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Thank you rant

Thank you rant

A number of you have already contributed to help CrowdCare Foundation fund a pair of cutting edge T cell trials in Germany and John Hopkins in Baltimore. THANK YOU! For those of you on-the-fence, I wanted to share some good news.

A friend has agreed to match any contribution—dollar for dollar—up to a total of $50,000. Simply put, a $100 donation doubles to $200.

Here’s the link to my donation page:

PAT and PATTIEI’ll admit it. I’m a coupon guy–and a double dipper. Nothing I like more than doing something that pays off twice.

So Pattie and I are going to donate again today.

I should have posted this sooner; my friend’s matching offer only runs through Sunday.

We’re all inundated with opportunities to donate to cancer related causes. I’m sure most all are worthwhile: Light the Night, team runs, walks, golf and cycling events. The IMF and MMRF ask for donations at least once a month.

The thing I like about our CrowdCare Foundation effort: 100% of the money raised goes directly to support these two hopeful clinical trials. I can’t think of a better way to help ourselves and others in the myeloma community.

I’m already uncomfortable hitting up my readers for donations. That’s why I rarely post about them, even though there are so many worthy fundraising opportunities. I promise I won’t do it very often.

Again, thanks for those of you that have donated. And not just to help fund CrowdCare’s high risk, T cell trials. I understand if you decide you’ve given enough; hopefully supporting the IMF, MMRF, MMORE or one of many LLS sponsored events. I know several readers raise money to help the American Cancer Society’s Hope Lodge program. Awesome!

Don’t forget the LLS. The Leukemia and Lymphoma Society is the only one of the “big three” to give money back to patients. The LLS Co-Pay Assistance Program is amazing! Did you know the word, “myeloma,” was originally part of their name? I don’t know who made the decision to drop it, but just because the name is gone doesn’t mean the group hasn’t been supportive of myeloma patients and caregivers over the years.

So many good causes. Isn’t it too bad it takes this type of commitment in time and treasure for us to make any progress that isn’t funded by drug companies or dwindling government support? Hopefully the NIH will get more funding in the next budget cycle. Don’t forget we’ll be rating politicians based on how responsive they are to the cancer community’s needs.

The multiple myeloma community is exceptional. You get cancer, then you’re expected to help pay for research that may or may not help save your life–and still work hard to educate yourself and others, including health care professionals.

I know one thing: I appreciate your support and prayers as I fight to extend my life. I appreciate  your hard work, reading blogs and researching new myeloma therapies, all while fighting through pain and/or battling side effects–or caregivers helping someone that is. I appreciate your generous contributions of time and money that supports so many great causes.

I’ve already used “Awesome!” and “Amazing!” What about phenomenal or mind-blowing? All I know is, making so many special friends over the years has made a big difference in my life, helping me push on.

Thank you.

Feel good and keep smiling! Pat