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25 02, 2017

A Week From Today!


Fernandina Beach Women's Club               This is where we will all be gathered next Saturday!  The Fernandina Beach Women's Club.  We are so excited to see everyone and share hugs of support!  We will enjoy food, fun and gain some very helpful information in the process. We

13 02, 2017

Less than 3 Weeks to Fernandina Beach!


Hello Everyone! We are so excited that we will all be together in Fernandina Beach, FL in less than 3 weeks! We still have seats available for both the event and the massage so please, if you haven't registered yet, I urge you to do so as soon as possible. Seats fill up fast the

2 02, 2017

We Are Only 28 Days Away!


  Can you believe it? Time is going by so fast!  If you have not registered yet, we urge you to do so as soon as possible!  We are way ahead of where we were this time last year with registrations and space is filling up.  Once space is gone, it is gone, so please

24 01, 2017

Countdown Has Begun!


We are officially 40 days from the 2017 Pat's Myeloma Survival School in Fernandina Beach, FL!  Time is going so fast as preparations continue for the event. We are now close to the cut off dates to take advantage of the Group Rates.  The rates that have been negotiated are at a huge discount from

18 01, 2017

2017 Pat’s Myeloma Survival School Beach Walk


REMINDER-VERY IMPORTANT!! Hurry and get yourself registered ASAP for the Beach Walk this year!  Tell all your friends to join you!  We need to get shirts ordered for all of you and we need to know how many to order and which size. The cutoff to order them to have them in time for the

4 01, 2017

Hotel Information for Pat’s Myeloma Survival School 2017


As promised, here is the hotel information for the event.  There are cut off dates in place to take advantage of the group rates we have negotiated, so PLEASE make your reservation ASAP!  It's better to have a room reserved than wait and not have one available for you.  It's not a problem to cancel

5 12, 2016

Pat’s Myeloma Survival School 2017


It's Time to come back to Fernandina Beach, FL for the 2017 Pat's Myeloma Survival School!  The 2017 event will mark our 4th Annual Myeloma weekend and we are very excited about what we have planned for all of you! This is a great weekend to visit with old friends while making new ones along

30 03, 2016

It’s Almost Time!


  We are so excited to have the 2016 Pat's Myeloma Survival School only 2 days away!  It is so inspiring hearing from all of you that are attending and feel the excitement you share with us as the time gets closer.  Here is a picture for you to enjoy of an Amelia Island sunrise!

26 03, 2016

We Still Have Room!


We will all be meeting in Fernandina Beach, FL next Friday already! The excitement continues to grow as we continue to get everything in place. The great news is that we still have some room left!  If you have been considering joining us or know someone that has, we have room for you!  Don't wait

22 03, 2016

We are only 10 days away!


Can you believe it?  In 10 days, we will all be gathering for the 2016 Pat's Myeloma Survival School in Fernandina Beach, FL.  We are so excited to see everyone and share great information for both patients and caregivers from our amazing speakers. We are looking forward to spending time with all of our friends,

9 03, 2016

Great News-Focus Groups are Back!


Fernandina Beach Women's Club The excitement continues to grow as we get closer to Pat's Myeloma Survival School 2016!  Although previous year's have all been amazing, this year holds a very special meaning to us all.  We are looking forward to spending time with all of you! First, for the great news!  The Focus Groups

22 02, 2016

Countdown Has Begun!


We would first like to thank everyone for the outpouring of thoughts, prayers and support during this time.  They mean more than you could ever know and we hold them close to our hearts every day.  As we move forward planning the event that was so important to Pat, your support gives us strength and

12 02, 2016

A Special Tribute to an Incredible Friend


I only met Pat twice, but I feel like I’ve known him forever. We shared a passion for our native state of Wisconsin. Last time the Badger football team got into the Rose Bowl, I invited Pat and Pattie to California so we could all go to the game together. They did and, despite losing

8 02, 2016

I’m not dead yet!

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The commonly used name here for plasmapheresis is plasma exchange. I"m being hooked up for my third, three hour round of plasma exchange. Honestly, I'm in pretty bad shape. I'm not eating. I could give you a lot of technical information about my situation, but the bottom line is this: Five doctors and none can

6 02, 2016

My world turned upside down

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As difficult as my myeloma journey has become, the one silver lining has always been my excellent kidneys; no worries on that front. That all changed today. I learned today that my kidneys are/have failed. I was devastated to get the news; with both Pattie and her sister working for Davita Dialysis, I've heard horror

5 02, 2016

Medical mystery worthy of reality TV

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I'm a medical mystery. Why should I be surprised? Some of the medical news is good. But overshadowing basic improvement are a long list of unanswered questions. I've never had more blood drawn in my life! Let me pause here to apologize to a number of readers that commented following yesterday's post. Our WordPress blogging

4 02, 2016

Enough drama already!


Ongoing struggles recovering from my second stem cell transplant in six months make it easy to write compelling posts. But enough already! I was admitted to our local Baptist hospital last night after an emergency room visit that revealed I had pneumonia that was getting worse by the hour. Of course Pattie had to drag