weapons a myeloma patient have in his or her cognitive arsenals: counseling and psycho-therapeutic drugs. Listen. Good nutrition and supplements like curcumin may help slow myeloma down up front. But on the back end? It takes the most powerful therapeutic combinations to stop it. I feel
Regular reader and MMB contributor, Mark, an allogeneic stem cell transplant recipient, has already commented several times about the effects ongoing chemotherapy has on our cognitive abilities. Yes, Virginia, chemo brain is real! Up to this point, my chemo induced "fog" seemed to be cumulative; the result of years of never ending chemotherapy. It became
Well, we've all been lobbying for more "outside the box" thinking when it comes to myleloma therapy. I thought immunotherapy might be it. Still might be. But radio immunotherapy? Here's a press release from a Nordic oncology firm yesterday. Guess they don't worry about conflicts with Thanksgiving in Europe: Nordic Nanovector and Affibody Collaborate on
Happy Thanksiving! How about some good news? Just finished an awesome holiday meal with our extended family. But like most Thanksgivings, it wasn't perfect. Helping paint trim this afternoon, the paint can top exploded up and off as I shook it up, causing one of the biggest messes I've ever been a part of. Did
Let's start with some good news: my peripheral neuropathy and neutropenia (low mature white blood count or ANC) counts haven't been much of a problem on POM, especially since my dose has been cut from 4 mg to 3 mg. That doesn't mean I won't have to deal with one or both of them in
Yesterday I wrote that, "I’m planning a series of posts about how side effects can change the way we live our lives, along with a number of tips designed to help make them more manageable." This is my introductory installment. Over the past seven years I've personally experienced most of the common side effects caused
I wanted to give you a sneak peak of the next couple of weeks--crazy busy, both for me and the world of multiple myeloma research. The American Society of Hematology (ASH) annual meetings are in two weeks out in San Francisco. That means there should be a lot of pre-meeting buzz, then the data and
Recently I have experienced several disconcerting changes in my prescribed medication. In one case, pills that were once thin and white were now thicker and green. The bottle said that the medication was the same inside. But was it? What gives? The same thing happened to me twice in a two week span. It would
How refreshing; a myeloma doc that gets involved and gives back. Outstanding! BTN LiveBIG: IU professor goes the distance for myeloma By Laura Depta - BTN In his “day job,” Dr. Rafat Abonour is a professor of medicine and a researcher at Indiana University specializing in multiple myeloma, a rare blood cancer. But he’s also
Listin to brodcasts featuring myeloma’s best: Dr. Gareth Morgan (UAMS) and Dr Vincent Rajkumar Mayo Clinic
Sorry for the delay. Cure Talks (new name, updated site) has been under construction. Click on the link below: http://www.curetalks.com/event/rsvp/More-can-Cure-Myeloma-Treatment-with-Dr-Gareth-Morgan-/75/ Then drop down under first large graphic and click on the "go" arrow on the right side to listen. It's worth the trouble! Cure Talks Director, Priya Menon, promises access will be easier next time.
Last night's Cure Talks broadcast was both encouraging and overwhelming. Myeloma Institute of Research and Therapy (MIRT) Director, Dr. Gareth Morgan, spent a great deal of time discussing upcoming advances in myeloma therapy and diagnostics. This wasn't more of the same. Dr. Morgan revealed a number of new, innovative approaches being initiated now in Arkansas.
I've very excited! Yesterday my registration materials arrived for next month's American Society of Hematology (ASH) annual meetings in San Francisco. And like clockwork, researchers and pharmaceutical companies have started issuing press releases promoting presentations featuring clinical trial results to be presented there. Here are two early examples. Keep in mind that a lot new
The next Cure Panel Talk Show Tuesday afternoon features Dr. Gareth Morgan. This is a really big deal and a great get; Dr. Morgan was recently named at Dr. Barlogie's replacement at the Myeloma Institute for Research and Therapy (MIRT) in Arkansas. Total Therapy and the possibility that it can cure some patients will be
I want to reassure so many of you that emailed and contacted me via Facebook that I'm OK. But it's a good thing I dropped everything and drove down to Mayo Clinic yesterday afternoon. It was an interesting experience. Please note that if you're going to live on an Island--even a large, accessible one like
Who ever thought hearing that I had skin cancer would be good news? Mayo Clinic dermatology resident, Dr. Stephanie Ortman, called me yesterday afternoon with results from the three biopsies she carefully took last week. To review, Dr. Ortman removed tissue from three suspicious spots on my left side: on my cheek, my "other" cheek
He's back! My dear friend and spiritual leader, Danny Parker, has had a tough year. After some subtle arm twisting, Danny agreed to share his experiences with our MMB readers: Thoughts from the Edge of Relapse Pat has been asking me in recent weeks to say something about my disappearance from the myeloma world. Of
If you follow my blog, you know I'm excited about the possibility of smaller, more targeted and nimble foundations. Here's a wonderful example of how this works. I met Sarah Kaufman-Fink four or five years ago at a myeloma patient meeting in Boston. At the time she was the youngest myeloma patient I had ever
Doctors at Mayo Clinic, Jacksonville, biopsied three different spots today. Good thing Dr. Roy pulled some strings to get me in so quickly! I should know which ones need further attention next week. One was, "possibly melanoma." According to the attractive young resident that did the exam; an opinion that was shared by the attending.
Sometimes getting a consult isn't easy. I was diagnosed with melanoma in the fall of 2011. A nurse admitted it was most likely a second cancer, a result of long term Revlimid use. A compromised immune system and the Florida Sun don't mix! I eventually had surgery, and a sizable portion of my left ear
Something concerning happened to me Sunday afternoon. Pattie and I were driving together running errands. I needed to turnaround on the main route into town and head back home. I thought that I was thinking ahead and paying attention. U-turns are legal from most turn lanes in Florida. This one was no exception. But there