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609, 2015

Spending a family day at home: PRICELESS!

By |September 6th, 2015|About Pat, Caregivers, Side effects, Transplants|

I’m feeling pretty darn good. Except for watching my beloved UW Badgers get manhandled by Alabama 34-17 last night, I’m doing fine.

409, 2015

Patient Snapshot Update: David from Tampa

By |September 4th, 2015|Caregivers, News, Side effects, Transplants|

Our dear friend, David from Tampa, had a busy summer. A family vacation, catching up work at his consulting business and all things medical are all great signs that he continues to recover successfully. I’ll get you links to the family stuff on CaringBridge at the end of the post. As you would expect, let’s […]

3108, 2015

Help with peripheral neuropathy A to Z

By |August 31st, 2015|Caregivers, Side effects, Supplements/Drugs, Tips|

As promised, here’s a comprehensive list of drugs and supplements that readers use to help battle peripheral neuropathy (PN) symptoms:

3008, 2015

Happy Anniversary! Married 28 years

By |August 30th, 2015|About Pat, Caregivers, Nutrition, Transplants|

I often write about myeloma related anniversary’s: another year of survival, key dates from stem cell transplants present and past. Today’s anniversary has nothing to do with cancer. My wife and I were married in Madison, Wisconsin, 28 years ago.

1708, 2015

It takes a village to complete a successful SCT

By |August 17th, 2015|About Pat, Caregivers, Nutrition, Transplants|

As I continue to recover from last month’s stem cell transplant, I marvel at the size and skill of the transplant team at the University of Iowa.

3007, 2015

Update: Allo transplant patient Tom from Ohio

By |July 30th, 2015|About Pat, Caregivers, Inspirational, Support, Tips, Transplants|

Its always great to hear from friends we’ve featured in our Patient Snapshot series, especially when there’s good news. Tom and his wife and caregiver, Whitney, have had a difficult time. For months it seemed like if it could go wrong, it did. I’m glad the tide has turned.

2907, 2015

Travel disaster: You can’t make this stuff up!

By |July 29th, 2015|About Pat, Caregivers, Transplants|

Sorry I didn’t post yesterday. Our server was down. That’s OK, because it was a busy travel day. Travel? Great news! Pattie and I flew home today. But after spending all day trying to get out of the Cedar Rapids airport, good news quickly turned into a real drag.

2607, 2015

I’m going “home!”

By |July 26th, 2015|About Pat, Caregivers, Side effects, Transplants|

So many ups and downs. So many. Despite the bumpy ride, I’ve checked out of the hospital with everyone’s blessing except for one of my nurses, named Hanson; she’s very protective.

2507, 2015

I’m playing my “get out of jail free” card

By |July 25th, 2015|About Pat, Caregivers, Transplants|

I’ve been fortunate to find a way to post most everyday following my second stem cell transplant. Tonight I’m going to fudge a bit. I’ve had a long day and I’m not feeling well.

2007, 2015

Tom Brokaw and multiple myeloma: a global perspective

By |July 20th, 2015|Books, Caregivers|

Gifted writer and cancer patient advocate, Greg Brozeit, kindly offered to share his unique perspective with us after learning I was going to be under the weather for a while. You may remember Greg’s work memorializing Mike Katz this spring:
Living to Make a Difference: Mike Katz (Part One)
Living to Make a Difference: Mike Katz (Part […]

1807, 2015

Did all of this really happen in one day?

By |July 18th, 2015|About Pat, Caregivers, Side effects, Support, Transplants|

Sorry I don’t feel up to sharing medical specifics from the past few days. Truth be told, I don’t even remember part of it, so Pattie is helping me get some basics out.

1607, 2015

Key questions from readers, friends and family for Dr. Tricot

By |July 16th, 2015|About Pat, Caregivers, Inspirational, Side effects, Transplants|

So the decision has been made. I’ve been given over 7 million of my own stem cells back over the past two days. Dr. Tricot even hand picked the bags, mixing old (from 2007) with new, freshly harvested cells.

1307, 2015

Who says sick people can’t have fun?

By |July 13th, 2015|About Pat, Caregivers, Inspirational, Transplants|

I’ve given up trying to post in chronological order. Rushing around getting poked, prodded and bent over backwards can disrupt a guy’s sense of space and time.

507, 2015

Daughter’s touching plan to help her dad

By |July 5th, 2015|About Pat, Caregivers, Inspirational, News, Transplants|

I’m including an update about how I’m feeling after I share information about an important event taking place in Houston in a week; accessible to patients and caregivers on site or on your computers.

407, 2015

Patient Snapshot: Sara from North Carolina

By |July 4th, 2015|Caregivers, Inspirational, Side effects, Support, Tips|

Readers have been so kind to me these past weeks, even going so far as calling me “brave” and a “hero.”  I try and help, but I don’t think of myself that way. I’d like to introduce you to someone who is. Sara Lathan from Charlotte, North Carolina, is my hero.

107, 2015

Good news or bad, let’s have some fun!

By |July 1st, 2015|About Pat, Caregivers, Transplants|

All apheresis all the time makes for a long day.  Yesterday before I left we had some fun.

1106, 2015

Sense of community among myeloma patients is strong!

By |June 11th, 2015|About Pat, Caregivers, Inspirational, Transplants|

Pitcher Mel Stottlemyre’s extended remission came up at a support group meeting I attended yesterday; one of the patients shared how he’s been in complete response and drug free for over nine years.

1006, 2015

Baseball great Mel Stottlemyre facing relapse

By |June 10th, 2015|Books, Caregivers, Inspirational, News, Side effects|

Before I pass along information about Mel Stottlemyre, I wanted to follow-up on my post about daratumumab from yesterday; the companies involved have officially applied for FDA approval.

806, 2015

UPDATE: Patient Snapshot: David from Florida

By |June 8th, 2015|Caregivers, Inspirational, News, Side effects, Support, Tips, Transplants|

I’ve been corresponding with allogeneic stem cell transplant patient, David from Tampa, Florida.  As I’ve followed his story, we’ve become good friends.  He’s a great guy!

805, 2015

Tom Brokaw’s program about his multiple myeloma a pleasant surprise

By |May 8th, 2015|Books, Caregivers, News, Research, Side effects, Support, Therapy, Tips, Transplants|

I promised to give everyone an update about how I’m doing today.  The antibiotics are working and I’m doing OK.  But I’m guessing many of you watched Tom Brokaw’s one hour special about multiple myeloma on Dateline NBC last night.  I’ll put off posting details about my ongoing recovery to share information about last night’s […]