Please Subscribe to get a daily link to Pat's blog via email


Your privacy is important to us. We will never spam you and keep your personal data secure.

Monthly Archives: June 2015

30 06, 2015

Stem cell harvest off to a great start!

Tags: , |15 Comments

I wouldn't have believed it if I hadn't just spent five hours hooked up to a brand new, state-of-the-art apheresis machine. "Let's run the machine all out," I overheard lead tech, Tim, instruct Kati, my nurse.  I didn't think anything of it at the time, but after 30 minutes I could tell this wouldn't be

29 06, 2015

Myeloma News Update

Tags: , , |2 Comments

So much happened today--and it isn't over.  I'm heading to the BMT unit for yet another neupogen and Mozobil injection in a few moments. I'll post a medical update tomorrow morning.  In the meantime, there's been some myeloma related news.  The European Medicines Agency (EMA) is expected to approve panobinostat for use in Europe in

28 06, 2015

Busy day tomorrow…

Tags: , , |12 Comments

I've got several good friends, and a tech volunteer, working on Pat's Myeloma Beach Party online registration.  We had a  few glitches last year that I wanted to avoid.  Unfortunately, instead of producing and testing things on a practice site, the first draft appeared live.  There are still bugs to be worked out.  But the

26 06, 2015

Play the odds: What happens if your therapy doesn’t work?

Tags: , , , , , , |23 Comments

I wanted to backtrack and focus on what may be the most important factor when analyzing the state of my multiple myeloma: my dwindling number of therapy options. Yesterday I wrote: Apparently my current therapy combination of Cytoxan, carfilzomib (Kyprolis) and dex (CCd) was not as effective as Dr. Tricot had hoped.  He told me

23 06, 2015

International research produces promising new immunotherapy

Tags: , , , |13 Comments

With so much focus on me and my Iowa trip, I'm afraid I've been neglecting some important multiple myeloma news.  Before I share details about my bone marrow biopsy early this morning, I want to help you get caught up. Here's a press release I received yesterday, confirming that ImMucin--an experimental new anti-myeloma drug--has been

22 06, 2015

Your support helping me stay the course

Tags: |22 Comments

My day has had more emotional ups-and-downs than a roller coaster--and the afternoon isn't even over! Everything went without a hitch this morning with my PET scan.  Dr. Tricot will have the results when we meet on Thursday. I had an opportunity to speak with his lead nurses, Paula and Sonya, before I left.  Everyone

21 06, 2015

Ready or not, Iowa here I come!

Tags: , |31 Comments

I spiked a fever Friday afternoon.  I thought it was because I finished mowing the lawn in the heat.  But Saturday the fever and headache returned.  So did dark, root beer colored urine.  Yep.  My UTI has made a comeback. Not feeling well didn't make it easy getting packed and ready to leave for Iowa

17 06, 2015

More ways to limit GVHD. But does that negate graft vs myeloma effect?

Tags: , , |7 Comments

There is an all out debate going on among doctors and researchers in bone marrow transplant units countrywide.  Does an allo (donor) stem cell transplant need some degree of graft vs host disease in order to battle destroy multiple myeloma? Often called graft vs myeloma effect, the theory has been held for decades: in order

13 06, 2015

It’s official: panobinostat works!

Tags: , , |2 Comments

Novartis released final data from its PANORAMA Phase 3 panobinostat (Farydak) trial in advance of meetings (similar to ASCO or ASH) in Europe later this month: Novartis data at EHA show increased PFS benefit of Farydak® in new subgroup of patients with previously treated multiple myeloma - Panobinostat combination more than doubled median PFS benefit

10 06, 2015

Baseball great Mel Stottlemyre facing relapse

Tags: , , , |3 Comments

Before I pass along information about Mel Stottlemyre, I wanted to follow-up on my post about daratumumab from yesterday; the companies involved have officially applied for FDA approval. I noticed the Myeloma Beacon ran a story about it; glad they're still relevant and on top of breaking news.  But for a slightly different business slant,

9 06, 2015

Dr. Rajkumar shares list of most important ASCO trials

Tags: , , , |7 Comments

Renowned Tweeter, Cindy from New Jersey, @Myeloma Teacher, passed along Dr. Vincent Rajkumar's Top Seven myeloma-related abstracts from this year's American Society of Clinical Oncology annual meetings in Chicago: Top 7 #ASCO15 #Myeloma Abstracts - @VincentRK 7- Panorama - tml 6- Elo- Vd vs Vd - tml 5- CHAMPION - 4-CALGB Len