Like many of you, I’ve been worried about our dear friend, allogeneic stem cell transplant recipient, Tom from Ohio, ever since his wife, Whitney, shared that he was facing another setback and had been rushed to intensive care. Whitney kindly took the time to email us about how Tom is doing:
Pattie and I returned home late last night after a whirlwind trip to Boston. We flew up and back for two days of myeloma related meetings.
The 8th anniversary of my multiple myeloma diagnosis has unceremoniously come and gone: April 3rd, 2007.
One of the amazing things about the final day of this year’s Beach Party: no one wanted to leave! Instead, the 70 or so remaining patients and caregivers stayed, shared suggestions and started to help us plan next year’s event. Volunteers stepped forward, committees were formed. Michele and Stephanie even started a Pat’s Myeloma Beach […]
Just in case you missed it, Wednesday’s Cure Talks broadcast was a lot of fun! It featured Pat’s Myeloma Beach Party speaker, Dr. Noopur Raje. Dr. Raje is both a researcher and clinician at Massachusetts General in Boston. Joining us with a list of great questions: Jenny Ahlstrom and Gary Petersen.
There are lots of different ways to get the word out about multiple myeloma. Here’s a fun, silly one, courtesy my newly adopted, North Florida support group doing the mambo for myeloma:
It has been an amazing week. Thanks so much for all of your congratulatory posts, emails and phone calls. A person’s 59th birthday isn’t normally a memorable one, but my readers have made mine special. But my birthday announcement was just the tip of the iceberg. My visits to support groups in Ocala and Jacksonville […]
My old friend, myeloma survivor Richard Blustein, shared some great financial aid news with me earlier this week:
I’ve written a number of times about the importance of developing a comprehensive myeloma therapy plan. Truth is, very few physicians subscribe to this type of thinking. “Let’s see what happens first.” That’s the mantra.
I’ve been accumulating a wide variety of helpful information since the start of the start of the new year. Not enough to post about one by one, but I didn’t want that to stop me from passing them along.
I’m pleased to report that our old friend, Tom from Ohio, is up and getting around just fine. Can you believe its been a year since his transplant?
I’m disillusioned this morning. Waking up to our favorite am news show, CBS This Morning, I was bombarded by stories about corrupt politicians and others that only seem to care about themselves. I know all too well that none of us are perfect. But here’s a radical thought: Why can’t people just be nice?
As I mentioned in yesterday’s post, I wanted to take the time to address this email individually. Karen (caregiver) wrote me about her newly diagnosed husband, Peter. Although unfortunate, Peter’s part of the story is relatively unremarkable. It was Karen’s cry for help as a caregiver that touched me.
Your Christmas decorations are packed away, New Year’s Eve hangovers are gone. Nine weeks and counting; time to focus the event of the year: Pat’s Myeloma Beach Party!
Pattie and I had a busy year’s end. As I shared before, we traveled back to Tampa twice to watch football: the first time to see Green Bay play the Tampa Bay Bucs, and ten days later for the Wisconsin Badgers vs Auburn Tigers bowl game on New Year’s Day. I promised some pictures.
David, our featured allogeneic (donor) stem cell transplant recipient, has completed the high dose chemotherapy portion of the procedure. He’s also had his donor’s cells infused into him a few days later. David told me he felt surprisingly well to that point. But something tells me reality is about to set in:
Time to learn more about our new friend, David. Undergoing a tandem auto and allo stem cell transplant is no picnic! That’s an understatement!
Pattie and I are planning a quiet Christmas day at home. We’ll take Finnegan for a long walk along the beach, catch a movie and I’ll cook us a turkey dinner with all the fixings. As soon as it gets dark, we’ll take a drive and scope out the best Christmas lights.
I had an opportunity to meet one of our readers earlier this month. I met Susan and her husband and caregiver, Bob, for lunch at a fun southern style diner near my home in Fernandina Beach.
I admit it; I watch the daytime soap opera, Young and the Restless. Actually I don’t “watch it.” I rarely sit still long enough to watch anything. But I record the episodes and play them back when I’m doing dishes or folding laundry. That’s right; with Pattie working full time, call me “Mr. Mom.”