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Archive | Inspirational

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Cure Magazine searching for myeloma heroes

Posted on January 29 2016 by Pat Killingsworth

I’m always writing about a new myeloma hero that I’ve met–or someone that we’ve lost. Sounds like Cure Magazine is determined to identify and recognize them. They even use the term, “myeloma hero.”

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MT K

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Isn’t battling myeloma hard enough without having to raise money, too?

Posted on January 27 2016 by Pat Killingsworth

An amazing over-the-top (pun intended) multiple myeloma awareness and fundraising mountain climbing adventure scaling Mr. Kilimanjaro sponsored by the MMRF:

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Blood Glucose, MGUS, Myeloma & Metformin (Part Nine)

Blood Glucose, MGUS, Myeloma & Metformin (Part Nine)

Posted on January 16 2016 by Pat Killingsworth

A lot has happened since I ran two of the final installments about the importance of controlling blood glucose by Danny Parker:

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powerball

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Could almost a billion dollars cure multiple myeloma?

Posted on January 13 2016 by Pat Killingsworth

How much money would it take to cure multiple myeloma? 50 million? 100 million? With some off-the-charts luck, we’ll know in just over an hour. For the first time ever, I’m playing Powerball. The one time payout on the 1.5 billion dollar jackpot: 930 million dollars.

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Ellen Stovall

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Cancer patients lost a hero this week

Posted on January 12 2016 by Pat Killingsworth

Ellen Stovall should be in the cancer activist hall of fame. I never met her; never even heard of her. But lengthy obits in the New York Times and USA Today was my first hint how special she was.

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Is it time to split my blog in two?

Posted on January 09 2016 by Pat Killingsworth

Speaking of dex (see Wednesday’s post), the much maligned steroid and a GI tract recovering from a pair of stem cell transplants and a three week long bout with C. diff don’t mix. My gut is in knots!

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SARA

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Rest in peace dearest Sara

Posted on January 08 2016 by Pat Killingsworth

These are the posts I dread writing. One of my closest myeloma friends, Sara Lathan, from Charlotte, North Carolina, lost her extended fight with multiple myeloma earlier this week.

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Jenny’s family

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Wall Street Journal article about myeloma hits a home run

Posted on January 06 2016 by Pat Killingsworth

Monday morning my email inbox lit up. A Wall Street Journal article–both online and in the hard copy edition–about the FDA’s unprecedented approval of three anti-myeloma drugs in less than a month was featured front and center.

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Hope springs eternal in 2016

Posted on January 01 2016 by Pat Killingsworth

Never a dull moment. Our end of Amelia Island lost power over the holiday. It happens a lot. Even when it isn’t windy, a heavy rain can leave us without power. The unusual part this time: our electricity was off for so long. It usually sputters back on after an hour or two.

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An amazing day that exceeded unrealistic expectations

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An amazing day that exceeded unrealistic expectations

Posted on December 26 2015 by Pat Killingsworth

Sometimes Christmas day can be a letdown. Let’s face it; the media and retailers build it up so much it’s hard to live the idealized version. Am I right? That said, the time I spent today with Pattie, our Island Dog and Calypso Kitties was amazing. I didn’t even think about checking email or posting something until we got home from checking out Xmas lights and taking a walk on the beach under a full moon.

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Happy Holidays! Catching up with our myeloma friends

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Happy Holidays! Catching up with our myeloma friends

Posted on December 24 2015 by Pat Killingsworth

I understand that all of my reader’s don’t celebrate Christmas. After all, myeloma doesn’t respect religious or political boundries; it’s an equal opportunity dose of misery. Even so, I thought that Christmas Eve might be the perfect time to catch up on how some of our friends we’ve been following this past year are doing.

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LightTheNight-2

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This is why I do what I do

Posted on December 15 2015 by Pat Killingsworth

I experience countless emotional moments as I hear from myeloma patients and caregivers from around the country and sometimes, around the world. I wanted to share an exceptionally personal one with you here today.

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Jeanie Nebraska – Copy

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I’m thankful for my myeloma friends, alive and past

Posted on November 26 2015 by Pat Killingsworth

Thanksgiving is all about family and friendships. I have made some amazing friends during my myeloma journey. Some I’ve never met. We’ve simply emailed regularly for years.

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DAVID

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Patient Snapshot Update: Transplant survivor David from Tampa

Posted on November 16 2015 by Pat Killingsworth

We’ve been following the progress of allogeneic (donor) stem cell transplant survivor, David, from Tampa, for a year. The young myeloma patient handled the difficult procedure better than most, but he openly expressed disappointment that his transplant didn’t completely snuff out his cancer.

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My old friend keeps on biking

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My old friend keeps on biking

Posted on November 12 2015 by Pat Killingsworth

I’ve met some amazing people on my myeloma journey. One of the most memorable is my good friend, Andy Sninsky.

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Myeloma News and Updates

Posted on November 10 2015 by Pat Killingsworth

More good news about Mike Barron and his successful run with daratumumab. Mike wants all to know that his latest cycle picks up where the last on left off: daratumumab and dex is doing the trick. “It’s like a miracle,” Mike wrote me.

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MIKE and PUP

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More good news: Daratumumab follow-up

Posted on November 03 2015 by Pat Killingsworth

Remember the good news that Mike from North Carolina shared with us last month?

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Cindy and walter

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Need inspiration? How about Cindy’s smile!

Posted on November 01 2015 by Pat Killingsworth

Doing so much better today! The thickening of my stomach wall is still there, but my fever is gone, and antibiotics seem to be working. I’m all too aware of how many of you have also lived through the “worst days of your lives.”

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Will to live: Why I want to go home

Posted on October 25 2015 by Pat Killingsworth

Why am I fighting so hard to stay alive and get home?

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Iowa stadium and hospital

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Great news!

Posted on October 16 2015 by Pat Killingsworth

I met with Dr. Tricot this morning for my pre-transplant check. As expected, I’m good to go. I wasn’t expecting such encouraging, eye-opening test results.

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