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PatBdayBallon2016

A Special Tribute to an Incredible Friend

Posted on February 12 2016 by Pat Killingsworth

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I’m not dead yet!

Posted on February 08 2016 by Pat Killingsworth

The commonly used name here for plasmapheresis is plasma exchange. I”m being hooked up for my third, three hour round of plasma exchange. Honestly, I’m in pretty bad shape.

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Tough day for me and my blood

Posted on February 06 2016 by Pat Killingsworth

Plasmapheresis and dialysis on the same day? My body is buzzing; literally buzzing. But it all seems to be working.

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My world turned upside down

Posted on February 06 2016 by Pat Killingsworth

As difficult as my myeloma journey has become, the one silver lining has always been my excellent kidneys; no worries on that front. That all changed today. I learned today that my kidneys are/have failed.

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Dr. Guerrero

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Medical mystery worthy of reality TV

Posted on February 05 2016 by Pat Killingsworth

I’m a medical mystery. Why should I be surprised? Some of the medical news is good. But overshadowing basic improvement are a long list of unanswered questions. I’ve never had more blood drawn in my life!

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Baptist

Enough drama already!

Posted on February 04 2016 by Ryan

Ongoing struggles recovering from my second stem cell transplant in six months make it easy to write compelling posts. But enough already! I was admitted to our local Baptist hospital last night after an emergency room visit that revealed I had pneumonia that was getting worse by the hour.

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I’m celebrating 100 days post tandem today

Posted on February 01 2016 by Pat Killingsworth

It’s been 100 days since I received an infusion of over 8 million of my own stem cells in October. Even though it was my second stem cell transplant in less than six months, this is uncharted territory for me.

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No pants? A comical look back at my trip to Iowa City

Posted on January 30 2016 by Pat Killingsworth

Back in December I experienced an unpleasant ordeal after I was blindsided by C. diff while traveling to the University of Iowa for follow up tests ten weeks after the second of my two stem cell transplants. But as those close to me know, there was a comical edge to my experience. Yesterday I discovered the transcript of a post I’d started, highlighting my crazy experience in Iowa City. Here’s an inside look at my “out of my clothes” experience.

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Can they pump me full of any more meds?

Posted on January 25 2016 by Pat Killingsworth

Not to say that there weren’t hiccups, but I was administered my Kyprolis IV late this morning. I took 40 mg dex, and 3 mg pomalidomide, after I learned my platelets had recovered enough to proceed. I tried to get a few things done this afternoon, but basically passed out.

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It shouldn’t be so hard to get excellent care

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It shouldn’t be so hard to get excellent care

Posted on January 20 2016 by Pat Killingsworth

Reliable healthcare. One would think all of the money spent on our behalf would guarantee a consistent standard of care. Au contraire!

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PLATELETS

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Didn’t see that coming…

Posted on January 19 2016 by Pat Killingsworth

No fever. Resting heart rate down to 80 beats a minute. Oral supplementation at home brought my potassium and magnesium levels up to normal levels. My oncology nurse, Deb, started the IV in my left hand on the first stick Monday. What could go wrong?

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Medical Update: Stinky news

Posted on January 18 2016 by Pat Killingsworth

Rough weekend. As I explained in a post last week, I’m not used to backsliding–post transplant–once I start improving.

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Blood Glucose, MGUS, Myeloma & Metformin (Part Nine)

Blood Glucose, MGUS, Myeloma & Metformin (Part Nine)

Posted on January 16 2016 by Pat Killingsworth

A lot has happened since I ran two of the final installments about the importance of controlling blood glucose by Danny Parker:

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Maintenance therapy side effects nothing to brush off

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Maintenance therapy side effects nothing to brush off

Posted on January 15 2016 by Pat Killingsworth

I’m part of the club: experiencing side effects caused–in part–by ongoing maintenance therapy.

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Anne Pacowta

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Fast recovery thanks to support from so many amazing friends

Posted on January 14 2016 by Pat Killingsworth

It’s official. We didn’t win the Powerball jackpot. One of our tickets did match three numbers, so I should get most of my $20 back. Turns out there were three winners, so there “only” would have been 300 million available to donate for myeloma research. It would have been fun to see what kind of difference 300 million could have made, wouldn’t it?

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Is it time to split my blog in two?

Posted on January 09 2016 by Pat Killingsworth

Speaking of dex (see Wednesday’s post), the much maligned steroid and a GI tract recovering from a pair of stem cell transplants and a three week long bout with C. diff don’t mix. My gut is in knots!

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Jenny’s family

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Wall Street Journal article about myeloma hits a home run

Posted on January 06 2016 by Pat Killingsworth

Monday morning my email inbox lit up. A Wall Street Journal article–both online and in the hard copy edition–about the FDA’s unprecedented approval of three anti-myeloma drugs in less than a month was featured front and center.

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Stem cell transplant fallout front and center in 2016 (Part Two)

Posted on January 05 2016 by Pat Killingsworth

I kicked off my 2016 posts yesterday this way: “Euphoria over a myeloma free PET scan doesn’t make everything else OK. I’ve been struggling with post transplant side effects… Still plenty of drama to kick off 2016.”

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Stem cell transplant fallout front and center in 2016 (Part One)

Posted on January 04 2016 by Pat Killingsworth

Euphoria over a myeloma free PET scan doesn’t make everything else OK. I’ve been struggling with post transplant side effects. Like many of you, bumps in the medical insurance road have bubbled up unexpectedly. Still plenty of drama to kick off 2016.

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Hope springs eternal in 2016

Posted on January 01 2016 by Pat Killingsworth

Never a dull moment. Our end of Amelia Island lost power over the holiday. It happens a lot. Even when it isn’t windy, a heavy rain can leave us without power. The unusual part this time: our electricity was off for so long. It usually sputters back on after an hour or two.

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