Please Subscribe to get a daily link to Pat's blog via email

Subscribe!

Your privacy is important to us. We will never spam you and keep your personal data secure.

Tough day for me and my blood

Posted on February 06 2016 by Pat Killingsworth | 4,508 views

Plasmapheresis and dialysis on the same day? My body is buzzing; literally buzzing. But it all seems to be working.

I’ve pivoted emotionally. I’ve got to do what I need to do. Thank God for my new, three line catheter! My neck is  sore, but no big needles. Love that!

Dialysis is starting to hit me hard. I had better wrap up.

The million dollar question: What’s causing this? Infection? Chemotherapy? Two grueling stem cell transplants? Pattie and  I met two new doctors today. Five different doctors are trying to solve the mystery of what’s gone wrong, I’ll share what they had to say, but I left my notes upstairs. Pattie was there and jotted things down, too. Hopefully I’ll feel up to doing a technical post on Super Bowl Sunday–not as exciting as new TV ads, but it should be enlightening.

The best part of my new journey? Check out this amazing view of the St. John’s River from my room in downtown Jacksonville:

0206161422

This was my view during plasmapheresis this afternoon; they bring their machine and staff to me. Dialysis? I’m in the bowels of the hospital. Techs  took me for a ride downstairs in my own hospital bed. Nice enough, but no windows or view like that. I’ll be back upstairs soon enough. I need to kickback and ride this thing out.

Feel good and keep smiling! Pat

16 Comments For This Post

  1. Greg Says:

    Wish I could help lessen your burden my friend!

    Keep your head clear and you’ll get through this.

  2. Judy Faltz Says:

    There are many of us who would also like to help ease your burden, Pat.

  3. Andy Sninsky Says:

    You too Pat. Feel good and keep smiling and know you have many fans rooting for you to get through this. You are a miracle man in that you write these notes while down and low. I am looking forward to seeing you both soon.
    Andy

  4. Nancy Shamanna Says:

    This just sounds miserable, Pat. I hope that you and Pattie can get through this soon, and that you will be feeling better again soon.

  5. Jeannie Says:

    Nice view! The body has an amazing ability to rebound, especially the kidneys. Keep on truckin’ Pat. You and your wife are rockstars and heroes to so many!

  6. nancy roeser Says:

    you will feel better and hope they get the reason why kidney issues and address those soon. Prayers Dave and Nancy

  7. Sue Says:

    Thoughts your way, Pat. Stay in the fight.

    Sue

  8. Pat Killingsworth Says:

    Amazing support from so many online friends. Think it doesn’t make a difference? I’m facing another day of decisions and grueling pheresis exchange and dialysis. Maybe two units of blood? I won’t even be myself when this is done. My blood doesn’t know which is up!

  9. Earl McKenzie Says:

    Hi Pat,

    You have written in the past that you dreaded the thought of undergoing dialysis…was it as bad as you expected?

    All the best!

    Earl

  10. Pat Killingsworth Says:

    I’m uplifted by your support! Earl asked about how I responded to dialysis. Earl, it isn’t individual treatments. Warn out a bit after, but no big deal. The issue is longer term. Now they’re using catheter in my neck. For infections concerns, I would need to go to home hemo or three times weekly in the clinic; all involve big needles and take a lot of time. You can do another form of home dialysis (I forget the name) but that’s 8 hours a day and you have a tube running out of your distended belly. Can I co it? Of course. Just a lot while battling myeloma, too, don’t you think?

  11. Efra Says:

    Hey pat, as i say, some like you my kidneys stop work complitly, i ha to do phresis and dualysis in the some day for almost 3 weeks, it was hard,nut i make it, and the kidneys today are working fine
    Prey for you
    Be strong
    Sending love and happiness
    Efra
    Israel

  12. Pat Killingsworth Says:

    Encouraging, Efra. Hello Israel!

  13. Jeff Wyant Says:

    Going through a lot of mystery in my myeloma journey too. What we can all be grateful for is that group of consultive doctors always seem to come up with a therapy or treatment to make progress on our survival, although it may not always be pleasant to endure. I am grateful for all the hardworking doctors and nurses that fight the battle with us. Prayers for a speedy recovery from your friends in Florida.

  14. Cindy Richetti Says:

    Pat, you are like the Denver Broncos. Kicking butt when the odds are totally against them! You can do this. Stay tough and ride this out!

  15. Julie Says:

    Wow Pat, just Wow! I cannot believe what you have and are enduring! You are so tough. Sure makes me question what I would do in your circumstances… I have so much respect for your strength and ability to handle everything you are, and continue to, and still write and blog about it!! Simply put, you’re amazing and Myeloma sucks!!! Hang in there Pat, and thank you so much for sharing all your “unwanted adventures” in Myelomaland.

  16. Pat Swift Says:

    Pat, when I am stymied or stuck or exhausted w myeloma, I think of your courage, humor and honesty. Your well chosen words are good mojo, pal. You speak for many of us. Take deep breaths. Your community is with you as you endure the current round of slings and arrows. We are right there w you, bro. One love, one heart to you and Pattie.

Leave a Reply


Follow On Twitter!

Follow HelpWithMyeloma on Twitter

Archives