Yesterday a blustery nor’easter pounded us here on Fernandina Beach with high winds and flooding rain, One moment I felt fine, the next weak and gagging back dry heaves–or I found myself racing from one toilet or another trying to stay in front of seemingly endless diarrhea. So much to do: unpack, drain the pool, […]
My left hip is biopsied and we’re waiting for the results. Regardless, Pattie and I are flying home today as planned. Most folks worry about whether they turned off the lights, forgot the tickets or left the toaster plugged in after they leave for the airport. Me? I’m back on the 7th floor for an […]
Having undergone yet another stem cell transplant, I’ve learned one thing you can count on: expect complications.
I was just emerging from a five day long, near coma on Halloween. That didn’t stop my sister, Joan, from decorating my room top to bottom:
Remember the good news that Mike from North Carolina shared with us last month?
Reader celebrating great response to daratumumab
Remember being a teenager and getting yelled at for staying in the shower too long? Or dealing with a son or granddaughter for using up all of the hot water? Check this out:
Doing so much better today! The thickening of my stomach wall is still there, but my fever is gone, and antibiotics seem to be working. I’m all too aware of how many of you have also lived through the “worst days of your lives.”
This is Michele. I had met several of you at last year’s Pat’s Myeloma Beach Party. Pat is still pretty weak. He is definitely looking forward to feeling like himself again.
No kind volunteer to step up and write for me today. One advantage to being an inpatient: I didn’t need caregivers over difficult to staff Halloween weekend. That’s fine, but only works if there aren’t any complications.
Hello. I am Mason, a volunteer at the hospital, and I have had the recent pleasure of meeting Pat. Pat is doing alright, but he is feeling very weak and still battling some GI issues.
Yesterday may well have been the worst day of my life. I’m guessing anyone that has undergone an auto or allo has had one or more of these. How the heck did we make it to the other side?
Why am I fighting so hard to stay alive and get home?
I’m loaded up with all 8 million+ stem cells I had left. Some in storage, some from this summer’s collection.
I put this together Tuesday evening. Last time I’ll be smiling like this for a while!
Second dose of melphalan this morning. But before I start sucking ice let’s have some fun.
Here’s an update about how I’m doing.
Pattie reports that our beloved dog, Finnegan, feels the same way about me! Apparently he lays at the front door, forlorn, waiting for me to come home.
A number of you have already contributed to help CrowdCare Foundation fund a pair of cutting edge T cell trials in Germany and John Hopkins in Baltimore. THANK YOU! For those of you on-the-fence, I wanted to share some good news.
I met with Dr. Tricot this morning for my pre-transplant check. As expected, I’m good to go. I wasn’t expecting such encouraging, eye-opening test results.
Ready or not, I’m back in Iowa City, preparing to undergo my second modified stem cell transplant in less than four months. I was at the University of Iowa Cancer Center all day for tests.