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2504, 2015

Update: Tom from Ohio

By |April 25th, 2015|Caregivers, Diagnostics, News, Side effects, Support, Transplants|

Like many of you, I’ve been worried about our dear friend, allogeneic stem cell transplant recipient, Tom from Ohio, ever since his wife, Whitney, shared that he was facing another setback and had been rushed to intensive care.  Whitney kindly took the time to email us about how Tom is doing:

1504, 2015

Working (and playing) in Boston

By |April 15th, 2015|About Pat, Caregivers, Side effects, Transplants|

Pattie and I returned home late last night after a whirlwind trip to Boston.  We flew up and back for two days of myeloma related meetings.

1104, 2015

Oops! I Forgot my own anniversary…

By |April 11th, 2015|About Pat, Caregivers, Inspirational|

The 8th anniversary of my multiple myeloma diagnosis has unceremoniously come and gone:            April 3rd, 2007.

1004, 2015

Next year’s Beach Party planning off to an early start

By |April 10th, 2015|About Pat, Caregivers, Inspirational, Support|

One of the amazing things about the final day of this year’s Beach Party: no one wanted to leave!  Instead, the 70 or so remaining patients and caregivers stayed, shared suggestions and started to help us plan next year’s event.   Volunteers stepped forward, committees were formed.  Michele and Stephanie even started a Pat’s Myeloma Beach […]

603, 2015

Fun ways to stay connected

By |March 6th, 2015|Caregivers, Inspirational, Support|

Just in case you missed it, Wednesday’s Cure Talks broadcast was a lot of fun!  It featured Pat’s Myeloma Beach Party  speaker, Dr. Noopur Raje.  Dr. Raje is both a researcher and clinician at Massachusetts General in Boston.  Joining us with a list of great questions: Jenny Ahlstrom and Gary Petersen.

1602, 2015

Another creative way to get the word out

By |February 16th, 2015|About Pat, Caregivers, Inspirational, Research, Support|

There are lots of different ways to get the word out about multiple myeloma.  Here’s a fun, silly one, courtesy my newly adopted, North Florida support group doing the mambo for myeloma:

1202, 2015

Inspiring support group energy! Cure Talks broadcast tonight.

By |February 12th, 2015|Caregivers, Inspirational, Other, Transplants|

It has been an amazing week.  Thanks so much for all of your congratulatory posts, emails and phone calls.  A person’s 59th birthday isn’t normally a memorable one, but my readers have made mine special.  But my birthday announcement was just the tip of the iceberg.  My visits to support groups in Ocala and Jacksonville […]

702, 2015

LLS announces travel assistance for myeloma patients

By |February 7th, 2015|Caregivers, News, Support|

My old friend, myeloma survivor Richard Blustein, shared some great financial aid news with me earlier this week:

3001, 2015

There should be a therapy road map for late stage myeloma patients

By |January 30th, 2015|About Pat, Caregivers, Research, Therapy, Transplants|

I’ve written a number of times about the importance of developing a comprehensive myeloma therapy plan.  Truth is, very few physicians subscribe to this type of thinking.  “Let’s see what happens first.” That’s the mantra.

2801, 2015

Important info for myeloma patients and caregivers

By |January 28th, 2015|Caregivers, News, Research, Side effects, Support, Tips|

I’ve been accumulating a wide variety of helpful information since the start of the start of the new year.  Not enough to post about one by one, but I didn’t want that to stop me from passing them along.

2501, 2015

Hope for a cure: Tom’s allo transplant journey (Part Twenty Six)

By |January 25th, 2015|Caregivers, Inspirational, Transplants|

I’m pleased to report that our old friend, Tom from Ohio, is up and getting around just fine.  Can you believe its been a year since his transplant?

2301, 2015

In tough times, myeloma patients surrounded by heroes

By |January 23rd, 2015|About Pat, Caregivers, Inspirational, RIP|

I’m disillusioned this morning.  Waking up to our favorite am news show, CBS This Morning, I was bombarded by stories about corrupt politicians and others that only seem to care about themselves.  I know all too well that none of us are perfect.  But here’s a radical thought: Why can’t people just be nice?

2201, 2015

The emotional side of multiple myeloma can be devastating

By |January 22nd, 2015|About Pat, Caregivers, Inspirational, Side effects, Tips, Transplants|

As I mentioned in yesterday’s post, I wanted to take the time to address this email individually.  Karen (caregiver) wrote me about her newly diagnosed husband, Peter.  Although unfortunate, Peter’s part of the story is relatively unremarkable.  It was Karen’s cry for help as a caregiver that touched me.

1601, 2015

Register for Pat’s Myeloma Beach Party NOW!

By |January 16th, 2015|About Pat, Caregivers, Inspirational, News|

Your Christmas decorations are packed away, New Year’s Eve hangovers are gone.  Nine weeks and counting; time to focus the event of the year: Pat’s Myeloma Beach Party!

1201, 2015

Priceless memories help keep me fighting

By |January 12th, 2015|About Pat, Caregivers, Inspirational, Side effects|

Pattie and I had a busy year’s end.  As I shared before, we traveled back to Tampa twice to watch football: the first time to see Green Bay play the Tampa Bay Bucs, and ten days later for the Wisconsin Badgers vs Auburn Tigers bowl game on New Year’s Day.  I promised some pictures.

401, 2015

Patient Snapshot: David from Florida (Part Four)

By |January 4th, 2015|Caregivers, News, Side effects, Transplants|

David, our featured allogeneic (donor) stem cell transplant recipient, has completed the high dose chemotherapy portion of the procedure.  He’s also had his donor’s cells infused into him a few days later.  David told me he felt surprisingly well to that point.  But something tells me reality is about to set in:

2612, 2014

Patient Snapshot: David from Florida (Part Two)

By |December 26th, 2014|Caregivers, Inspirational, Tips, Transplants|

Time to learn more about our new friend, David.  Undergoing a tandem auto and allo stem cell transplant is no picnic!  That’s an understatement!

2512, 2014

Remember less fortunate myeloma patients today

By |December 25th, 2014|About Pat, Caregivers, Inspirational, Transplants|

Pattie and I are planning a quiet Christmas day at home.  We’ll take Finnegan for a long walk along the beach, catch a movie and I’ll cook us a turkey dinner with all the fixings.  As soon as it gets dark, we’ll take a drive and scope out the best Christmas lights.

2312, 2014

Patient Snapshot: Susan from New Mexico

By |December 23rd, 2014|About Pat, Caregivers, Inspirational|

I had an opportunity to meet one of our readers earlier this month.  I met Susan and her husband and caregiver, Bob, for lunch at a fun southern style diner near my home in Fernandina Beach.

1712, 2014

When it comes to myeloma, reality is stranger than fiction

By |December 17th, 2014|About Pat, Caregivers, Research|

I admit it; I watch the daytime soap opera, Young and the Restless.  Actually I don’t “watch it.”  I rarely sit still long enough to watch anything.  But I record the episodes and play them back when I’m doing dishes or folding laundry.  That’s right; with Pattie working full time, call me “Mr. Mom.”