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Archive | Caregivers

Baptist

Enough drama already!

Posted on February 04 2016 by Ryan

Ongoing struggles recovering from my second stem cell transplant in six months make it easy to write compelling posts. But enough already! I was admitted to our local Baptist hospital last night after an emergency room visit that revealed I had pneumonia that was getting worse by the hour.

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David Bowie

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We need more open and honest conversations about multiple myeloma

Posted on January 22 2016 by Pat Killingsworth

One of my pet peeves: when celebrities don’t disclose the type of cancer that they’re battling. They could at least devulge it in their obituary. Most of the rest of us disclose it. Obviously I’ve done so much more. I’m not implying everyone needs to be as open as I am. But come on: inquiring minds want to know!

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Medical Update: Stinky news

Posted on January 18 2016 by Pat Killingsworth

Rough weekend. As I explained in a post last week, I’m not used to backsliding–post transplant–once I start improving.

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Blood Glucose, MGUS, Myeloma & Metformin (Part Nine)

Blood Glucose, MGUS, Myeloma & Metformin (Part Nine)

Posted on January 16 2016 by Pat Killingsworth

A lot has happened since I ran two of the final installments about the importance of controlling blood glucose by Danny Parker:

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Anne Pacowta

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Fast recovery thanks to support from so many amazing friends

Posted on January 14 2016 by Pat Killingsworth

It’s official. We didn’t win the Powerball jackpot. One of our tickets did match three numbers, so I should get most of my $20 back. Turns out there were three winners, so there “only” would have been 300 million available to donate for myeloma research. It would have been fun to see what kind of difference 300 million could have made, wouldn’t it?

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SARA

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Rest in peace dearest Sara

Posted on January 08 2016 by Pat Killingsworth

These are the posts I dread writing. One of my closest myeloma friends, Sara Lathan, from Charlotte, North Carolina, lost her extended fight with multiple myeloma earlier this week.

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Jenny’s family

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Wall Street Journal article about myeloma hits a home run

Posted on January 06 2016 by Pat Killingsworth

Monday morning my email inbox lit up. A Wall Street Journal article–both online and in the hard copy edition–about the FDA’s unprecedented approval of three anti-myeloma drugs in less than a month was featured front and center.

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Happy Holidays! Catching up with our myeloma friends

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Happy Holidays! Catching up with our myeloma friends

Posted on December 24 2015 by Pat Killingsworth

I understand that all of my reader’s don’t celebrate Christmas. After all, myeloma doesn’t respect religious or political boundries; it’s an equal opportunity dose of misery. Even so, I thought that Christmas Eve might be the perfect time to catch up on how some of our friends we’ve been following this past year are doing.

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LightTheNight-2

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This is why I do what I do

Posted on December 15 2015 by Pat Killingsworth

I experience countless emotional moments as I hear from myeloma patients and caregivers from around the country and sometimes, around the world. I wanted to share an exceptionally personal one with you here today.

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BMT Bondage

Posted on December 13 2015 by Pat Killingsworth

I’m feeling a much better today. I was in such a dark place. Feverish and saddled with abdominal pain and now nine days of diarrhea, To be wheeled from ICU up to the BMT unit was discouraging beyond words. But as so many of reminded me with love and certainty, “It will get better!”

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Jeanie Nebraska – Copy

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I’m thankful for my myeloma friends, alive and past

Posted on November 26 2015 by Pat Killingsworth

Thanksgiving is all about family and friendships. I have made some amazing friends during my myeloma journey. Some I’ve never met. We’ve simply emailed regularly for years.

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LEE Bucky

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Not so fast: Infection may derail our travel plans home

Posted on November 06 2015 by Pat Killingsworth

Having undergone yet another stem cell transplant, I’ve learned one thing you can count on: expect complications.

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BeachParty2014EdandMichele

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UPDATE: Better, but still off the Grid

Posted on October 31 2015 by Pat Killingsworth

This is Michele.  I had met several of you at last year’s Pat’s Myeloma Beach Party. Pat is still pretty weak.  He is definitely looking forward to feeling like himself again.

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PAT and PATTIE

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Thank you rant

Posted on October 17 2015 by Pat Killingsworth

A number of you have already contributed to help CrowdCare Foundation fund a pair of cutting edge T cell trials in Germany and John Hopkins in Baltimore. THANK YOU! For those of you on-the-fence, I wanted to share some good news.

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We need emotional support! Let’s start the conversation…

Posted on October 09 2015 by Pat Killingsworth

More pictures from last weekend? Why not? Tomorrow is another college football Saturday. I’ll share more then. But first I wanted to follow up on a very serious subject: reader responses to Tuesday’s post, pleading for emotional help and support for me and my fellow myeloma patients and caregivers:

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Reflections of an amazing day

Posted on October 08 2015 by Pat Killingsworth

I’m so proud of myself! I finally figured out how to download pictures from my Android smart phone to my laptop. It’s no secret that I’m tech challenged. And it isn’t about age: old timer, good friend and fellow myeloma survivor, Gary Petersen, gave me a tutorial at a patient dinner meeting on Tuesday.

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Myeloma patients need emotional support

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Myeloma patients need emotional support

Posted on October 06 2015 by Pat Killingsworth

I’ve had to make some pretty tough therapy decisions lately. It got me thinking. Where do patients like us go for emotional support?

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Rockys

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Madison, here we come!

Posted on October 02 2015 by Pat Killingsworth

I’m sorry that I haven’t been more responsive to reader’s comments on the blog, Facebook and Email. Pattie and I just completed another “never a dull moment” series of flight delays on our way to Madison, Wisconsin to see the University of Wisconsin play the Iowa Hawkeyes Saturday.

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100_2190 (1)

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Our cancer, our lives, our choice

Posted on September 30 2015 by Pat Killingsworth

I’m a fighter–and I’m stubborn. I’m focused and willing to do just about anything to help extend my life.

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Allo transplant patient Tom from Ohio: Better news!

Posted on September 08 2015 by Pat Killingsworth

Last week we caught up with allogeneic stem cell transplant recipient, David from Tampa. He’s doing well, but the allo did not wipe out his myeloma–and his new immune system still may not recognize it as an invader. Today let’s hear from Tom. Like David, Tom’s doctors tried an allo as a way to hit his difficult to treat myeloma hard. And like David, it didn’t work as well as hoped.

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