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Caregivers

/Caregivers
402, 2016

Enough drama already!

By |February 4th, 2016|About Pat, Caregivers|

Ongoing struggles recovering from my second stem cell transplant in six months make it easy to write compelling posts. But enough already! I was admitted to our local Baptist hospital last night after an emergency room visit that revealed I had pneumonia that was getting worse by the hour.

2201, 2016

We need more open and honest conversations about multiple myeloma

By |January 22nd, 2016|Caregivers, News, RIP, Support, Tips|

One of my pet peeves: when celebrities don’t disclose the type of cancer that they’re battling. They could at least devulge it in their obituary. Most of the rest of us disclose it. Obviously I’ve done so much more. I’m not implying everyone needs to be as open as I am. But come on: inquiring […]

1801, 2016

Medical Update: Stinky news

By |January 18th, 2016|About Pat, Caregivers, Side effects, Support, Tips|

Rough weekend. As I explained in a post last week, I’m not used to backsliding–post transplant–once I start improving.

1601, 2016

Blood Glucose, MGUS, Myeloma & Metformin (Part Nine)

By |January 16th, 2016|About Pat, Caregivers, Inspirational, Nutrition, Research, Side effects, Support, Tips, Transplants|

A lot has happened since I ran two of the final installments about the importance of controlling blood glucose by Danny Parker:
Blood Glucose, MGUS, Myeloma & Metformin (Part Seven and Eight)
 

1401, 2016

Fast recovery thanks to support from so many amazing friends

By |January 14th, 2016|About Pat, Caregivers, Support, Transplants|

It’s official. We didn’t win the Powerball jackpot. One of our tickets did match three numbers, so I should get most of my $20 back. Turns out there were three winners, so there “only” would have been 300 million available to donate for myeloma research. It would have been fun to see what kind of […]

801, 2016

Rest in peace dearest Sara

By |January 8th, 2016|Caregivers, Inspirational, RIP, Support, Tips|

These are the posts I dread writing. One of my closest myeloma friends, Sara Lathan, from Charlotte, North Carolina, lost her extended fight with multiple myeloma earlier this week.

601, 2016

Wall Street Journal article about myeloma hits a home run

By |January 6th, 2016|About Pat, Caregivers, Inspirational, News, Research, Support|

Monday morning my email inbox lit up. A Wall Street Journal article–both online and in the hard copy edition–about the FDA’s unprecedented approval of three anti-myeloma drugs in less than a month was featured front and center.

2412, 2015

Happy Holidays! Catching up with our myeloma friends

By |December 24th, 2015|Caregivers, Inspirational, Side effects|

I understand that all of my reader’s don’t celebrate Christmas. After all, myeloma doesn’t respect religious or political boundries; it’s an equal opportunity dose of misery. Even so, I thought that Christmas Eve might be the perfect time to catch up on how some of our friends we’ve been following this past year are doing.

1512, 2015

This is why I do what I do

By |December 15th, 2015|About Pat, Caregivers, Inspirational, Support|

I experience countless emotional moments as I hear from myeloma patients and caregivers from around the country and sometimes, around the world. I wanted to share an exceptionally personal one with you here today.

1312, 2015

BMT Bondage

By |December 13th, 2015|About Pat, Caregivers, Side effects, Transplants|

I’m feeling a much better today. I was in such a dark place. Feverish and saddled with abdominal pain and now nine days of diarrhea, To be wheeled from ICU up to the BMT unit was discouraging beyond words. But as so many of reminded me with love and certainty, “It will get better!”

2611, 2015

I’m thankful for my myeloma friends, alive and past

By |November 26th, 2015|Caregivers, Inspirational, RIP|

Thanksgiving is all about family and friendships. I have made some amazing friends during my myeloma journey. Some I’ve never met. We’ve simply emailed regularly for years.

611, 2015

Not so fast: Infection may derail our travel plans home

By |November 6th, 2015|About Pat, Caregivers, Side effects, Transplants|

Having undergone yet another stem cell transplant, I’ve learned one thing you can count on: expect complications.

3110, 2015

UPDATE: Better, but still off the Grid

By |October 31st, 2015|About Pat, Caregivers, Transplants|

This is Michele.  I had met several of you at last year’s Pat’s Myeloma Beach Party. Pat is still pretty weak.  He is definitely looking forward to feeling like himself again.

1710, 2015

Thank you rant

By |October 17th, 2015|About Pat, Caregivers, Research, Support|

A number of you have already contributed to help CrowdCare Foundation fund a pair of cutting edge T cell trials in Germany and John Hopkins in Baltimore. THANK YOU! For those of you on-the-fence, I wanted to share some good news.

910, 2015

We need emotional support! Let’s start the conversation…

By |October 9th, 2015|About Pat, Caregivers, Support, Tips|

More pictures from last weekend? Why not? Tomorrow is another college football Saturday. I’ll share more then. But first I wanted to follow up on a very serious subject: reader responses to Tuesday’s post, pleading for emotional help and support for me and my fellow myeloma patients and caregivers:
Myeloma patients need emotional support
 

810, 2015

Reflections of an amazing day

By |October 8th, 2015|About Pat, Caregivers, Inspirational|

I’m so proud of myself! I finally figured out how to download pictures from my Android smart phone to my laptop. It’s no secret that I’m tech challenged. And it isn’t about age: old timer, good friend and fellow myeloma survivor, Gary Petersen, gave me a tutorial at a patient dinner meeting on Tuesday.

610, 2015

Myeloma patients need emotional support

By |October 6th, 2015|About Pat, Caregivers, Support|

I’ve had to make some pretty tough therapy decisions lately. It got me thinking. Where do patients like us go for emotional support?

210, 2015

Madison, here we come!

By |October 2nd, 2015|About Pat, Caregivers, Side effects|

I’m sorry that I haven’t been more responsive to reader’s comments on the blog, Facebook and Email. Pattie and I just completed another “never a dull moment” series of flight delays on our way to Madison, Wisconsin to see the University of Wisconsin play the Iowa Hawkeyes Saturday.

3009, 2015

Our cancer, our lives, our choice

By |September 30th, 2015|About Pat, Caregivers, Side effects, Tips, Transplants|

I’m a fighter–and I’m stubborn. I’m focused and willing to do just about anything to help extend my life.

809, 2015

Allo transplant patient Tom from Ohio: Better news!

By |September 8th, 2015|Caregivers, Side effects, Support, Tips, Transplants|

Last week we caught up with allogeneic stem cell transplant recipient, David from Tampa. He’s doing well, but the allo did not wipe out his myeloma–and his new immune system still may not recognize it as an invader. Today let’s hear from Tom. Like David, Tom’s doctors tried an allo as a way to hit […]