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Pat’s Myeloma Survival School 2017

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Pat’s Myeloma Survival School 2017

It’s Time to come back to Fernandina Beach, FL for the 2017 Pat’s Myeloma Survival School!  The 2017 event will mark our 4th Annual Myeloma weekend and we are very excited about what we have planned for all of you!

This is a great weekend to visit with old friends while making new ones along the way.  We truly love our Myeloma Community that has been created on this journey together and look forward to seeing each of you in March!

Come and join us for the most up to date information from oncologists, researchers, pharmaceutical information and options, physical therapy and exercise, diet and overall well-being, to live a longer and better quality of life with Multiple Myeloma. We have a weekend full of speakers sharing information and answering questions you may have all while enjoying a relaxed and fun environment with friends, old and new. Here is a sample of topics and speakers we have lined up:

Friday, March 3rd

Theme of the day “Physical Therapy”

We have a very special treat! We have Melanie House, DPT, NCS from Department of Rehabilitation Therapies, University of Iowa Hospitals and Clinics, Adult Bone Marrow Transplant Unit, Iowa City, IA, and Daphne Moeller, LMT from Coastal Massage Therapy, directing  a “Free personalized therapeutic massage evaluation and treatment” specifically designed for the person with Multiple Myeloma. They will have support from Leah Lenz, MSPT and Tony Crawford, LMT. Massages will be provided by local Massage Therapists.  Patients and their caregivers are eligible for this special offer, included with their $60 Registration Fee. There are a limited number of spaces for this so please REGISTER TODAY to reserve your space!

To Register Click Here:

To Register and reserve your seat for the event, Click Here:

http://Pat’s Myeloma Survival School 2017

To Register for the Massage and Evaluation, Click Here:

http://Pat’s Myeloma Survival School Massage and Evaluation 2017

Melanie House will then be speaking on “Indications and Precautions for Manual Therapy with Multiple Myeloma”, followed by breakout sessions of:

#1 “The Stem Cell Transplant Experience”, John Killip, DDS, MMJP Program, Sanofi
#2 “Lessons Learned: A PT’s Journey, As Patient, Through Tandem Transplant”, Leah Lenz, MSPT, CEP, CSCS
#3 “Massage Demonstration for Caregivers” Daphne Moeller, LMT, Coastal Massage Therapym Fernandina Beach, FL, Tony Crawford, LMT, Jacksonville, FL

Social Time to Spend with Friends

Dinner Program:

“Black Swan Research Initiative”, Anne Pacowta, Regional Director, International Myeloma Foundation

“New Technologies for Precision Medicine in Myeloma”, Brian VanNess PHD; Dept of Genetics, Biology and Development, University of Minnesota Cancer Center


Saturday, March 4th

We will also have our Silent Auction and Beach Walk as we do each year with proceeds to benefit “CrowdCare” to fund much needed clinical trials!  Join us to walk in honor of all those before us, those that continue the Multiple Myeloma fight and those that will be part of the fight in the future.  Together, we CAN make a difference!

To Register for the Beach Walk on Saturday Morning, click here:

Once we return from the Beach Walk and had breakfast:

“Basic Survival Strategies” Dave Visel, “The Multiple Myeloma Survival Guide”
“Survivorship Care for Multiple Myeloma Patients and Caregivers” Tracy Bonds, RN, Clinical Nurse Educator, Onyx Pharmaceuticals

“The CrowdCare Mission” Jenny Ahlstrom, CrowdCare (Remember Silent Auction Proceeds go to CrowdCare!)

“Leading Clinical Trials for Myeloma Patients and what these Trials are Teaching Us”

“Developments in Myeloma Therapies” Dr. Asher Chanan-Khan, MD: Professor and Chair, Hematology/Oncology, Mayo Clinic, Jacksonville

“Protect Your Kidneys” Mary Doyle Faculty Administrator and Maria Mercado, Patient Liason, New Port Richie Kidney Center, New Port Richie, FL

“Preventing Osteonecrosis of the Jaw” John Killip, DDS, Myeloma Patient, Professor Emeritus, University of Missouri, School of Dentistry, Kansas City, MO

“Understanding Lab Values” Kena Miller, RN, Takeda Oncology

“Taking Care of the Caregiver” Ann Pacowta, Regional Director, International Myeloma Foundation

“The Stem Cell Transplant Experience” John Killip, DDS, MMJP Program, Sanofi

“Empliciti” Bristol Myers Squibb

“A Myeloma patient’s war on Myeloma” Tony Blau, Professor of Medicine/Hematology,

“When Myeloma Hits Home” Sibel Blau, MD, Medical Director, Rainier Hematology-Oncology, Clinical Associate Professor, Division of Hematology
University of Washington

Sunday, March 5th
“MMRF Research Update” Anne Quinn Young, MPH, VP, Development and Strategic Partnerships, MMRF, Norwalk, CT

“Promising Myeloma Drug Research” Brian VanNess, PhD, Head, Dept of Genetics, Cell, Biology and Development, University of MN Cancer Center

“My Life is Worth It” Bob Tufts, Myeloma Patient, Former Major League Baseball Player, Now teaches at three East Coast Universities, talks to us about values and goals.

“Plan’s For Next Year” Open Discussion

See you in Fernandina Beach FL!


With the amazing event we have planned for 2017, we urge you to register as soon as possible to reserve your seat!  We will be posting hotel information shortly so you are able to get your room reserved as well.