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Inspirational

Home/Inspirational
27 01, 2016

Isn’t battling myeloma hard enough without having to raise money, too?

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An amazing over-the-top (pun intended) multiple myeloma awareness and fundraising mountain climbing adventure scaling Mr. Kilimanjaro sponsored by the MMRF: https://m.facebook.com/media/set/?set=a.10153334017497918&type=3&l=f16f8c5178 February 1st, CrowdCare Foundation will launch a safer, but just as exciting Muscles for Myeloma Challenge fundraiser. Our Pat's Myeloma Beach Walk will be part of the extended project. More about that soon. Both

16 01, 2016

Blood Glucose, MGUS, Myeloma & Metformin (Part Nine)

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A lot has happened since I ran two of the final installments about the importance of controlling blood glucose by Danny Parker: Blood Glucose, MGUS, Myeloma & Metformin (Part Seven and Eight)   ASH, unscheduled trips to the ICU, Iowa City drama. A lot went wrong in December. I'm still having trouble bouncing back from

8 01, 2016

Rest in peace dearest Sara

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These are the posts I dread writing. One of my closest myeloma friends, Sara Lathan, from Charlotte, North Carolina, lost her extended fight with multiple myeloma earlier this week. I first met Sara after speaking to an awesome support group in Charlotte. Was it three years ago? Four years? They all seem to run together

1 01, 2016

Hope springs eternal in 2016

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Never a dull moment. Our end of Amelia Island lost power over the holiday. It happens a lot. Even when it isn't windy, a heavy rain can leave us without power. The unusual part this time: our electricity was off for so long. It usually sputters back on after an hour or two. I took

26 12, 2015

An amazing day that exceeded unrealistic expectations

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Sometimes Christmas day can be a letdown. Let's face it; the media and retailers build it up so much it's hard to live the idealized version. Am I right? That said, the time I spent today with Pattie, our Island Dog and Calypso Kitties was amazing. I didn't even think about checking email or posting

15 12, 2015

This is why I do what I do

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I experience countless emotional moments as I hear from myeloma patients and caregivers from around the country and sometimes, around the world. I wanted to share an exceptionally personal one with you here today. In October, I flew up to Boston for an annual reunion of Myeloma Patient Ambassadors. I was a member of the

26 11, 2015

I’m thankful for my myeloma friends, alive and past

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Thanksgiving is all about family and friendships. I have made some amazing friends during my myeloma journey. Some I've never met. We've simply emailed regularly for years. Gary Shankland and I have been exchanging emails for three or four years. His wife, Jeanie, has battled an aggressive type of myeloma all this time. The couple

16 11, 2015

Patient Snapshot Update: Transplant survivor David from Tampa

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We've been following the progress of allogeneic (donor) stem cell transplant survivor, David, from Tampa, for a year. The young myeloma patient handled the difficult procedure better than most, but he openly expressed disappointment that his transplant didn't completely snuff out his cancer. I wrote about his thoughts in September: Patient Snapshot Update: David from

25 10, 2015

Will to live: Why I want to go home

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Why am I fighting so hard to stay alive and get home? Yes, I want to help my fellow patients. I still feel I have so much to do. Life is hard right now. But it's precious. I miss my wife. I miss my life! Just between you and me, want to know why I

16 10, 2015

Great news!

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I met with Dr. Tricot this morning for my pre-transplant check. As expected, I'm good to go. I wasn't expecting such encouraging, eye-opening test results. The report from yesterday's PET scan still aren't available online. But Dr. Tricot had them. After he carefully examined me and double checked my numbers, Dr. Tricot flashed a big