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Yearly Archives: 2016

Home/2016
5 12, 2016

Pat’s Myeloma Survival School 2017

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It's Time to come back to Fernandina Beach, FL for the 2017 Pat's Myeloma Survival School!  The 2017 event will mark our 4th Annual Myeloma weekend and we are very excited about what we have planned for all of you! This is a great weekend to visit with old friends while making new ones along

30 03, 2016

It’s Almost Time!

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  We are so excited to have the 2016 Pat's Myeloma Survival School only 2 days away!  It is so inspiring hearing from all of you that are attending and feel the excitement you share with us as the time gets closer.  Here is a picture for you to enjoy of an Amelia Island sunrise!

26 03, 2016

We Still Have Room!

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We will all be meeting in Fernandina Beach, FL next Friday already! The excitement continues to grow as we continue to get everything in place. The great news is that we still have some room left!  If you have been considering joining us or know someone that has, we have room for you!  Don't wait

22 03, 2016

We are only 10 days away!

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Can you believe it?  In 10 days, we will all be gathering for the 2016 Pat's Myeloma Survival School in Fernandina Beach, FL.  We are so excited to see everyone and share great information for both patients and caregivers from our amazing speakers. We are looking forward to spending time with all of our friends,

9 03, 2016

Great News-Focus Groups are Back!

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Fernandina Beach Women's Club The excitement continues to grow as we get closer to Pat's Myeloma Survival School 2016!  Although previous year's have all been amazing, this year holds a very special meaning to us all.  We are looking forward to spending time with all of you! First, for the great news!  The Focus Groups

22 02, 2016

Countdown Has Begun!

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We would first like to thank everyone for the outpouring of thoughts, prayers and support during this time.  They mean more than you could ever know and we hold them close to our hearts every day.  As we move forward planning the event that was so important to Pat, your support gives us strength and

12 02, 2016

A Special Tribute to an Incredible Friend

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I only met Pat twice, but I feel like I’ve known him forever. We shared a passion for our native state of Wisconsin. Last time the Badger football team got into the Rose Bowl, I invited Pat and Pattie to California so we could all go to the game together. They did and, despite losing

8 02, 2016

I’m not dead yet!

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The commonly used name here for plasmapheresis is plasma exchange. I"m being hooked up for my third, three hour round of plasma exchange. Honestly, I'm in pretty bad shape. I'm not eating. I could give you a lot of technical information about my situation, but the bottom line is this: Five doctors and none can

6 02, 2016

My world turned upside down

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As difficult as my myeloma journey has become, the one silver lining has always been my excellent kidneys; no worries on that front. That all changed today. I learned today that my kidneys are/have failed. I was devastated to get the news; with both Pattie and her sister working for Davita Dialysis, I've heard horror

5 02, 2016

Medical mystery worthy of reality TV

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I'm a medical mystery. Why should I be surprised? Some of the medical news is good. But overshadowing basic improvement are a long list of unanswered questions. I've never had more blood drawn in my life! Let me pause here to apologize to a number of readers that commented following yesterday's post. Our WordPress blogging

4 02, 2016

Enough drama already!

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Ongoing struggles recovering from my second stem cell transplant in six months make it easy to write compelling posts. But enough already! I was admitted to our local Baptist hospital last night after an emergency room visit that revealed I had pneumonia that was getting worse by the hour. Of course Pattie had to drag

27 01, 2016

Isn’t battling myeloma hard enough without having to raise money, too?

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An amazing over-the-top (pun intended) multiple myeloma awareness and fundraising mountain climbing adventure scaling Mr. Kilimanjaro sponsored by the MMRF: https://m.facebook.com/media/set/?set=a.10153334017497918&type=3&l=f16f8c5178 February 1st, CrowdCare Foundation will launch a safer, but just as exciting Muscles for Myeloma Challenge fundraiser. Our Pat's Myeloma Beach Walk will be part of the extended project. More about that soon. Both

24 01, 2016

FDA expands access to Kyprolis. Big news?

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Friday the FDA expanded it's approval of how and when carfilzomib (Kyprolis) can be used. Trumpets sounded. I counted eleven industry news outlets that led with the story. My reaction? Big yawn. I wasn't even going to post about it. But Saturday a half dozen more publications ran stories about it, so I felt we