I’m feeling pretty darn good. Except for watching my beloved UW Badgers get manhandled by Alabama 34-17 last night, I’m doing fine.
Our dear friend, David from Tampa, had a busy summer. A family vacation, catching up work at his consulting business and all things medical are all great signs that he continues to recover successfully. I’ll get you links to the family stuff on CaringBridge at the end of the post. As you would expect, let’s […]
As promised, here’s a comprehensive list of drugs and supplements that readers use to help battle peripheral neuropathy (PN) symptoms:
I often write about myeloma related anniversary’s: another year of survival, key dates from stem cell transplants present and past. Today’s anniversary has nothing to do with cancer. My wife and I were married in Madison, Wisconsin, 28 years ago.
As I continue to recover from last month’s stem cell transplant, I marvel at the size and skill of the transplant team at the University of Iowa.
Its always great to hear from friends we’ve featured in our Patient Snapshot series, especially when there’s good news. Tom and his wife and caregiver, Whitney, have had a difficult time. For months it seemed like if it could go wrong, it did. I’m glad the tide has turned.
Sorry I didn’t post yesterday. Our server was down. That’s OK, because it was a busy travel day. Travel? Great news! Pattie and I flew home today. But after spending all day trying to get out of the Cedar Rapids airport, good news quickly turned into a real drag.
So many ups and downs. So many. Despite the bumpy ride, I’ve checked out of the hospital with everyone’s blessing except for one of my nurses, named Hanson; she’s very protective.
I’ve been fortunate to find a way to post most everyday following my second stem cell transplant. Tonight I’m going to fudge a bit. I’ve had a long day and I’m not feeling well.
Gifted writer and cancer patient advocate, Greg Brozeit, kindly offered to share his unique perspective with us after learning I was going to be under the weather for a while. You may remember Greg’s work memorializing Mike Katz this spring:
Living to Make a Difference: Mike Katz (Part One)
Living to Make a Difference: Mike Katz (Part […]
Sorry I don’t feel up to sharing medical specifics from the past few days. Truth be told, I don’t even remember part of it, so Pattie is helping me get some basics out.
So the decision has been made. I’ve been given over 7 million of my own stem cells back over the past two days. Dr. Tricot even hand picked the bags, mixing old (from 2007) with new, freshly harvested cells.
I’ve given up trying to post in chronological order. Rushing around getting poked, prodded and bent over backwards can disrupt a guy’s sense of space and time.
I’m including an update about how I’m feeling after I share information about an important event taking place in Houston in a week; accessible to patients and caregivers on site or on your computers.
Readers have been so kind to me these past weeks, even going so far as calling me “brave” and a “hero.” I try and help, but I don’t think of myself that way. I’d like to introduce you to someone who is. Sara Lathan from Charlotte, North Carolina, is my hero.
All apheresis all the time makes for a long day. Yesterday before I left we had some fun.
Pitcher Mel Stottlemyre’s extended remission came up at a support group meeting I attended yesterday; one of the patients shared how he’s been in complete response and drug free for over nine years.
Before I pass along information about Mel Stottlemyre, I wanted to follow-up on my post about daratumumab from yesterday; the companies involved have officially applied for FDA approval.
I’ve been corresponding with allogeneic stem cell transplant patient, David from Tampa, Florida. As I’ve followed his story, we’ve become good friends. He’s a great guy!
I promised to give everyone an update about how I’m doing today. The antibiotics are working and I’m doing OK. But I’m guessing many of you watched Tom Brokaw’s one hour special about multiple myeloma on Dateline NBC last night. I’ll put off posting details about my ongoing recovery to share information about last night’s […]