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About Pat

/About Pat
3012, 2015

Hotel options for April Beach Party event

By |December 30th, 2015|About Pat, News, Support|

It’s hard to believe that we’re only three months away from the 3rd Annual Pat’s Myeloma Beach Party. The event is a “party” in name only; there will be 15 myeloma experts on hand to address topics that last year’s attendees and readers feel are most important to them.

2812, 2015

My Patient Power interview at ASH

By |December 28th, 2015|About Pat, Side effects, Therapy, Transplants|

Saturday I shared a link to an interview Jenny Ahlstrom did with me the second day at ASH. Can’t get enough of me unabashedly sharing my opinions about myeloma therapy options on video? Then fasten your seatbelts! CLL survivor and dear friend, Carol Preston, interviewed me at ASH for Patient Power.

2612, 2015

An amazing day that exceeded unrealistic expectations

By |December 26th, 2015|About Pat, Inspirational, Support|

Sometimes Christmas day can be a letdown. Let’s face it; the media and retailers build it up so much it’s hard to live the idealized version. Am I right? That said, the time I spent today with Pattie, our Island Dog and Calypso Kitties was amazing. I didn’t even think about checking email or posting […]

2112, 2015

More about Thursday’s great news

By |December 21st, 2015|About Pat, Diagnostics, Side effects|

Thursday I ran an emotional post about being “myeloma free.” Everyone understands that’s only an expression, right? Few myeloma patients/survivors are ever truly cancer free.

1812, 2015

An amazing emotional roller coaster ride

By |December 18th, 2015|About Pat, Diagnostics, News, Side effects, Transplants|

I promised to follow up on yesterday’s amazing news. Dr. Tricot reassures me that my tests confirm there isn’t any active myeloma left.

1712, 2015

I’M MYELOMA FREE!

By |December 17th, 2015|About Pat, News|

Looks like our highly toxic gamble to try a pair of salvage autologous stem cell transplants worked! I’m at the airport getting ready to board a plane to Atlanta on the way home, so no time to post details…

1612, 2015

Everything you didn’t know you wanted to know about C. diff

By |December 16th, 2015|About Pat, Side effects, Tips, Transplants|

I unceremoniously experienced my first case of C. diff during the first of my two, modified autologous stem cell transplants this summer. All I knew is everyone wore yellow paper gowns when they came in and out of my room–and I needed to pull an IV pole with me as I sprinted the six steps […]

1512, 2015

This is why I do what I do

By |December 15th, 2015|About Pat, Caregivers, Inspirational, Support|

I experience countless emotional moments as I hear from myeloma patients and caregivers from around the country and sometimes, around the world. I wanted to share an exceptionally personal one with you here today.

1412, 2015

Back to ASH: Ninlaro and Pomalyst combo promising

By |December 14th, 2015|About Pat, News, Research, Transplants|

Before I pass along important information about Takeda’s new oral proteasome inhibitor, Ninlaro (ixazomib), I wanted to share an update about how I’m doing.

1312, 2015

BMT Bondage

By |December 13th, 2015|About Pat, Caregivers, Side effects, Transplants|

I’m feeling a much better today. I was in such a dark place. Feverish and saddled with abdominal pain and now nine days of diarrhea, To be wheeled from ICU up to the BMT unit was discouraging beyond words. But as so many of reminded me with love and certainty, “It will get better!”

1212, 2015

I’m tired of being sick

By |December 12th, 2015|About Pat, Side effects, Transplants|

They moved me from the University of Iowa ICU to the 7th floor BMT Unit late last night. I’d like to say that I’m resting comfortably. Still no fun on so many levels, but I am feeling well enough to get up and get around.

1112, 2015

I’m in the ICU

By |December 11th, 2015|About Pat, Side effects, Transplants|

I left Orlando Wednesday afternoon. Sorry that I didn’t post Thursday, but I was too sick–and in too much pain to do anything but moan, groan and sleep.

912, 2015

ASH to Iowa City: The good, bad and ugly

By |December 9th, 2015|About Pat, Side effects, Transplants|

After a series of drug company meetings this morning, I’m flying up to Iowa City for tests following my second stem cell transplant in late October. How am I holding up? Here’s the good, the bad and the ugly…

312, 2015

REALITY CHECK: I’m that “cancer guy.”

By |December 3rd, 2015|About Pat, Side effects, Tips, Transplants|

I’m betting most of you have walked into your local infusion room and noticed the sickly, bald and emaciated guy sleeping across the way; three or four bags of yellow and caramel colored IV bags sagging from the glistening stainless pole above. Most myeloma patients are lucky. Our chemo tends to be more internalized: no […]

2911, 2015

Statistics meaningless when we’re a clinical trial of one

By |November 29th, 2015|About Pat, RIP, Transplants|

As often happens after I memorialize someone, I got several emails from others that recently lost their loved ones. One graciously thanked me for sharing my journey Friday, revealing that she had lost her husband after a short, six month struggle with multiple myeloma.

2011, 2015

Day 30: Diarrhea and dexamethasone

By |November 20th, 2015|About Pat, Nutrition, Side effects, Support, Tips, Transplants|

Day 30. 30 days since the first half of my 8 million+ stem cells were infused back into me up in Iowa City. I was suspicious of a conspiracy; that my cells would be altered and I’d emerge an Iowa Hawkeye. No way! I still bleed Badger Red.

1511, 2015

Good days? Bad days? Try both!

By |November 15th, 2015|About Pat, Side effects, Tips, Transplants|

It’s been an interesting week. I’ve had better.

1311, 2015

Healthmonitor Magazine: Special Focus on Multiple Myeloma

By |November 13th, 2015|About Pat, News|

If a tree falls in the forest–and no one hears it–did it fall at all? If I’m on the cover of Healthmonitor Magazine promoting multiple myeloma awareness–and I can’t find the article or cover shot online–did anyone read it?

1111, 2015

Thank God I’m Alive!

By |November 11th, 2015|About Pat, Side effects, Transplants|

I’ve been battling top to bottom GI issues. So much nausea and diarrhea that Pattie suggested I skip the hour drive to attend Mayo Clinic’s monthly support group meeting. I reluctantly agreed.

1011, 2015

Myeloma News and Updates

By |November 10th, 2015|About Pat, Inspirational, News, Research, Side effects, Transplants|

More good news about Mike Barron and his successful run with daratumumab. Mike wants all to know that his latest cycle picks up where the last on left off: daratumumab and dex is doing the trick. “It’s like a miracle,” Mike wrote me.