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Inspirational

Home/Inspirational
12 10, 2015

We can’t wait for a cure!

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I had a chance to see myeloma patient and CrowdCare Foundation co-founder, Jenny Ahlstrom, in Boston last week. She made an impassioned plea to anyone that would listen to help her raise money to pay for two cutting edge T cell clinical trials; one in the U.S. and one in Germany. Here's information about the

8 10, 2015

Reflections of an amazing day

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I'm so proud of myself! I finally figured out how to download pictures from my Android smart phone to my laptop. It's no secret that I'm tech challenged. And it isn't about age: old timer, good friend and fellow myeloma survivor, Gary Petersen, gave me a tutorial at a patient dinner meeting on Tuesday. Check

21 08, 2015

CrowdCare Foundation betting on T cell therapy

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After hearing from dozens of you about your peripheral neuropathy--and what you do to help minimize the symptoms--I'm working on a two part series about it, sharing tips from more than 20 patients; I'll run the posts this weekend. In the meantime, here is CrowdCare Foundation's official press release, announcing our support for two important,

18 08, 2015

Cutting edge T cell research could help save our lives

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I've got some exciting news. My good friend and founder of the CrowdCare Foundation, Jenny Ahlstrom, announced the two groundbreaking clinical trials we plan to help fund today. Regular readers will remember that I'm a member of CrowdCare Foundation's Patient Advisory Board. We've spent the last eight months searching for underfunded research most likely to

13 08, 2015

More about daratumumab, followed by Pat’s medical update

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Before I write about how I'm been doing the past day or two, here's the mainstream Florida's media's perception of yesterday's feature, daratumumab: Multiple myeloma sufferers given new hope with 'wonder drug' August 12, 2015 – 693 NewsTalk, Melbourne, Australia      A breakthrough drug is providing "unprecedented results" and giving new hope for patients with a rare

6 07, 2015

Game on!

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Preseason is over.  Today starts the regular season.  It's the main event. Last week's stem cell harvest was grueling.  I went back and figured it out.  15 neupogen shots, half I gave to myself.  Four Mozobil injections after hours at the BMT clinic.  Those babies packed a punch!  The first night I only took one