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About Pat

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911, 2015

Safe and sound in Fernandina Beach. Side Effects? Who cares!

By |November 9th, 2015|About Pat, Side effects, Transplants|

Yesterday a blustery nor’easter pounded us here on Fernandina Beach with high winds and flooding rain, One moment I felt fine, the next weak and gagging back dry heaves–or I found myself racing from one toilet or another trying to stay in front of seemingly endless diarrhea. So much to do: unpack, drain the pool, […]

711, 2015

Next stop: Amelia Island

By |November 7th, 2015|About Pat, Side effects, Transplants|

My left hip is biopsied and we’re waiting for the results. Regardless, Pattie and I are flying home today as planned. Most folks worry about whether they turned off the lights, forgot the tickets or left the toaster plugged in after they leave for the airport. Me? I’m back on the 7th floor for an […]

611, 2015

Not so fast: Infection may derail our travel plans home

By |November 6th, 2015|About Pat, Caregivers, Side effects, Transplants|

Having undergone yet another stem cell transplant, I’ve learned one thing you can count on: expect complications.

411, 2015

Trick or Treat: I’m checking out today

By |November 4th, 2015|About Pat, Side effects, Transplants|

I was just emerging from a five day long, near coma on Halloween. That didn’t stop my sister, Joan, from decorating my room top to bottom:

311, 2015

More good news: Daratumumab follow-up

By |November 3rd, 2015|About Pat, Inspirational, Supplements/Drugs, Transplants|

Remember the good news that Mike from North Carolina shared with us last month?
Reader celebrating great response to daratumumab

211, 2015

Day 12: Houston, we have lift-off!

By |November 2nd, 2015|About Pat, Side effects, Transplants|

Remember being a teenager and getting yelled at for staying in the shower too long? Or dealing with a son or granddaughter for using up all of the hot water? Check this out:

111, 2015

Need inspiration? How about Cindy’s smile!

By |November 1st, 2015|About Pat, Inspirational, Side effects, Transplants|

Doing so much better today! The thickening of my stomach wall is still there, but my fever is gone, and antibiotics seem to be working. I’m all too aware of how many of you have also lived through the “worst days of your lives.”

3110, 2015

UPDATE: Better, but still off the Grid

By |October 31st, 2015|About Pat, Caregivers, Transplants|

This is Michele.  I had met several of you at last year’s Pat’s Myeloma Beach Party. Pat is still pretty weak.  He is definitely looking forward to feeling like himself again.

2910, 2015

Off the grid

By |October 29th, 2015|About Pat, Side effects, Transplants|

No kind volunteer to step up and write for me today. One advantage to being an inpatient: I didn’t need caregivers over difficult to staff Halloween weekend. That’s fine, but only works if there aren’t any complications.

2810, 2015

Complications: Please don’t worry

By |October 28th, 2015|About Pat, Transplants|

Hello. I am Mason, a volunteer at the hospital, and I have had the recent pleasure of meeting Pat. Pat is doing alright, but he is feeling very weak and still battling some GI issues.

2710, 2015

There’s a light at the end of the tunnel–thank God it isn’t the big one!

By |October 27th, 2015|About Pat, Diagnostics, Side effects, Transplants|

Yesterday may well have been the worst day of my life. I’m guessing anyone that has undergone an auto or allo has had one or more of these. How the heck did we make it to the other side?

2510, 2015

Will to live: Why I want to go home

By |October 25th, 2015|About Pat, Inspirational|

Why am I fighting so hard to stay alive and get home?

2310, 2015

Strangers, passing in the dark. Life in, death out.

By |October 23rd, 2015|About Pat, Side effects, Transplants|

I’m loaded up with all 8 million+ stem cells I had left. Some in storage, some from this summer’s collection.

2110, 2015

Chemo today, Day Zero tomorrow

By |October 21st, 2015|About Pat, Side effects, Transplants|

I put this together Tuesday evening. Last time I’ll be smiling like this for a while!

2010, 2015


By |October 20th, 2015|About Pat, Transplants|

Second dose of melphalan this morning. But before I start sucking ice let’s have some fun.

1910, 2015

Waiting for the next shoe to drop

By |October 19th, 2015|About Pat, Supplements/Drugs|

Here’s an update about how I’m doing.

1810, 2015

Hectic first day glitches

By |October 18th, 2015|About Pat, Side effects, Tips, Transplants|

Pattie reports that our beloved dog, Finnegan, feels the same way about me! Apparently he lays at the front door, forlorn, waiting for me to come home.

1710, 2015

Thank you rant

By |October 17th, 2015|About Pat, Caregivers, Research, Support|

A number of you have already contributed to help CrowdCare Foundation fund a pair of cutting edge T cell trials in Germany and John Hopkins in Baltimore. THANK YOU! For those of you on-the-fence, I wanted to share some good news.

1610, 2015

Great news!

By |October 16th, 2015|About Pat, Diagnostics, Inspirational, News|

I met with Dr. Tricot this morning for my pre-transplant check. As expected, I’m good to go. I wasn’t expecting such encouraging, eye-opening test results.

1510, 2015

My tandem transplant schedule

By |October 15th, 2015|About Pat, Diagnostics, Side effects|

Ready or not, I’m back in Iowa City, preparing to undergo my second modified stem cell transplant in less than four months. I was at the University of Iowa Cancer Center all day for tests.