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2901, 2016

Cure Magazine searching for myeloma heroes

By |January 29th, 2016|Inspirational, News|

I’m always writing about a new myeloma hero that I’ve met–or someone that we’ve lost. Sounds like Cure Magazine is determined to identify and recognize them. They even use the term, “myeloma hero.”
Nominate Your
Multiple Myeloma Hero Today!
DO YOU KNOW an individual or institution that has gone above and beyond to make a difference in […]

2701, 2016

Isn’t battling myeloma hard enough without having to raise money, too?

By |January 27th, 2016|Inspirational, Research, Tips|

An amazing over-the-top (pun intended) multiple myeloma awareness and fundraising mountain climbing adventure scaling Mr. Kilimanjaro sponsored by the MMRF:

1601, 2016

Blood Glucose, MGUS, Myeloma & Metformin (Part Nine)

By |January 16th, 2016|About Pat, Caregivers, Inspirational, Nutrition, Research, Side effects, Support, Tips, Transplants|

A lot has happened since I ran two of the final installments about the importance of controlling blood glucose by Danny Parker:
Blood Glucose, MGUS, Myeloma & Metformin (Part Seven and Eight)

1301, 2016

Could almost a billion dollars cure multiple myeloma?

By |January 13th, 2016|Inspirational, Research|

How much money would it take to cure multiple myeloma? 50 million? 100 million? With some off-the-charts luck, we’ll know in just over an hour. For the first time ever, I’m playing Powerball. The one time payout on the 1.5 billion dollar jackpot: 930 million dollars.

1201, 2016

Cancer patients lost a hero this week

By |January 12th, 2016|Inspirational, RIP|

Ellen Stovall should be in the cancer activist hall of fame. I never met her; never even heard of her. But lengthy obits in the New York Times and USA Today was my first hint how special she was.

901, 2016

Is it time to split my blog in two?

By |January 9th, 2016|About Pat, Inspirational, Support|

Speaking of dex (see Wednesday’s post), the much maligned steroid and a GI tract recovering from a pair of stem cell transplants and a three week long bout with C. diff don’t mix. My gut is in knots!

801, 2016

Rest in peace dearest Sara

By |January 8th, 2016|Caregivers, Inspirational, RIP, Support, Tips|

These are the posts I dread writing. One of my closest myeloma friends, Sara Lathan, from Charlotte, North Carolina, lost her extended fight with multiple myeloma earlier this week.

601, 2016

Wall Street Journal article about myeloma hits a home run

By |January 6th, 2016|About Pat, Caregivers, Inspirational, News, Research, Support|

Monday morning my email inbox lit up. A Wall Street Journal article–both online and in the hard copy edition–about the FDA’s unprecedented approval of three anti-myeloma drugs in less than a month was featured front and center.

101, 2016

Hope springs eternal in 2016

By |January 1st, 2016|About Pat, Inspirational, Support|

Never a dull moment. Our end of Amelia Island lost power over the holiday. It happens a lot. Even when it isn’t windy, a heavy rain can leave us without power. The unusual part this time: our electricity was off for so long. It usually sputters back on after an hour or two.

2612, 2015

An amazing day that exceeded unrealistic expectations

By |December 26th, 2015|About Pat, Inspirational, Support|

Sometimes Christmas day can be a letdown. Let’s face it; the media and retailers build it up so much it’s hard to live the idealized version. Am I right? That said, the time I spent today with Pattie, our Island Dog and Calypso Kitties was amazing. I didn’t even think about checking email or posting […]

2412, 2015

Happy Holidays! Catching up with our myeloma friends

By |December 24th, 2015|Caregivers, Inspirational, Side effects|

I understand that all of my reader’s don’t celebrate Christmas. After all, myeloma doesn’t respect religious or political boundries; it’s an equal opportunity dose of misery. Even so, I thought that Christmas Eve might be the perfect time to catch up on how some of our friends we’ve been following this past year are doing.

1512, 2015

This is why I do what I do

By |December 15th, 2015|About Pat, Caregivers, Inspirational, Support|

I experience countless emotional moments as I hear from myeloma patients and caregivers from around the country and sometimes, around the world. I wanted to share an exceptionally personal one with you here today.

2611, 2015

I’m thankful for my myeloma friends, alive and past

By |November 26th, 2015|Caregivers, Inspirational, RIP|

Thanksgiving is all about family and friendships. I have made some amazing friends during my myeloma journey. Some I’ve never met. We’ve simply emailed regularly for years.

1611, 2015

Patient Snapshot Update: Transplant survivor David from Tampa

By |November 16th, 2015|Inspirational, News, Side effects, Transplants|

We’ve been following the progress of allogeneic (donor) stem cell transplant survivor, David, from Tampa, for a year. The young myeloma patient handled the difficult procedure better than most, but he openly expressed disappointment that his transplant didn’t completely snuff out his cancer.

1211, 2015

My old friend keeps on biking

By |November 12th, 2015|Inspirational, Support|

I’ve met some amazing people on my myeloma journey. One of the most memorable is my good friend, Andy Sninsky.

1011, 2015

Myeloma News and Updates

By |November 10th, 2015|About Pat, Inspirational, News, Research, Side effects, Transplants|

More good news about Mike Barron and his successful run with daratumumab. Mike wants all to know that his latest cycle picks up where the last on left off: daratumumab and dex is doing the trick. “It’s like a miracle,” Mike wrote me.

311, 2015

More good news: Daratumumab follow-up

By |November 3rd, 2015|About Pat, Inspirational, Supplements/Drugs, Transplants|

Remember the good news that Mike from North Carolina shared with us last month?
Reader celebrating great response to daratumumab

111, 2015

Need inspiration? How about Cindy’s smile!

By |November 1st, 2015|About Pat, Inspirational, Side effects, Transplants|

Doing so much better today! The thickening of my stomach wall is still there, but my fever is gone, and antibiotics seem to be working. I’m all too aware of how many of you have also lived through the “worst days of your lives.”

2510, 2015

Will to live: Why I want to go home

By |October 25th, 2015|About Pat, Inspirational|

Why am I fighting so hard to stay alive and get home?

1610, 2015

Great news!

By |October 16th, 2015|About Pat, Diagnostics, Inspirational, News|

I met with Dr. Tricot this morning for my pre-transplant check. As expected, I’m good to go. I wasn’t expecting such encouraging, eye-opening test results.