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About Pat

/About Pat
1202, 2016

A Special Tribute to an Incredible Friend

By |February 12th, 2016|About Pat|

I only met Pat twice, but I feel like I’ve known him forever. We shared a passion for our native state of Wisconsin. Last time the Badger football team got into the Rose Bowl, I invited Pat and Pattie to California so we could all go to the game together. They did and, despite losing […]

802, 2016

I’m not dead yet!

By |February 8th, 2016|About Pat, Diagnostics, Side effects, Transplants|

The commonly used name here for plasmapheresis is plasma exchange. I”m being hooked up for my third, three hour round of plasma exchange. Honestly, I’m in pretty bad shape.

602, 2016

Tough day for me and my blood

By |February 6th, 2016|About Pat, Side effects, Support, Transplants|

Plasmapheresis and dialysis on the same day? My body is buzzing; literally buzzing. But it all seems to be working.

602, 2016

My world turned upside down

By |February 6th, 2016|About Pat, Diagnostics, Side effects, Transplants|

As difficult as my myeloma journey has become, the one silver lining has always been my excellent kidneys; no worries on that front. That all changed today. I learned today that my kidneys are/have failed.

502, 2016

Medical mystery worthy of reality TV

By |February 5th, 2016|About Pat, Diagnostics, Side effects, Transplants|

I’m a medical mystery. Why should I be surprised? Some of the medical news is good. But overshadowing basic improvement are a long list of unanswered questions. I’ve never had more blood drawn in my life!

402, 2016

Enough drama already!

By |February 4th, 2016|About Pat, Caregivers|

Ongoing struggles recovering from my second stem cell transplant in six months make it easy to write compelling posts. But enough already! I was admitted to our local Baptist hospital last night after an emergency room visit that revealed I had pneumonia that was getting worse by the hour.

102, 2016

I’m celebrating 100 days post tandem today

By |February 1st, 2016|About Pat, Side effects, Tips, Transplants|

It’s been 100 days since I received an infusion of over 8 million of my own stem cells in October. Even though it was my second stem cell transplant in less than six months, this is uncharted territory for me.

3001, 2016

No pants? A comical look back at my trip to Iowa City

By |January 30th, 2016|About Pat, Diagnostics|

Back in December I experienced an unpleasant ordeal after I was blindsided by C. diff while traveling to the University of Iowa for follow up tests ten weeks after the second of my two stem cell transplants. But as those close to me know, there was a comical edge to my experience. Yesterday I discovered […]

2501, 2016

Can they pump me full of any more meds?

By |January 25th, 2016|About Pat, Side effects, Therapy|

Not to say that there weren’t hiccups, but I was administered my Kyprolis IV late this morning. I took 40 mg dex, and 3 mg pomalidomide, after I learned my platelets had recovered enough to proceed. I tried to get a few things done this afternoon, but basically passed out.

2001, 2016

It shouldn’t be so hard to get excellent care

By |January 20th, 2016|About Pat, Diagnostics, Side effects, Tips, Transplants|

Reliable healthcare. One would think all of the money spent on our behalf would guarantee a consistent standard of care. Au contraire!

1901, 2016

Didn’t see that coming…

By |January 19th, 2016|About Pat, Diagnostics, Side effects, Transplants|

No fever. Resting heart rate down to 80 beats a minute. Oral supplementation at home brought my potassium and magnesium levels up to normal levels. My oncology nurse, Deb, started the IV in my left hand on the first stick Monday. What could go wrong?

1801, 2016

Medical Update: Stinky news

By |January 18th, 2016|About Pat, Caregivers, Side effects, Support, Tips|

Rough weekend. As I explained in a post last week, I’m not used to backsliding–post transplant–once I start improving.

1601, 2016

Blood Glucose, MGUS, Myeloma & Metformin (Part Nine)

By |January 16th, 2016|About Pat, Caregivers, Inspirational, Nutrition, Research, Side effects, Support, Tips, Transplants|

A lot has happened since I ran two of the final installments about the importance of controlling blood glucose by Danny Parker:
Blood Glucose, MGUS, Myeloma & Metformin (Part Seven and Eight)
 

1501, 2016

Maintenance therapy side effects nothing to brush off

By |January 15th, 2016|About Pat, News, Nutrition, Side effects, Tips, Transplants|

I’m part of the club: experiencing side effects caused–in part–by ongoing maintenance therapy.

1401, 2016

Fast recovery thanks to support from so many amazing friends

By |January 14th, 2016|About Pat, Caregivers, Support, Transplants|

It’s official. We didn’t win the Powerball jackpot. One of our tickets did match three numbers, so I should get most of my $20 back. Turns out there were three winners, so there “only” would have been 300 million available to donate for myeloma research. It would have been fun to see what kind of […]

901, 2016

Is it time to split my blog in two?

By |January 9th, 2016|About Pat, Inspirational, Support|

Speaking of dex (see Wednesday’s post), the much maligned steroid and a GI tract recovering from a pair of stem cell transplants and a three week long bout with C. diff don’t mix. My gut is in knots!

601, 2016

Wall Street Journal article about myeloma hits a home run

By |January 6th, 2016|About Pat, Caregivers, Inspirational, News, Research, Support|

Monday morning my email inbox lit up. A Wall Street Journal article–both online and in the hard copy edition–about the FDA’s unprecedented approval of three anti-myeloma drugs in less than a month was featured front and center.

501, 2016

Stem cell transplant fallout front and center in 2016 (Part Two)

By |January 5th, 2016|About Pat, Side effects, Tips, Transplants|

I kicked off my 2016 posts yesterday this way: “Euphoria over a myeloma free PET scan doesn’t make everything else OK. I’ve been struggling with post transplant side effects… Still plenty of drama to kick off 2016.”

401, 2016

Stem cell transplant fallout front and center in 2016 (Part One)

By |January 4th, 2016|About Pat, News, Tips, Transplants|

Euphoria over a myeloma free PET scan doesn’t make everything else OK. I’ve been struggling with post transplant side effects. Like many of you, bumps in the medical insurance road have bubbled up unexpectedly. Still plenty of drama to kick off 2016.

101, 2016

Hope springs eternal in 2016

By |January 1st, 2016|About Pat, Inspirational, Support|

Never a dull moment. Our end of Amelia Island lost power over the holiday. It happens a lot. Even when it isn’t windy, a heavy rain can leave us without power. The unusual part this time: our electricity was off for so long. It usually sputters back on after an hour or two.