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Monthly Archives: January 2016

Home/2016/January
27 01, 2016

Isn’t battling myeloma hard enough without having to raise money, too?

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An amazing over-the-top (pun intended) multiple myeloma awareness and fundraising mountain climbing adventure scaling Mr. Kilimanjaro sponsored by the MMRF: https://m.facebook.com/media/set/?set=a.10153334017497918&type=3&l=f16f8c5178 February 1st, CrowdCare Foundation will launch a safer, but just as exciting Muscles for Myeloma Challenge fundraiser. Our Pat's Myeloma Beach Walk will be part of the extended project. More about that soon. Both

24 01, 2016

FDA expands access to Kyprolis. Big news?

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Friday the FDA expanded it's approval of how and when carfilzomib (Kyprolis) can be used. Trumpets sounded. I counted eleven industry news outlets that led with the story. My reaction? Big yawn. I wasn't even going to post about it. But Saturday a half dozen more publications ran stories about it, so I felt we

21 01, 2016

MMRF 2015 myeloma year in review

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I'm part of a Cure Talk Radio broadcast in a few hours featuring Multiple Myeloma Research Foundation co-founder, Anne Quinn Young. If you can't listen live, I'll pass along a link so you an listen later. Here's a short rundown about the show: 2015 saw a lot of action in the Myeloma world. Four new

20 01, 2016

It shouldn’t be so hard to get excellent care

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Reliable healthcare. One would think all of the money spent on our behalf would guarantee a consistent standard of care. Au contraire! It's disheartening for me to admit it, but without a dedicated caregiver advocate--or patients like us that work tirelessly to stay up-to-date--it's likely that the care received by someone who isn't paying attention

18 01, 2016

Medical Update: Stinky news

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Rough weekend. As I explained in a post last week, I'm not used to backsliding--post transplant--once I start improving. Once again, diarrhea is a real problem. Imodium or Lomotil is only slowing things down for three hours at a time, making this the "I'm in danger of becoming dehydrated," type of diarrhea. Is that why

16 01, 2016

Blood Glucose, MGUS, Myeloma & Metformin (Part Nine)

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A lot has happened since I ran two of the final installments about the importance of controlling blood glucose by Danny Parker: Blood Glucose, MGUS, Myeloma & Metformin (Part Seven and Eight)   ASH, unscheduled trips to the ICU, Iowa City drama. A lot went wrong in December. I'm still having trouble bouncing back from

8 01, 2016

Rest in peace dearest Sara

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These are the posts I dread writing. One of my closest myeloma friends, Sara Lathan, from Charlotte, North Carolina, lost her extended fight with multiple myeloma earlier this week. I first met Sara after speaking to an awesome support group in Charlotte. Was it three years ago? Four years? They all seem to run together