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Inspirational

/Inspirational
2206, 2015

Your support helping me stay the course

By |June 22nd, 2015|About Pat, Inspirational|

My day has had more emotional ups-and-downs than a roller coaster–and the afternoon isn’t even over!

1506, 2015

Stem cell transplant survivors face skin cancer risk

By |June 15th, 2015|Inspirational, Research, Side effects, Tips|

Yesterday was a much needed mental health day.  Pattie and I spent time working in the yard, stocked-up at Lowes and Home Depot; relaxed in the pool.  Spending so much time outside reminded me that a good friend emailed me a report last week, warning those of us that had undergone a stem cell transplant […]

1106, 2015

Sense of community among myeloma patients is strong!

By |June 11th, 2015|About Pat, Caregivers, Inspirational, Transplants|

Pitcher Mel Stottlemyre’s extended remission came up at a support group meeting I attended yesterday; one of the patients shared how he’s been in complete response and drug free for over nine years.

1006, 2015

Baseball great Mel Stottlemyre facing relapse

By |June 10th, 2015|Books, Caregivers, Inspirational, News, Side effects|

Before I pass along information about Mel Stottlemyre, I wanted to follow-up on my post about daratumumab from yesterday; the companies involved have officially applied for FDA approval.

806, 2015

UPDATE: Patient Snapshot: David from Florida

By |June 8th, 2015|Caregivers, Inspirational, News, Side effects, Support, Tips, Transplants|

I’ve been corresponding with allogeneic stem cell transplant patient, David from Tampa, Florida.  As I’ve followed his story, we’ve become good friends.  He’s a great guy!

2605, 2015

Remembering my mother on Memorial Day

By |May 26th, 2015|About Pat, Inspirational|

My father was a colonel in the Air Force during  World War Two.  But I sometimes forget that my mother was a secretary with the highest security clearance at the Pentagon in Washington DC at the same time.  That’s how they met.

2205, 2015

Patient Snapshot: Tom from Ohio (Part Twenty Seven)

By |May 22nd, 2015|Inspirational, News, Side effects, Transplants|

A month ago I posted an email update about multiple myeloma patient and allogeneic transplant survivor, Tom Brennan, from Ohio.  Tom’s wife, Whitney, was kind enough to pass it along; I had been hearing from a number of readers that were concerned about how Tom was doing:

2105, 2015

Exciting new research needs funding

By |May 21st, 2015|Inspirational, News, Research|

May 13th I was part of a patient panel asking researchers, Dr. Carmen Baldino, PhD, and Dr. Kelvin Lee, MD.  They are working on an incredible new myeloma therapy that may be able to cure–YES, CURE–patients with 14;16 genetic translocations; sort of a lucky genomic loophole.

1805, 2015

Tom Brokaw’s misfortune may be our big break!

By |May 18th, 2015|Inspirational, News|

Loyal reader, Stephanie from Ohio, emailed me some amazing news.  Apparently Tom Brokaw’s medial blitz has rocketed multiple myeloma to the number one searched term on the internet this weekend!

1305, 2015

Tom Brokaw’s book about myeloma out today!

By |May 13th, 2015|Books, Inspirational, News|

I went long yesterday because I wanted to free up time to preview a copy of Tom Brokaw’s new book, A lucky Life Interrupted.  Doesn’t hit news stands and sites until today.  I was very pleased.  A must read for all myeloma patients and caregivers!

1205, 2015

Decision time: modified auto, allo or drug roulette? (Part Two)

By |May 12th, 2015|About Pat, Inspirational, News, Research, Side effects, Support, Transplants|

I was facing three therapy options, all with significant upsides–and a host of downsides, too.  I spent several weeks, kicking-the-can-down-the-road, facing a what I considered to be an impossible decision.  None of them were jumping out at me.  I was paralyzed, spinning my wheels.

205, 2015

Tom Brokaw’s new book celebrates his remission

By |May 2nd, 2015|Books, Inspirational, News|

Fellow myeloma patient, Tom Brokaw, is back in the news again; he’s written a book about his experience.

105, 2015

Living to Make a Difference: Mike Katz (Part Two)

By |May 1st, 2015|Inspirational, RIP|

Writer Greg Brozeit reminds us that any myeloma patient that has ever taken dexamethasone owes Mike Katz a heartfelt “Thank you!”
Living to Make a Difference: Mike Katz (Part Two)

3004, 2015

Living to Make a Difference: Mike Katz (Part One)

By |April 30th, 2015|Inspirational, RIP|

I wrote briefly about 25 year multiple myeloma survivor, Mike Katz, earlier this week.  But I didn’t really know him; we only spoke briefly when our paths would cross at receptions, or when he was working in the IMF’s exhibition booth at ASH or ASCO.

2904, 2015

Two important broadcasts about new clinical trials

By |April 29th, 2015|Inspirational, Research, Transplants|

Please forgive ongoing changes on our site.  Some of it has to do with making things device friendly: you will soon be able to read and research blog posts using your smart phone or device.  Unfortunately, I’m all about the content.  My young new volunteers are all about integrability.  We’ll get it worked out.  Int […]

2604, 2015

Musical tribute to myeloma patients

By |April 26th, 2015|Inspirational, Support|

Myeloma survivor and CrowdCare Foundation co-founder, Jenny Ahlstrom, is also an aspiring song writer.  Jenny’s shy; she reluctantly performed for us last month at Pat’s Myeloma Beach Party.  Great voice!

2204, 2015

Update: Allo transplant recipient, David from Florida

By |April 22nd, 2015|Inspirational, Side effects, Transplants|

Yikes!  Tom has faced such a tough road following his allogeneic (donor) stem cell transplant.  Combine this with a mortality rate for myeloma patients that runs somewhere between ten and twenty percent–and a success rate that’s hard to predict–it’s understandable why a lot of doctors and patients shy away from the controversial procedure.  Yet to […]

2004, 2015

Well known novelist dies of multiple myeloma

By |April 20th, 2015|Inspirational, RIP|

A number of readers from the Western U.S. emailed me about author Ivan Doig’s passing.  The popular and well published novelist from Idaho died last week from complications related to his ongoing battle with multiple myeloma.
Ivan Doig dies at 75; writer captured the American West
April 13, 2015 – Associated Press and the L.A. Times

1104, 2015

Oops! I Forgot my own anniversary…

By |April 11th, 2015|About Pat, Caregivers, Inspirational|

The 8th anniversary of my multiple myeloma diagnosis has unceremoniously come and gone:            April 3rd, 2007.

1004, 2015

Next year’s Beach Party planning off to an early start

By |April 10th, 2015|About Pat, Caregivers, Inspirational, Support|

One of the amazing things about the final day of this year’s Beach Party: no one wanted to leave!  Instead, the 70 or so remaining patients and caregivers stayed, shared suggestions and started to help us plan next year’s event.   Volunteers stepped forward, committees were formed.  Michele and Stephanie even started a Pat’s Myeloma Beach […]